Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oats - Any Statistics?

ValeriaZ

Recommended Posts

ValeriaZ Rookie
ValeriaZ
Posted

Hello, I am new here, could not find recent discussions of the topic

I read so many contradictory info on oats RE: gluten free.

Could you please give me feedback to build some kind of statistics - can you / do you eat oats? If yes - occasionally or regularily?

And also if yes - if you could say (optionally of course) if you have any autoimmune disorder associated to gluten intolerance?

Question because of my kid who has nephrotic syndrome (autoimmune) and I found out he is allergic to so many kinds of food that it is a real nightmare to feed him at all.

Eliminating oats would be tough - basically nothing to eat except rice and buckwheats :( So I really would like to have a better idea on how risky could be oats... I mean - not because of contamination with other cereals, but oats as themselves, with their avenin as protein...

Thank you in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciavyn Contributor
ciavyn
Posted

I've eaten them regularly and intermittently. I use Bob's Red Mill Gluten Free Oats, and I've never had a problem. I have Celiac's Disease (not gluten intolerance or anything otherwise.) Hope that is helpful!

ValeriaZ Rookie
ValeriaZ
Posted
  • Author

I've eaten them regularly and intermittently. I use Bob's Red Mill Gluten Free Oats, and I've never had a problem. I have Celiac's Disease (not gluten intolerance or anything otherwise.) Hope that is helpful!

Thank you!

I am new to it all and still cannot find a lot of answers to my questions. May be you could explain what is the difference between celiac and gluten intolerance?

etta694 Explorer
etta694
Posted

I'm self diagnosed gluten intolerant with definite reactions to just a few crumbs of gluten products.. I eat gluten free oats as well. I get them in bulk.. but they are definitely gluten free. I make cookies and have it as cereal sometimes.

ciavyn Contributor
ciavyn
Posted

Gluten intolerance is the allergy form, I believe, and Celiac's disease is an autoimmune disease. Someone PLEASE correct me if I'm wrong.

etta694 Explorer
etta694
Posted

I call myself self diagnosed gluten intolerant because I haven't been tested for genetics or for antibodies... just had a biopsy that came back normal. However I cannot eat gluten. I found that out by changing my diet and I am not willing to eat gluten to have any other tests done now. It wouldn't change anything for me anyway. Perhaps there is a better definition than mine.... :unsure: that someone will post.

This is the definition.. I think

https://www.celiac.com/articles/30/1/What-is-the-difference-between-celiac-disease-and-gluten-intolerance/Page1.html

Is it not that (to the doctors).. Celiac is a definite positive test results for blood work or biopsy or genetics and gluten intolerance doesn't return the positive results that the doctors want..but still could be Celiac?

etta694 Explorer
etta694
Posted
:)
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ValeriaZ Rookie
ValeriaZ
Posted
  • Author

I call myself self diagnosed gluten intolerant because I haven't been tested for genetics or for antibodies... just had a biopsy that came back normal. However I cannot eat gluten. I found that out by changing my diet and I am not willing to eat gluten to have any other tests done now. It wouldn't change anything for me anyway. Perhaps there is a better definition than mine.... :unsure: that someone will post.

This is the definition.. I think

https://www.celiac.com/articles/30/1/What-is-the-difference-between-celiac-disease-and-gluten-intolerance/Page1.html

Is it not that (to the doctors).. Celiac is a definite positive test results for blood work or biopsy or genetics and gluten intolerance doesn't return the positive results that the doctors want..but still could be Celiac?

Thank you!

The definitions are confusing, true.

We are also self-diagnosed

tarnalberry Community Regular
tarnalberry
Posted

10% of celiacs react to gluten free oats. non-specialty oats are almost universally contaminated at levels too high for celiacs.

what about amaranth, quinoa, and teff (even sorgum as a flour)?

etta694 Explorer
etta694
Posted

ValeriaZ, I found this article that is very much easier to understand, I think and thought you might like to read it. I'm still trying to get this clear in my head too.

https://www.celiac.com/articles/759/1/Early-Diagnosis-of-Gluten-Sensitivity-Before-the-Villi-are-Gone-by-By-Kenneth-Fine-MD/Page1.html

ValeriaZ Rookie
ValeriaZ
Posted
  • Author

ValeriaZ, I found this article that is very much easier to understand, I think and thought you might like to read it. I'm still trying to get this clear in my head too.

https://www.celiac.com/articles/759/1/Early-Diagnosis-of-Gluten-Sensitivity-Before-the-Villi-are-Gone-by-By-Kenneth-Fine-MD/Page1.html

Thank you!

Very informative article.

No need anymore to convince me to go gluten-free - we are already wheat, rye and barley free with my kid for appr 2 months (he additionally dairy, soy, and (long list) free).

My main concern is oats. In this article it says oats also bad. :( Other articles on this site say no

tarnalberry Community Regular
tarnalberry
Posted

If you go to pubmed and look at the research on oats in celiacs, you'll see that, on average, 10% of the particpants eating gluten free oats experience intestinal damage. I don't have time to link the studies for you (10 month old crawling around and all), but you may find it informative to look them up yourself.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,539
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.