Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

One Week gluten-free!

JSegura226

Recommended Posts

JSegura226 Apprentice
JSegura226
Posted

Before you start reading this post, it is a little graphic as far as talking about bowel movements and just wanted to give yall fair warning first..

Well I am officially on my 6th day of ridding my home and diet of Gluten and eating whole foods..I have always had gluten in my daily regiment and the change has been very hard on me.. My diet for 6 days has basically consisted of Chicken breast, white non fatty fish, steamed puree'd green beans, yams, aspargus, and 60+ ounces of water a day. I have also been taking a digestive enzyme and multivitamin as well.. I was in pretty dire shape starting this diet and EXTREMELY weak and skinny (reminded me of skeletor from He-man :P). I thought I was close to death there for a while.. I am self diagnosed and was really scared to start the diet since I have been rapidly losing weight and energy fast.. This last 3 weeks I have dropped from a skinny 5ft 7 inches 118 lbs( which is the weight I have floated around all of my adult life) to a scary 99 lbs before deciding to make my diet switch as a last resort. I have climbed back to 100 lbs but OMG this week has been insane... The non stop energy surges and drops drive me crazy. One moment I feel like I am getting better and am up off the bed stretching and trying to exercise a little then the next minute I feel like dead weight, can barely lift my arms and feel like death (is this normal?). Mornings are the worst. I wake up and feel like I just ran 5 miles and took a sleeping pill.. My digestive system has also been haywire since starting the diet. For a week before going gluten-free I was having really bad Diarrhea that looked like Vomit..Basically the food was shooting right through me and my digestive tract was doing nothing. For the first 2 days being gluten-free I started taking a digestive enzyme and was excited because I was starting to have semi-normal poop, then all of a sudden I was constipated!! I don't think I have been constipated since my scoliosis surgery 10 years ago!! My number 2 bathroom sessions as long as I remember have always been abnormally fast and soft, and this change was very extreme for me...But I definitely feel for people suffering from constipation now.. that is the absolute worst feeling... Anyways, I starting taking a magnesium supplement as soon as the constipation started and today I am back to Diarrhea with fatty deposits. I see very little, if any, undigested food so I think this a good sign... I am also suffering from muscle aches in my arms these last 2 days. I feel like I have been doing reps with a curlbar :huh:... Well, tomorrow is day 8 and I just came on the site for some moral support and comments since I have been feeling pretty down.. any comments or suggestions would be greatly appreciated!

Also did anybody suffer from random 15 bouts of fever while starting the change?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ladymiss Rookie
ladymiss
Posted

hang in there!

though i didn't suffer from fever, after a 10 hour night of sleep i would wake up feeling exhausted and like i had just been hit by a truck- this was the case for the first two weeks of gluten free. i had some freaky, middle of the night heart palpations. the severe fatigue started to gradually go away at week two and about 6 weeks into it i could cope with daily life like a mostly normal person. ("mostly" because i was still exhausted in the evenings). i am now about 90% back to normal in month 3. this little bit to go seems to do with gaining fitness/muscle/cardio strength back- not there yet.

it seems like resting and just taking care of myself (no cheating and over doing it) were key. btw, i had a few days of 'D' followed by a few days of 'C'- on and off for those first couple weeks as the body adjusted.

JSegura226 Apprentice
JSegura226
Posted
  • Author

Thanks ladymiss.. This whole process has definitely been a major struggle for me.. your words of encouragement help me out more than you know..

Just wanted to add one more thing to my original post.. This morning my D started out heavy with very very yellow mucus/bile. Since then I have had to go to the bathroom like 4 times today, but nothing is coming out but bile by itself in small amounts.. also the color has gone from very yellow to more clear this afternoon.. but this bile has itty bitty specs of red blood in it which is making me freak out! :ph34r: Should I be this concerned? I have never had blood in my stool before...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    2. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      Food and environmental allergies involve IgE antibodies. IgE antibodies provoke histamine release from mast cells. Celiac disease is not always visible to the naked eye during endoscopy. Much of the damage is microscopic and patchy or out of reach of the scope. Did they take any biopsies of your small intestine for a pathologist to examine? Were...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting! The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac...
    4. trents
      - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes.
    5. knitty kitty
      - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      6

      Gluten related ??

      @Colleen H, I have had similar reactions and symptoms like yours. I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. Her book, The Paleo Approach, is very helpful in understanding what's going on in the body. Not only do you have antibodies attacking the body...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      Gluten related ??

      By knitty kitty · Posted

      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.