Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are The Odds I'm Pre-Diabetic?


Fire Fairy

Recommended Posts

Fire Fairy Enthusiast

My brother has type 1 diabetes. Several other family members have type 2. I have noted for several years now that sometimes my urine smells like pancake syrup. I asked my brother and he said he had never noticed his urine smelling sweet but his nose isn't the best. I had tried googling it about a year ago and found no information. Just now I googled and found info which says I should be concerned

Open Original Shared Link

"Sweet smelling

Catching a whiff of something sugary sweet after you pee might actually be a clue to something very serious going on in your body.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

My brother has type 1 diabetes. Several other family members have type 2. I have noted for several years now that sometimes my urine smells like pancake syrup. I asked my brother and he said he had never noticed his urine smelling sweet but his nose isn't the best. I had tried googling it about a year ago and found no information. Just now I googled and found info which says I should be concerned

Open Original Shared Link

"Sweet smelling

Catching a whiff of something sugary sweet after you pee might actually be a clue to something very serious going on in your body.

Fire Fairy Enthusiast

Thank you for responding Yolo. If I just need a standard blood sugar test I have several family members who have the blood sugar test machines. Everytime I've tested it I've been normal.

Dandylion root tea sounds lovely. :)

IrishHeart Veteran

I agree and I think your system is correcting itself. Erratic blood sugars are common, I have read, with celiac and perhaps, you are leveling off now that you are gluten free! Go with yolo's suggestion.. the dandelion tea will help clear the liver. :)

My glucose levels used to go up and down. My thyroid panels do too...but now, they are "normal" (hooray) No meds. My sister has type 1 diabetes and I have used her meter to check myself and I am okay, too...but it is wise to watch ourselves, nonetheless. :)

A blood test, when you can afford it, may put your mind at ease!

YoloGx Rookie

I agree and I think your system is correcting itself. Erratic blood sugars are common, I have read, with celiac and perhaps, you are leveling off now that you are gluten free! Go with yolo's suggestion.. the dandelion tea will help clear the liver. :)

My glucose levels used to go up and down. My thyroid panels do too...but now, they are "normal" (hooray) No meds. My sister has type 1 diabetes and I have used her meter to check myself and I am okay, too...but it is wise to watch ourselves, nonetheless. :)

A blood test, when you can afford it, may put your mind at ease!

Hi Irish heart. Nice to know I gave some good advice.

Meanwhile I would like to ask you about your experience with your thyroid. My friend Graeme right now is "crashing'. He's taking levothyroxin and still can't sleep, is subject to the cold, has constipation, exhaustion but can't sleep, brain fog etc. though he is quite thin. I figure he's having trouble with his adrenals. We had him take a bunch of tests for his thyroid recently which he should get results of next week.

He has celiac too which makes me wonder about the whole thing, if maybe this crash is in part due to his not needing to be on so much thyroxin. However I also think the low adrenals are getting in the way of converting T-4 to T-3 and thus creating a toxic condition.

What seemed to set it off was both the cold weather and his being on a severe anti candida diet. He stopped eating all grains and squash except for zucchinis. I convinced him this was bad for his health. He is doing a little better now that he is eating some rice each day and now has added lentils to his diet. However he still is in a crisis.

Any insights as to what to do meanwhile? Am wondering if he should go see a functional medicine doc. instead of the county doc he usually sees... This has been going on for far too long.

IrishHeart Veteran

Gosh, I do not know what to say about your friend. What does his endocrinologist think of all this?? It does not seem right hat he has so many symptoms while on meds. I think those severe candida diets often cause nutritional deficiencies (JMHO) when someone remains on them too long.

My experience was BEFORE I went gluten-free, when I was very tired and ill and overweight. My TSH was 5.3 and the doctor put me on synthroid. I zoomed to .8. I felt jittery and wired and had a whole bunch of symptoms (we now know were from the celiac) and the endo said snarkily "It's not your thyroid giving you all those symptoms! Your numbers are fine" FINE? I felt awful!!

I started dropping weight and losing my hair rapidly and had MAJOR gastro and sleep problems.

So, I went to a NP who specializes in hormone balancing and she put me on Armour and tested my adrenal function via saliva testing. My cortisol was high in the morning and I was working with an ND, so I tried every homeopathic remedy and supplement to "restore my adrenals" and nothing changed my raciness, anxiety, gastro symptoms, fatigue. I went on an "adrenal fatigue diet", including MORE whole WHEAT, etc. FOR 9 MONTHS..and got more and more ill..!!!!.little did we know...I had celiac and so, I lost nearly two years listening to all kinds of medical practitioners---mainstream and alternative---and things just got worse.

A functional med MD listened to my story, how I felt my thyroid was trying to work on its own and that I was really jumping out of my skin. He ran tests and decided that because my thyroid antibodies were so low, I asked him did he think I needed to be on ANY medication and he said NO. I agreed with him and stopped taking it and within a month, I felt a bit better (well, I still had some bad symptoms because of the gluten but at least I wasn't racing in my brain and unable to sit still) and my numbers, TSH, T3, T4 are all normal now. My latest cortisol readings were within normal range. I believe the gluten affected the thyroid and adrenals and that they are functioning almost normally now as my body gets rid of the gluten.

Going gluten-free has helped me with the other issues of brain fog, rapid weight loss, anxiety, jitteryness...but I think the medicine made me HYPER because I did not even need medicine at all, rather I needed to be OFF gluten!!

So, I think, that in MY case, My thyroid numbers were off --just slightly hypo, for most of my life and the celiac was the real reason. Now that I am gluten-free, I think my thyroid is functioning normally. I'll see next month when I go back for blood work.

Wish I could offer more thoughts regarding your friend.

sorry.

Fire Fairy Enthusiast

Thank you both. So glad to read of your improvements IrishHeart. I hope your friend starts improving soon Yolo.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Thank you both. So glad to read of your improvements IrishHeart. I hope your friend starts improving soon Yolo.

He is getting better thankfully--as I hope you are too.

I have him taking dandelion/chicory root tea to help detox--similar to what I suggested for you.

He's also now on natural things to help his adrenals--like ashwaganda, more co-enzyme B vitamins, 5HTP to help him sleep, more frequent meals. He'll be seeing an endocrinologist soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,963
    • Most Online (within 30 mins)
      7,748

    AlissaW
    Newest Member
    AlissaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.