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I"m Beginning To Think The "brick In My Tummy" Is ...


MsCurious

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MsCurious Enthusiast

After I eat something, I always feel like I have a brick in my stomach... not rock, but a brick with sharp/rough edges. I don't know if that's something others experience...and I wonder if maybe there's something entirely different wrong with me, and not celiac disease. Although, then I think of all the other things and the doubt subsides a little.

But do any of you (or did you) have days when you felt so sick, there was no doubt in your mind ... that you must be celiac disease positive? Or days days when you felt almost half way normal, and started thinking maybe it was all in your head? I do... and then I will have another day, where I think ... OMG... if I could make this go away by never touching gluten again, I'd be so happy.

I'm having one of those days today... as I sit here wondering how a big rock hard red brick got into my tummy. Oh, speaking of weird things like that... I saw a video on Utube last night (when I was looking up endoscopy so I know what I'm in for) and they showed someone having one...and they found A TOOTHBRUSH in the stomach... THE WHOLE DARN THING!!!!!!! WHAT? WHo eats toothbrushes? Wouldn't you notice? LOL OMG! :blink:

Anyway, sorry for rambling... just having one of "those days". :rolleyes:


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goodnews Apprentice

I feel like the brick in my tummy is constant all the time, feel sick to my stomach constant all the time. But sometimes it is worse than others, and sometimes it feels like there are 2 bricks in there. And I do think it is worse after I eat. I am up for my HIDA scan in the morning, and then food allergy tests in the afternoon and then Thursday I get to get my gene results back. I do have moments when I think it must be celiac, or some gluten intolerance....but since I haven't tried gluten free yet I also wonder. I can't wait to try it...but need to wait just to see if I have to get another endoscopy. Ugh. I hope answers come soon for me, and you too. And I know everyone's experience is different, but for my endoscopy I remember nothing. Just them telling me I may feel a little sleepy soon and I was out. So it wasn't all that bad, went home and slept the rest of the day. Good luck!

MsCurious Enthusiast

I feel like the brick in my tummy is constant all the time, feel sick to my stomach constant all the time. But sometimes it is worse than others, and sometimes it feels like there are 2 bricks in there. And I do think it is worse after I eat. I am up for my HIDA scan in the morning, and then food allergy tests in the afternoon and then Thursday I get to get my gene results back. I do have moments when I think it must be celiac, or some gluten intolerance....but since I haven't tried gluten free yet I also wonder. I can't wait to try it...but need to wait just to see if I have to get another endoscopy. Ugh. I hope answers come soon for me, and you too. And I know everyone's experience is different, but for my endoscopy I remember nothing. Just them telling me I may feel a little sleepy soon and I was out. So it wasn't all that bad, went home and slept the rest of the day. Good luck!

That IS good news, goodnews! :lol: Great to hear you're getting so much done...and you'll have answers in no time. My Endo isn't until 2 more weeks, but I'm just trying to prepare myself so nothing is unknown. I'd rather know what they're going to do before I get there. I've done 3-4 days gluten free... just a couple of 'mini" tests here and there and I noticed a pretty significant difference, so I just can't wait to get the endo behind me, so I can go gluten free. I dream of the day when I feel great!

I hope you have good results with all your tests tomorrow and the next day. Thanks for sharing.. it seems to make it more tolerable and less scary when there are others going through it too, doesn't it? And so many words of wisdom... from people that have been where we are... that really helps me a lot. Let us know how your tests turn out. How come you might have to have a second endo? Good luck and hope the next few days are good ones for you. B)

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      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
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      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
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