Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low-carb Awakening


sunface21

Recommended Posts

sunface21 Newbie

Hi everyone-

Since I was 10 or so (I am 26 now), I can remember having these canker sores in my mouth- sometimes very severe, like 9 or 10 huge sores at a time. Sometimes I couldn't even eat because they were so painful. I went to the doctor many times to get help, but it was usually attributed to stress, etc. I am somewhat of an anxious person, so this did not seem to be too far off the mark. Over the past 16 years, I became used to them and accepted them as a part of my life. I went to the dentist recently and she mentioned something about Celiac's Disease (first time I had ever heard of it) and I have been doing some research. I do have fatigue during the day, but nothing I wouldn't consider a normal rise/fall in blood sugar due to highly processed carbs....I don't seem to have any other symptoms related to Celiac's. Just fatigue and mouth sores.

Recently, I went on South Beach and was on the phase where you cut out carbs completely (and so I was ingesting no breads or pastas during this time) and the sores went away. I lost the weight I wanted and rewarded myself with a weekend where I ate all the carbs I wanted, like pancakes and cookies- and the sores came back. I went back to carb-free, and they went away again.

I guess my questions are:

1. Does this sound like Celiac's, GI, or GS?

2. If it is not Celiac's, and this is as bad as my symptoms will get, what happens if I just ignore it? I don't seem to have any intestinal type symptoms related to eating gluten...just the mouth sores.

3. What do I need to do to get diagnosed, if I do have celiac disease, GI or GS?

I have been reading some of the other posts, and I realized that I do not have some of the debilitating symptoms that others are exhibiting- so would it be detrimental to just stick to my low-carb lifestyle and eat gluten every now and then?

Thanks for any advice you can give! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

It sounds like it could be Celiac or Gluten Intolerance... to be tested for celiac you would have to be consuming gluten (a lot of it for a while before testing) ... there is a whole panel of specific blood tests you would want to have done... That info is floating all over this site, and maybe someone with more technical no how can post them for you.

A lot of people are self diagnosing gluten intolerance by the success that they achieved on a low carb diet. My theory is that the reason these diets work is because of the elimination of gluten containing foods from the diet and then, just like any other fad diet, when you reintroduce gluten containing foods, the diet stops working... I think this is because way more people are gluten intolerant than is currently thought.

ianm Apprentice

Nini I agree with your low carb theory completely. It was when I tried the Atkins diet that my poor health made a drastic turn for the better. There is a chapter in the Atkins book about food intolerances and that led me to believe I have Celiac or am gluten intolerant. I won't get tested because I won't eat gluten and go back to the mess I used to be. I also used to have a mouth full of canker sores but they all went away when I went gluten-free.

Carriefaith Enthusiast
1. Does this sound like Celiac's, GI, or GS?

2. If it is not Celiac's, and this is as bad as my symptoms will get, what happens if I just ignore it? I don't seem to have any intestinal type symptoms related to eating gluten...just the mouth sores.

3. What do I need to do to get diagnosed, if I do have celiac disease, GI or GS?

Some people can have celiac disease and have no symptoms at all, but they still have intestinal damage. I think that you should be tested for celiac especially since you noticed improvements with the sores on the low carb diet. To get diagnosed I would go to your doctor and ask for the tissue transglutamase blood test or the celiac blood panel. I'd tell the doctor that you noticed improvements with your sores on the diet and would like to see if celiac disease is the cause.

skbird Contributor

Count me in the boat of those who self-diagnosed after going low carb. The low carb bread is full of gluten - when I tried that stuff out, not only did it taste terrible, but it caused me lots of problems.

I get canker sores, too. In fact, last Friday I was at the rheumatologist, and we were talking about the sores I get. He told me they were most likely due to my gluten-intolerance, as opposed to anything regarding rheumatology (lupus and some other connective tissue diseases also have mouth sores as a symptom). I was surprised my rheumatologist seemed to know more about Celiac and gluten than any other doctor I've been to. I lucked out!

Stephanie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Theresa2407 replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

    3. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    4. - Scott Adams replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

    5. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,261
    • Most Online (within 30 mins)
      7,748

    bookcat501
    Newest Member
    bookcat501
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.