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- trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12Positive biopsy
Would it be rude to ask your age? -
- pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12Positive biopsy
Wow! Thank you @trents I really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. -
- trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Positive biopsy
Yep, you've got celiac disease. That is a high score. In the U.K. you could have been diagnosed on the TTG-IGA score alone and not needed an endoscopy/biopsy. But I realize your physicians were not looking for celiac disease in the first place. But it also makes me wonder how much of your bowel issues are tied to celiac disease whose onset may actually have... -
- pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Positive biopsy
Second update: the tTG just came through. Scale is 0-4.99flu. My result is 108.47. -
- pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Positive biopsy
This is a good point. The primary things I’ve been able to tolerate are crackers and pretzels and bread slices (also rice and potatoes but ntp). I’ve been loading up on gluten based snacks so the testing should be valid as far as I understand.
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By pothosqueen · Posted
I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies? -
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By pothosqueen · Posted
Wow! Thank you @trents I really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. -
Yep, you've got celiac disease. That is a high score. In the U.K. you could have been diagnosed on the TTG-IGA score alone and not needed an endoscopy/biopsy. But I realize your physicians were not looking for celiac disease in the first place. But it also makes me wonder how much of your bowel issues are tied to celiac disease whose onset may actually have been years ago. Taking years to get a celiac diagnosis after onset is typical because the symptoms mimic so many other bowel diseases and many of us have "silent" celiac for years, meaning we have no or few symptoms until damage the small bowel lining becomes quite advanced and other symptoms, e.g. iron deficiency anemia, start showing up.
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By pothosqueen · Posted
Second update: the tTG just came through. Scale is 0-4.99flu. My result is 108.47.
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