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Does Dh = Celiac?

anna34

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anna34 Enthusiast
anna34
Posted

Does a DH diagnosis mean that you have Celiac?

A family member had a blood panel done after I was diagnosed and the blood panel results say that "DH cannot be ruled out". They are going to have an endoscopy.

Can DH be detected through a blood panel?

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ravenwoodglass Mentor
ravenwoodglass
Posted

As far as I know DH is tested for with a biopsy of the skin next to active lesions. They need to be looking for it at the lab. Celiac is tested for with blood tests and yes a diagnosis of DH is a diagnosis of celiac even if the blood tests are negative. False negative testing for celiac is not uncommon and that also applies to DH. If there is thinking that gluten is an issue a strict trial of the diet should be done when testing is finished no matter what the test results.

anna34 Enthusiast
anna34
Posted
  • Author

As far as I know DH is tested for with a biopsy of the skin next to active lesions. They need to be looking for it at the lab. Celiac is tested for with blood tests and yes a diagnosis of DH is a diagnosis of celiac even if the blood tests are negative. False negative testing for celiac is not uncommon and that also applies to DH. If there is thinking that gluten is an issue a strict trial of the diet should be done when testing is finished no matter what the test results.

Yes, I thought that it was strange that the blood panel results mentioned DH. Perhaps DH means something else on the blood panel? So strange. The endoscope will show more I suppose.

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    • trents
      EMA Result

      By trents · Posted

      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
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      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
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      By Scott Adams · Posted

      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
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      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
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      EMA Result

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