Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Husband Was Just Diagnosed


SIP

Recommended Posts

SIP Newbie

My husband was just diagnosed with Celiacs today via blood tests and endoscopic biopsy for confirmation. Although he suffers many of the uncomfortable symptoms of the disease, he does not want to give up certain foods and does not want to feel out of place at restaurants or when dining out. I am more than happy to go gluten-free with him and I would love to get rid of all of the wheat products in the house, but he is non-responsive to any of these ideas. Does anyone have any idea's on how I can ease him into eating gluten free? Is there any way to make this diagnosis less depressing? My husband has not lost weight, but has been underweight for most of his life without knowing why until now, if he goes gluten free will he put any weight on? What are some of the delicious gluten free products people have found? Thanks in advance for everyones help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

My dietician has her clients start eating gluten free meals mixed in with their normal meals - you don't need to TELL him they're gluten free, heh - and then phase out the gluten dishes as you find more and more gluten free foods that you like.

More fruit and veggie snacks, meals that use rice and potatoes rather than bread and pasta, that sort of thing.

Most of the people I know who are underweight, gain a little weight going gluten-free. Most people I've met who are overweight, lose a little on gluten-free.

I'm afraid that his not wanting to give up foods and not wanting to feel out of place may be the one of the big issues, but...was his doctor very clear on exactly what may happen if he continues eating gluten?

The discomfort is not a big deal. What can happen because of the nutritional deficiencies is a HUGE problem. Cancer, other auto-immune diseases developing (diabetes, hypothyroidism, for ex), organ damage, bone and skin problems. The list just goes on and on.

My father was undiagnosed, and then his body kind of hit the wall, as it were, and everything just imploded. In the span of 5 years, he went from a seemingly healthy, athletic man to one who had both hips replaced, most of the discs in his spine herniated, and using a cane before the age of 50. The bottom of his lungs hardened and he has to be on asthma medication, and his heart developed problems so that make him more susceptible to clotting so that he now has to stay on coumadin for the rest of his life.

Really, the problems of NOT going gluten free will lead to a much shorter lifespan, and usually a more painful set of later years as well. Hopefully knowing that may help him decide that inconvenience is worth not feeling terrible.

Shauna

confusedwife Newbie

i too went thru the same thing with my husband. i had to just make meals that were gluten free. Then let him eat it and then say...well that was a dish you enjoyed and it was gluten free. just to prove to him that he still enjoy things he loved to eat. just we need to find gluten free ingrediants to make them. the life safer for me was Open Original Shared Link seeing im a working mom. I did not have time to make two seperate things for every meal.

notme Experienced

when i was first diagnosed, i didn't tell *anyone* for like 3 months because i was in such denial. it's a tough diagnosis to hear! i didn't even tell my husband. in that timespan i lost so much weight i looked like a skeleton. by the time i admitted i needed to eat gluten-free i was so sick and fatigued i was sleeping all the time. i guess what i'm saying is: give him a little time for it to sink in. it's alot easier to bring a horse to water if it's his idea to drink. the next hurdle was to feed the family - really, the only solution for me was to cook for everybody gluten-free. at first i faked them out: made dinner until it was almost done, then scooped out portions to put 'aside' for me (it was the same exact food as they were eating!) after a few weeks i broke the news to them: they had been eating gluten-free the whole time. the only thing i couldn't fake at first was pasta and bread. have since found tinkyada pasta and udi's bread - yummmm! good luck to you. my husband is the stubbornest man i know, but most men are stubborn. about their health expecially. :(

smc Rookie

I was mad when I received my diagnosis too. The thought of changing my whole lifestyle was overwhelming and I tried to cram all my favorite foods in -in the 2 weeks before i decided to officially go gluten free. I grew up in an italian family and thought the days of great pasta dinners were over. A few weeks in to my new gluten-free diet, however, I started to feel better than I had felt in a few years-no pain or bloating- It was great to eat a meal and not feel horrible afterwards. When your husband starts to feel better he will know that his life style change is nesessary and hopefully accept it a little better. There are great gluten-free substitutions out there and it takes time to find what suits your tastes. I have had delicious pizza, pastas , pies, etc. It is great that you have no problem going gluten free with him -he obviously has alot of support. I dont like to draw attention to myself at a restaurant either but I have gotten used to it and know I have to speak up for my health. Start at places that offer gluten-free menus and substitute gluten-free ingredients in his favorite meals and see if he notices. I did gain 6-7 pounds after starting the diet but I was underweight most of my life. I was only 105 lbs and 5' 2". I think he might gain a few pounds as he heals. It is really crappy that we all have to deal with this but at least we can control our disease with our diet. Some people are'nt so lucky. good luck !

smc Rookie

My husband was just diagnosed with Celiacs today via blood tests and endoscopic biopsy for confirmation. Although he suffers many of the uncomfortable symptoms of the disease, he does not want to give up certain foods and does not want to feel out of place at restaurants or when dining out. I am more than happy to go gluten-free with him and I would love to get rid of all of the wheat products in the house, but he is non-responsive to any of these ideas. Does anyone have any idea's on how I can ease him into eating gluten free? Is there any way to make this diagnosis less depressing? My husband has not lost weight, but has been underweight for most of his life without knowing why until now, if he goes gluten free will he put any weight on? What are some of the delicious gluten free products people have found? Thanks in advance for everyones help.

Tinkyada makes a really good rice pasta and the corn pastas out there I think are even closer tasting to the real thing. There are some Glutino snacks that are really good- they make a chocolate wafer cookie that tastes like a kit kat candy bar. As someone mentioned Udi's makes the best bread -my kids can't tell the difference except the slices are smaller. They will be selling hamburger and hot dog rolls starting this month-that is something I have not found a good substitution for yet but if they are anything like their bread they sould be yummy! Can't wait.

sb2178 Enthusiast

Rudi's bread is even better than Udi's. Van's frozen waffles are also a good sub if he's used to that sort of breakfast. Hot cereal: gluten-free oats, cream of buckwheat, cream of rice... Cold cereal: chex, Nature's Path varieties

Ancient Harvest pasta has gotten general approval from everyone I've fed it to.

Corn and beans are also easy to sub in. I do a lot of lentil/bean dishes for complex carbs.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.