Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Billirubin Elevated Pre Diiagnosis?


JSegura226

Recommended Posts

JSegura226 Apprentice

I was going over my CBC that I had 3 weeks ago when I ended up in the Emergency room.... Now I don't know if the doctor did not notice it or he just decided not to bring it to my attention but I just realized that my Billirubin level was slightly elevated to 2.0 mg/dl... Now at the time of the blood work I was rapidly losing weight, dehydrated and my colon was inflamed so I'm not sure if that had anything to do with it but, did anybody have elevated Billirubin levels Pre-diagnoses? I have an appointment in a week to get complete blood work and some Vitamin panels done. Hopefully my Billi levels have dropped since going gluten-free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

I was going over my CBC that I had 3 weeks ago when I ended up in the Emergency room.... Now I don't know if the doctor did not notice it or he just decided not to bring it to my attention but I just realized that my Billirubin level was slightly elevated to 2.0 mg/dl... Now at the time of the blood work I was rapidly losing weight, dehydrated and my colon was inflamed so I'm not sure if that had anything to do with it but, did anybody have elevated Billirubin levels Pre-diagnoses? I have an appointment in a week to get complete blood work and some Vitamin panels done. Hopefully my Billi levels have dropped since going gluten-free.

I am not diagnosed , My bilirubin count has been in that range for atleast the last 5 years( 5 years ago was when I started ASKING for my blood test results ). My doc ( the one I am about to fire) doesnt seem to be concerned about it.

I am now seeing an endocrinologist and will see what she thinks about it .

I am very interested in others input on this topic

JSegura226 Apprentice

I am not diagnosed , My bilirubin count has been in that range for atleast the last 5 years( 5 years ago was when I started ASKING for my blood test results ). My doc ( the one I am about to fire) doesnt seem to be concerned about it.

I am now seeing an endocrinologist and will see what she thinks about it .

I am very interested in others input on this topic

After seeing your post I decided to look through my old medical records to see if my Billi levels were elevated on previous CBC tests. I found one from December of '09 and sure enough!!.. 2.1..It is funny because I now specifically remember the doctor calling me to tell me my blood count came back fine and that my billirubin was slightly elevated and it was nothing to worry about and we would talk about it on my next visit.. Guess he forgot..

Also the ER doctor 3 weeks ago told me it was nothing to worry about also and that some people just have a higher billirubin level that others.. I call Bull****!

ravenwoodglass Mentor

Celiac can have impact on the liver. Can't say for sure but you might see those numbers come down after you have been gluten free for a while.

jerseyangel Proficient

My billirubin was slightly elevated before diagnosis. It normalized within 6 months gluten-free.

cahill Collaborator

Just to update,,,

I saw a new GI doctor yesterday.The other than my bilirubins my liver function tests were normal. She diagnosed me with gilbert-meulengracht syndrome,

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748

    ChrisMary
    Newest Member
    ChrisMary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.