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Weird Skin Pain


Marie1976

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Marie1976 Enthusiast

For years, I have been having skin pain/sensitivity on my hands and arms. It comes and goes, usually only on one arm at a time. You can't see anything, no rash or anything. It doesn't itch. Someone suggested it's my joints and not my skin, and I guess it seems weird that I can't really pinpoint where it actually hurts, if it's my skin or joints. I remember getting it as a kid whenever I had a fever. Now it just comes and goes all the time whether I'm sick or not. I'm wondering now if it's celiac-related. Does anyone know what I'm talking about?


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jeannieknits Rookie

For years, I have been having skin pain/sensitivity on my hands and arms. It comes and goes, usually only on one arm at a time. You can't see anything, no rash or anything. It doesn't itch. Someone suggested it's my joints and not my skin, and I guess it seems weird that I can't really pinpoint where it actually hurts, if it's my skin or joints. I remember getting it as a kid whenever I had a fever. Now it just comes and goes all the time whether I'm sick or not. I'm wondering now if it's celiac-related. Does anyone know what I'm talking about?

so funny you mention this because my daughter was just complaining about this last week--she tested neg for celiac,(even had the endoscopy) but I swear she has it. her entire forearm was, in her words "super sensitive", like the "skin was full of nerves" . it went away after about three hours, but she says it's happened before. she's almost 19, has reactions to dairy, gets horrible migraines, always has headaches, has an upset belly most the time, always has had (in my opinion) "weird" poops....but I've been telling her to TRY and go gluten free for a month and she just wont :( stubborn kid.

so, I wonder if this is a symptom as well. I remember having this happen to me. it is very odd.

heather Goble Rookie

For years, I have been having skin pain/sensitivity on my hands and arms. It comes and goes, usually only on one arm at a time. You can't see anything, no rash or anything. It doesn't itch. Someone suggested it's my joints and not my skin, and I guess it seems weird that I can't really pinpoint where it actually hurts, if it's my skin or joints. I remember getting it as a kid whenever I had a fever. Now it just comes and goes all the time whether I'm sick or not. I'm wondering now if it's celiac-related. Does anyone know what I'm talking about?

This happens to me as well. It used to only happen when I was sick or getting sick. I never knew how to explain it, my skin just hurt. Now it happens when I am not sick. I thought it was something that was common to everyone. I remember the first time I told my husband "You know how your skin hurts when you are coming down with something?" He looked at me like I had two heads. He had never heard of such a thing.... Glad to hear it's not just me.

Marie1976 Enthusiast

That describes it exactly, Jeannie. And Heather, I have said those exact words to my husband and he looked at me the same way.

I guess I'm not the only one then!

sb2178 Enthusiast

I tend to get it before a migraine (migraines aren't formally diagnosed as they're pretty rare and a couple of aleve with a long nap generally gets me through them) and the skin pain is worse than the head pain. I HATE wearing clothes then, because it hurts.

JenHarris Apprentice

I too have had this. And it does happen more with being sick, but I've had it with migraines too. My husband thought it was so weird that I couldn't wear anything but super loose clothing when I used to have migraines.

CDFAMILY Rookie

Hi, what you are experiencing is mild neuropathy. My whole family would complain about this. You might check your B vitamins especially B12. Our family takes a B50 complex and B12 sublingual 2-5,000 mcg 3 to 4 times a week. We do not experience this problem anymore.


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Kre8sioN Newbie

Can it happen anywhere? Ive been having low to mild sharp pains here and there across the stomach, seem to be just under the skin, no rash, no itch. I often feel my clothes or the seat belt rub and it happens, not every day though? My doctor, just starting to believe I'm Celiac explained it as very small lymph nodes causing this, because I have other enlarged lymph nodes. Any truth to this, anyone else have "Weird Pains" across the skin of the stomach? and thanks cdfamily I will look into this.

heather Goble Rookie

Can it happen anywhere? Ive been having low to mild sharp pains here and there across the stomach, seem to be just under the skin, no rash, no itch. I often feel my clothes or the seat belt rub and it happens, not every day though? My doctor, just starting to believe I'm Celiac explained it as very small lymph nodes causing this, because I have other enlarged lymph nodes. Any truth to this, anyone else have "Weird Pains" across the skin of the stomach? and thanks cdfamily I will look into this.

Lately, I have been experiencing this mostly on my stomach which is different especially as I haven't been "sick." No rash, no bumps, no redness at all even though each time I think "there's got to be something there!"

  • 3 years later...
katalholt Newbie

I don't now if any of you are still following this thread, as it's quite old... But I have had similar symptoms for the last five years or so. I get these "attacks" where my skin feels like it's badly bruised, very sensitive and painful to the touch, but there's no bruise or rash. I usually get it on my back, the back of my neck, my stomach, and sometimes my chest, face, arms and scalp. It's really painful, and lasts for hours, making lying down and sleeping really unbearable.

I realized after having the first attacks that it was somehow related to what I was eating, because I would usually get them after eating Chinese food or pizza, so at first I thought it was MSG. But then I started having them when I hadn't eaten MSG (to my knowledge). Just recently, I was eating more or less a paleo style of eating for about a month, and I was feeling great. I allowed myself a cheat meal that included wheat, and boom. I had an attack. I experimented with it again, ate clean for a few weeks, no attacks. And had another cheat day where I had bread and beer. I had a really bad attack that lasted a day and a half.

So, have any of you come up with more answers? Is this one way that a gluten intolerance can manifest? I've never had GI problems with gluten, and it's never caused a rash, which seems to be a more common symptom. I have been on a B12 supplement even when I had the last couple attacks... So I don't know about the neuropathy theory. Any insights?

edgymama Apprentice

I get something similar but mine is almost always in my thigh area, I get a weird pain/prickle type feeling that is similar to a limb falling asleep but it hurts more and it is just an area of skin that does it. Very strange sensation. I have not been able to connect it to anything or any reason for it happening so my guess would be something to do with vitamin deficiency as well! 

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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