Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm So Hungry!


Guest LuvtoLaff06

Recommended Posts

Guest LuvtoLaff06

I am constantly hungry! Like I can't get filled up no matter what I eat. Even after a full meal of meat, potatoes, vegetable and dessert--2 hours later I'm starving. Is there anything I can try? I drink Carnation instant breakfast between meals and I snack constantly besides 3 meals a day. I only weigh 87 pounds and trying to get back up to 98 and I'm a "starvin' Marvin"!! Help! :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lucycampbell55 Rookie

:rolleyes: I know exactly how you feel. If you find out how to get rid of the hunger pangs let me know ;)

I'm just the opposite though. I gained a massive amount and have lost 15 lbs over the last 2 months since being diagnosed and going gluten-free. But I wouldn't trade it for the world. I haven't felt this good in 10 years.

Lucy :D

seeking-wholeness Explorer

LuvtoLaff,

I, too, know exactly what you mean! It has gotten somewhat better for me, though--now I just eat enough for two grown men instead of three! Still, my friends all gape uncomprehendingly as I stuff down more food than I should be able to hold!

Have you tried taking digestive enzymes? If your intestines are in bad shape, you won't obtain much nourishment from your food no matter how much you eat! You might want to check out Open Original Shared Link to read up on enzyme supplements. It is an informational website, not a commercial one, and it even has some specific information pertaining to celiac disease! I have started taking enzymes (when I remember--I hate brain fog!), and I feel less bloated after meals. I MIGHT even be able to go a bit longer between meals/snacks, though it's hard to tell right now because I have gotten a lot of contamination recently and that can kill my appetite.

Another thing to try, if you aren't already, is eating protein at every meal and snack to keep your blood sugar more stable. I hope you discover a way to get your hunger satisfied in short order!

JsBaby-G Newbie

That's so funny. I have been gluten free for like 5 years, seriously for like 3 maybe and I recently started incredible appetites. I am ALWAYS hungry! My boyfriend laughs at me and I can't figure out why. I can eat a full meal and an hour later I'll be hungry. Maybe we all have a tape worm!!!

eRinLuCyO1 Newbie

I'm so glad I saw all this I thought I was going crazy and was the only one... I feel the SAMEE WAYY. It's so annoying I feel like the more I eat the hungrier I get, and no matter what I do I'm still starving. I was just recently diagnosed so I've only been gluten-free for a couple of weeks but the insatiable hunger is nothing new... if i find anyway to satisty it i'll let ya's know

- Erin

Guest shar4

:blink: I too thought I was going nuts. I had managed to lose 42 lb, and never looked so good in my life. Now that I have been diagnosed, I am eating like a horse. I'm stuffed, but I'll still be roaming the house looking for food. I've gained back almost half the weight I worked so hard to lose. I've been going crazy trying to get it under control but have been amazingly unsuccessful.

Again.... Good to know that I am not alone.

Sharon

kvogt Rookie

I think there are two components here. One I call "starving stomach". This is a physical manifiestation where your gut feels like you haven't eaten all day, even after eating. I had this for a few months and it went away. Just keep eating normal portions. The other component is mental. After eating everything on the table my entire life to feel nourished, I now must eat regular protions like every other person without this disease. I have been gluten-free for a year now and have put on about 20 more pounds and 3 inches more than I would like. I know the secret is eating within my needs, but I have found it very difficult to reduce my consumption to where it needs to be all at once. Over time I'm learning to eat less at meals and not snack. I expect it will take a few years to achive normalcy in this area too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wclemens Newbie

Luvtolaff06, it just dawned on me after reading your post, that maybe your

system has been so depleted with Celiac that now it is just begging for more food in order to replace all those vitamins, minerals, and nutrients that you were unable to absorb when you were in the "crisis" stage.

As a person who always gained weight really easily (five feet tall and small boned), I was always dieting, until I found the foods that worked for me, and those which were poison for my system.

Are you tolerating well the foods you're eating? I hope so.

I remember recess from school, and coffee break time from work--oh boy, we get to go have a snack. It sounds as though you're being presented the opportunity for a lengthy recess and/or coffee break each and every day (or hour, or half-hour, as the case may be). This may be the time to try all those exotic foods you're heard about but maybe never tried--papaya, kiwi, mangos, bread and pastries made with almond meal, potato flour, rice flour, garbanzo bean flour, gluten free custard mix, almonds, walnuts, pecans, and every other kind of nut, almond butter, peanut butter, marshmallows, rice krispies treats (oh wait, these are not all really exotic foods, are they? But they are all gluten free). I'm making myself hungry now, how about you?

For dinner I'm having what you might call "corn dogs" or "hot dogs on a stick," from a recipe I created using almond meal, gluten free cookie mix, and soy milk;

corn bread from a recipe I created, with Imperial Margarine and brown sugar/peanut butter and jelly; pineapple cocoanut juice; smokehouse almonds; a banana; an orange, and some very sugary cocoanut/date/walnut candy from a recipe that my dear mom passed on to us. I may find a few other things too.

I weigh 106 pounds today, and am learning that the more I eat during that hour I'm allowed to eat or drink anything I can tolerate (The Carbohydrate Addict's Diet, by Drs. Richard and Rachel Heller) the more I burn up. Wait! Maybe you're evidence of what I have been hearing lately, that the more we eat, the more calories we burn. Experts say that dieting lowers our metabolism to where eating even a little bit is hard to burn up. Say, maybe we are on to something here. Let me know what you think! Best wishes. Welda

Lily Rookie

Hi all,

I appreciate the information that is posted here SOOOOOO much. So many things are making sense now. I am overweight too and getting starting the gluten-free diet in which I am hoping to lose weight NOT gain it, eek. I somehow always feel hungry too no matter if I've eaten a short time ago. Thank you all for the great info., it makes me feel less alone.

Lily :D

Suzn14806 Rookie

Hi everyone

I was diagnosed a week ago. I have been gluten-free for 5 days!! :D

I am also hungry all the time which really makes little sense at this point because even eating gluten-free means that I have terrible cramps and diarrhea. I am trying to be optimistic that that will improve with time.

I have been reading everything I can get my hands on about celiac and credit that with part of my hunger. I have been reading about foods every waking moment. I know that will eventually take less of my time but we do have to think more about it than other people so maybe being so food consious triggers the constant hunger.

When I see a commercial and immediately start processing ingredients - if the food is rejected the next step is to start thinking of alternatives - either how could I modify that and make it acceptable or what could I have instead? That process, for me at least, is going on constantly. It is no wonder with our mind so wrapped around our diet that we are hungry all the time.

I definately agree with those who have mentioned that our bodies are still craving good nutrition too.

Have you found that small meals more frequently helps or do most of you eat three meals a day? I am thinking that smaller frequent meals might help keep the cravings under control and also help not to feel deprived or tempted to eat something that contains gluten. What do you think?

Guest shar4

I have been experiencing the huge hunger since I was diagnosed a few months ago. I too, came up with the thought that now that things are healing up, my body is "keeping" every morsel of nutrition that it gets, just in case it isn't going to last. It isn't helping me eat any less, but it sort of makes me feel better.

Maybe that doesn't make any sense, but this is a kind of learn as you go thing, since the Doctors don't seem to know a great deal.

Thanks for all the info.

Sharon B)

SuJ Newbie

Hello Folks!!

To Suzn - Definately eating 4-5 or even 6 small meal/day could be the answer for most of us. I am a personal trainer and what I try to teach my clients is that they should schedule their meals so that they keep their blood sugar levels - level. This means they should have a small amount of protein(about 20% of the meal) and some complex or low glycemic index carbohydrate(about 80% of the meal)at each meal and they should spread these small meals out over 3 hour stretches. When you maintain your blood sugar in this way you should not get hungry. Of course, this must be done differently if you have chosen the Atkins diet but it is still very doable.

To Welda - weight gain occurs when your caloric expenditure exceeds your caloric intake <_< . However, you are right - if you keep your caloric intake low, your body sets itself up into "survival mode" and your caloric requirements, over time, actually decrease. This doesn't mean you can eat everything ALL the time :angry: !!! It just means that you need to have some days where you take in more calories than other days(just to keep your body guessing!). When you have a higher calorie day you should also have a higher exercise day ;) .

To everybody - I really think that there is something to our "hunger- nourishment requirement" especially when we are still healing. I remember when my kids were young. When they hadn't had much in the way of vegetables for a day or two in one afternoon they would deplete a hugh tray of mixed raw veges - and then they might not touch these for another couple of days - no matter how well I would dress them up!! So if you are really hungry - try to eat a lot of nutrient rich foods and just picture your happy cells healing and rebuilding!! :lol:

I love everything I have read from "seeking wholeness" You seem to be on the fast track to great health!! :D

Feel Well and God Bless. Su

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

    3. - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,307
    • Most Online (within 30 mins)
      7,748

    Hcon74
    Newest Member
    Hcon74
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.