Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired And Irritable


Marie1976

Recommended Posts

Marie1976 Enthusiast

Had my endo last week and have been gluten free since then. I know it takes a while to get back to normal but how long??

I'm so tired, even when I get enough sleep. And I find myself snapping at everyone and then feeling bad about it.

It's difficult just to go about my normal day. I want to just lie down and do nothing. I hate this feeling. Anyone have any ideas? Maybe I should take up coffee-drinking or something ...?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

You are likely going through withdrawl. It will pass. Are you taking any vitamins? It is usually a good idea. Do make sure any meds or supplements you are taking are gluten free. Read the whole label on supplements as they can have wheat and barley grass and still have a gluten free label. If you can sleep then do so. If you have to be up and doing coffee might help a bit but you might want to limit it to the morning as you don't want to have it keep you up at night. I found Royal Jelly, from bees, to be a big help with energy. If you are not allergic to bees you may want to give it a try.

Hang in there and hopefully the tiredness and irritable feelings will be over soon.

reijnen Newbie

I have felt the same way, I have been gluten free for 5 weeks and I still feel fatigued, muscle weakness, etc. it has improved a bit from before going gluten free but it has been slow. Two steps forward, one step back, some days are better than others. I have looked into dropping other foods besides gluten just to be on the safe side but I'm not sure that is the problem either. All I can say is I am in the same boat.

IrishHeart Veteran

It is difficult at first. Gluten withdrawal, accepting what's happened, feeling out of sorts, feeling drained from being ill, depression from malnutrition...lots of reasons why you feel this way. If you need rest, it is because your body is telling you...it needs rest!!

Do not feel bad about resting. You've been ill.

Our bodies are really depleted from malnourishment. That is what this disease is all about!! It affects everything in the body--and the fatigue may also be from anemia. You will need to have your vitamin levels (B-12, folate, D3) tested to check for deficiencies caused by the malabsorption.

I was so sick and exhausted, yet I had insomnia and was "racy" and could NOT sleep very much. Like maybe 2-4 hours a night! For over 3 years!!

Once I went gluten-free, my nervous system started to relax....then, I was dragging myself around for a while...now, I am doing better. Everyone is different and heals at different rates.

This fatigue and irritability will pass. Your hormones will level off and you'll have more energy. Be good to yourself. Let the people you live with know you are having a rough time and you may need extra sleep and/or support.

Take warm baths before bed. Don't take up coffee if you don't already drink it--that will only stimulate you and then, you'll crash...it's just a gut irritant anyway. Drink water. Lots of water. You are--essentially-- detoxing your body from gluten.

You're gonna be okay, Marie. ((HUGS)) It takes time...and patience.

Vent away on here if you are feeling grouchy or frustrated or weepy...(we soooo "get it")and hang in there. It really does get easier! And your energy--and good mood-- will return.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,086
    • Most Online (within 30 mins)
      7,748

    M A Humphries
    Newest Member
    M A Humphries
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.