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Very Confused

Noomers

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Noomers Rookie
Noomers
Posted

I was diagnosed with celiac just two weeks ago. I had very few symptoms. I had my 2.5yo son tested since he has all the symptoms (diarrhea, low BMI, irritability, chronic loose stools (sometimes grey ones). His test results came back today and they are very much negative. So now what? Is he too young to get an accurate test?

What confuses me more is that since the whole family started a gluten-free diet 4 days ago, his moodiness has improved somewhat and he had a semi-normal bowel movement. I'm truly shocked that he didn't test positive and I did.

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psawyer Proficient
psawyer
Posted

Testing is notoriously unreliable in young children. False negatives abound.

Roda Rising Star
Roda
Posted

I agree with Peter. If you want to take it further you could consult with a gi and get the EGD and biopsy. You can have negative blood work and positive biopsy, but biopsy can produce false negatives too. Or if you are comfortable with putting her gluten free without a dr. diagnosis then go for it. I don't have a doctor diagnosis for my 6 year old son, but I do have a signed letter from his allergist to avoid wheat, rye, barley and all gluten containing ingredients that I sent to the school and that was sufficient for the school. But I know a lot of people say getting a diagnosis makes it easier when they are in school.

Noomers Rookie
Noomers
Posted
  • Author

Thanks for the replies.

I am wondering if it's best to get a biopsy (which would have to be ASAP) or just self-diagnose. I am switching the whole house to gluten-free because of me which will make further testing later on in life next to impossible, right?

I'm waiting for a call from our doctor.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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