Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten'd


Strawberry-Jam

Recommended Posts

Strawberry-Jam Enthusiast

I made myself some gluten-free cookies yesterday, my first gluten-free baking experience! And they turned out lovely--rich and chewy... but most likely CC'd. :angry:

I put in a gluten-free flour mix (rice flour and guar gum basically), brown sugar, almond milk, sliced almonds, almond extract, vanilla, baking soda, salt, almond meal, ground flax, and vegetable oil.

Immediately while eating them I started to have stomach pain, gas, and bloating. afterward, reflux, headache, and now a mild depression.

ARGH. I used tin-foil on the baking sheet and dedicated gluten-free utensils. I also wiped down the whole kitchen before baking and washed every measuring cup and bowl before using it.

But now that I am remembering baking a long time ago, it is possible the almonds were CC'd with wheat flour or the flax and almond meal were CC'd with non-gluten-free oat flour. I don't think the sugar was CC'd but that is a possibility as well. I don't think I'm reacting to the guar gum because I have xanthan gum all the time and don't feel ill effects from it. idkidk

I'm 4 weeks gluten free and my symptoms are all back. Time to root out all sources of hidden gluten I guess. Just emailed a company about my nail polish, and ordered new toothpaste and threw away old toothbrush.

Question: about my mortar and pestle. I used to use this marble mortar and pestle to grind roasted barley. I've washed it really well... if I soak it in rum--alcohol, since gluten in soluble in alcohol and rum is what I have on hand--and rinse it really good and wash it again, is it safe to use for spices?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I don't know about your mortar and pestle question but someone will answer you on that.

I think all those packages that were around in your gluten days need to go out if they could be cross contaminated.

However, what I found interesting is your use of vegetable oil..which is almost always soybean oil.

It can cause all the symptoms you described if you are sensitive to soy. Soy sensitivity is very common for Celiac/Gluten Intolerant people.

You could be reacting to soy.

Strawberry-Jam Enthusiast

is there a way to test the soy without a total elimination diet? Or, how long do I need to give it up before testing it again? I've been having soy this whole time but I WAS getting better...

eatmeat4good Enthusiast

Other food sensitivities can develop anywhere along the line of recovery and after.

I didn't think I had a problem with dairy or soy and did not eliminate them even though it was recommended.

I just wanted to believe gluten was my only problem.

It wasn't until I felt symptoms again that I had to consider other food intolerances. Then I found out many people start to have reactions to dairy, soy, corn, fructose, nightshades, etc. You just have to find out what you are reacting to.

I think Enterolab can test for soy if you want to have an actual test. Or ask your Dr. or an allergist about testing. I just did the elimination.

Food elimination is the other option. Eliminate it for a while and then try to have some and you will have a reaction if you are still intolerant.

Often when you are still healing, other foods can become a problem, but some people find they can go back to eating them once they heal.

I can't advise you about how long to avoid soy before you test it. When I started reading about how bad soy is for the thyroid, I decided never to eat it again. The only exception being soy lecithin in chocolate but that is a rare treat. Some people say they don't react to soy lecithin. There are some threads on the topic of soy here that may be helpful to you.

cassP Contributor

When I started reading about how bad soy is for the thyroid, I decided never to eat it again. The only exception being soy lecithin in chocolate but that is a rare treat. Some people say they don't react to soy lecithin. There are some threads on the topic of soy here that may be helpful to you.

yes :( i read that Soy especially aggravates Grave's antibodies. so i realized that i need to avoid it- but it's almost impossible :/ seriously- soy & corn are in EVERYTHING :(

ok, for the most part i can totally avoid soy- but it still sneaks in - and my gluten free chipotle :( they use soybean oil

oh, and i wanted to tell u- i recently bought "Enjoy Life" choco chips at whole foods- and they are Dairy & SOY FREE :))) and they taste even better!

Juliebove Rising Star

I don't know about the mortar and pestle. Mine is made of marble and that's porous. So I would think that could be contaminated despite washing. You could try covering them with a thick foil. Not sure if that would work or not.

As for other allergens such as soy, there are two kinds of tests that could be done. An allergist can test for IgE allergies. This is done via a prick of the skin and then application of the allergen to see if you react to it. Or by a blood test.

A Naturopath can test for IgG allergies. This is what my daughter and I have. It's done by a blood test. You will fill out some papers prior about your diet so they know what all to test for. Note that not all Naturpaths will do this kind of test.

As for the soy and thyroid connection, I do feel there is one. I gave up all soy and am no longer on thyroid meds. But it is true that it is very prevalent in the form of lecithin and oil. I do avoid soybean oil when I can. I know most restaurants use it. But if I were to buy something like chips, I would look for ones that contained a different oil. I'm also okay with the lecithin. I just will no longer eat things like tofu, soybeans, soy protein, etc.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,913
    • Most Online (within 30 mins)
      7,748

    patanddiane
    Newest Member
    patanddiane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.