Celiac Disease And Marijuana. Also Ne1 W/ Bad Smell?

[tguy]

hello im 24 been dealing w/ major problems since 20. now that its been explained to me i've been dealing w/ it for my whole life. i always had bowel problems, mainly constipated when i was a little kid. and i always until a week ago ate bread i love it. neway i havent gotten tested but i've been on fruits and veggies and water diet also w// wholewheat bread n peanut butter until a week ago. cut the bread and pb out of the diet and i have started to feel a lil better. plan on testing but its expensive so i'll have to wait to b sure, but if gluten free is pain free it'll b worth it. i really have two main questions.....1. how does marijuana effect this disease? i ask because it has been the only thing in the past that has ever alleviated ne of my pain or symptoms. not to mention it helps w/ my stress disorders. however if it is secretly slowing my healing process down i want to try n stay off it... i have quit for a week to expirement how if feels, i have more pain. please share opinions......2. I have noticed ppl's reactions to me as if i smell really bad. i myself dont smell it and i shower 2-3 times, and brush teeth 2-3 times daily... like i said i've quit marijuana for the last week and the detoxing of that i believe has made it even worse.. i've asked family and friends, and they tell me that im imagining it, but i think they're just being polite.. has ne1 else had a smell problem w/ this? the 1 thing that i can think of is that i've kinda been on bed rest for over 3yrs i mean i could've walked a lil and stuff but the symptoms combined w/ another physical problem of mine wouldnt allow me to get ne decent excercise in. Im thinking since i've been able to do slow jogs and i ride the stationery bike a lil bit lately and cut the gluten and mj out of my body that its just gettin rid of all the nasty discusting toxins that i've taken in and clogged myself w/ the lats 3 to 4 yrs??? ne help and i mean ANY would b much appreciated. My social life has been slowly dwindling away ever since age 20, i cant hold a job, and life is just getting pathetic.

[Marilyn R]

Hi Tguy,

Smoking marijuana should not impede your recovery. It's from a different plant family (hemp vs. grains).

And there are still some grains that you can eat, like all the rices and buckwheat. Some of use can eat Gluten Free Oats and some can have quinoa.

If your family and friends are telling you that you don't smell, I'd trust them. And there's gluten in most of the soaps and shampoos, etc.

I hope things get better for you. It takes a while to feel better. You didn't ask for advise, but ... try to eat like your ancestors did by eating whole foods and nothing processed or dining out (at least at first).

Good luck,

m

[Lisa]

I would get a full body blood panel and it would indicate where you need to show your interest.

[tguy]

Hi Tguy,

Smoking marijuana should not impede your recovery. It's from a different plant family (hemp vs. grains).

And there are still some grains that you can eat, like all the rices and buckwheat. Some of use can eat Gluten Free Oats and some can have quinoa.

If your family and friends are telling you that you don't smell, I'd trust them. And there's gluten in most of the soaps and shampoos, etc.

I hope things get better for you. It takes a while to feel better. You didn't ask for advise, but ... try to eat like your ancestors did by eating whole foods and nothing processed or dining out (at least at first).

Good luck,

m

thank u for that marijuana answer i've been really stressed out since i've quit. And i would believe my fam and friends about the stinking, and i want to.... but there is no mistaking some ppls reactions they r pretty clear. the other day was the first time i did cardio on the bike at the gym in my complex.. when i was done as i expected i was drenched in sweat, i mean i know when u sweat a lot u stink at least a little but someone was walking by like 4 or 5 ft away from the gym door at the same time i walked out they noticably almost threw up kept their face covered and started walking very quickly. It was sooo embarrassing! i could hardly believe it, and the fact that fam and friends r all saying i dont really makes me wonder like how bad it really is and for reference no thats not the only incident there's been many of those situations. i have pelvis floor dysfunction as well it could maybe have somethin to do w/ it, bt i dont know. Im doing everything in my power to better myself, i have considered a shrink but the idea of giving someone money to listen to ur problems sounds pointless to me and i dont have ne extra doh to really throw around like that, i have gastro appt. tomoro he is very good maybe he'll have an answer.... ps i never disregard advice feel free.

[tguy]

I would get a full body blood panel and it would indicate where you need to show your interest.

i think thats what i will have to do, i just am kinda poor unfortunately, no insurance and it gets steep, dont get me wrong i'd giv up all my money for a legit way to fix this.. its just i've wasted so much money over the last three yrs w/ no benefit they always say im healthy which infuriates me, i mean each time i see my fam doc i've fluctuated like 10 to 20 lbs when i was healthy i wasbetween 225- 240 im 6'3''... last time i weighd i was 180! and i know for sure i've had to of lost another 15 at least, i had two ppl sitting in the same room as me last night that i hadnt seen for a few mos. and they literally did not recognize me for a good 30 min to a hr, they all think im on heroine or somethin it sucks! but sorry lol ur not a shrink i'll save for the test.

[collgwg]

i do find that pot does relieve alot of pain and helps settle down the bowels it has helped for me and i have a friend who has crones and has a licence to smoke it and it helps her grately hope this helps

[tguy]

i do find that pot does relieve alot of pain and helps settle down the bowels it has helped for me and i have a friend who has crones and has a licence to smoke it and it helps her grately hope this helps

yes .. i am going to ask about getting a med mj card tomorrow my state recently passed the law i just duno how long it'll be till its actually legit and i have somewhere to go get it

[ravenwoodglass]

yes .. i am going to ask about getting a med mj card tomorrow my state recently passed the law i just duno how long it'll be till its actually legit and i have somewhere to go get it

If you get a medical MJ card you would, as far as I know, be able to grow a couple of plants for your own use. While it can help with symptoms you may find after you have been gluten free for a while you don't have the symptoms you need it for.

You can't be tested for celiac if you are gluten free, but you don't need a doctors permission to be gluten free.

Check into clinics in your area and see if you qualify for a sliding fee scale. Check at your local hospital also. I lost insurance a while ago and skipped appoints with my psychiatrist but then found out they would do a sliding fee scale. It dropped my appointment costs down from about $145 to $4. I have PTSD so that was a great relief.

As far as the body odor goes you may also find that is relieved on the diet. Shower as often as you can and brush your teeth frequently. I don't know how common it is but one of my family members had awful problems with really foul breath when on a heavy gluten diet. I don't know if it was a body chemistry thing or what but know it was relieved.

[Racer-J]

Some people have an issue with body odor and it has absolutely nothing to do with hygiene. You're going to have to narrow down the actual source of the smell. I don't mean what's causing it, I mean where it is physically coming from. I don't know exactly what "awful" means in this case but, even a person's mouth, sweat, etc. can smell like actual feces. The following link is to a free ebook that may help you figure it out. It may also complicate the matter. Apparently several people have an issue with odor that others may or may not notice. It's one thing if it's really just you smelling it but, considering your story about the gym, it's fairly obvious you are not imagining it.

Open Original Shared Link

Web searches are going to leave you frustrated on the issue and will probably not provide much help if any at all. The reason being is there is a multitude of things that can cause a problem like this. However, going by the fact you were constipated as a child and have had bowel issues most of your life, I wouldn't be surprised if it is related to a fistula or something similar in your digestive tract. That's assuming the odor is actually coming from your rectal are though.

Sorry if any of that was TMI or too blunt but, I wanted to be as clear as possible. Hopefully your gastro appointment will help you out.

[tguy]

Some people have an issue with body odor and it has absolutely nothing to do with hygiene. You're going to have to narrow down the actual source of the smell. I don't mean what's causing it, I mean where it is physically coming from. I don't know exactly what "awful" means in this case but, even a person's mouth, sweat, etc. can smell like actual feces. The following link is to a free ebook that may help you figure it out. It may also complicate the matter. Apparently several people have an issue with odor that others may or may not notice. It's one thing if it's really just you smelling it but, considering your story about the gym, it's fairly obvious you are not imagining it.

Open Original Shared Link

Web searches are going to leave you frustrated on the issue and will probably not provide much help if any at all. The reason being is there is a multitude of things that can cause a problem like this. However, going by the fact you were constipated as a child and have had bowel issues most of your life, I wouldn't be surprised if it is related to a fistula or something similar in your digestive tract. That's assuming the odor is actually coming from your rectal are though.

Sorry if any of that was TMI or too blunt but, I wanted to be as clear as possible. Hopefully your gastro appointment will help you out.

no worries i need the info, the problem is i dont really smell it. i had a very good friend tell me today that im trippin, i told him about the gym story too... it may b what i thought and only happen when im sweating a lot, because the fact im eliminating the gluten and the pot from my body at the same time.. i made him put it on my late mother n he sware up n down he couldnt smell nething... as far as the other times i think i notice ppl smell me i do kinda have anxiety nowadays and tend to sweat when im in public, i dont know y i never used to feel nervous.....I have many problems aside from celiac, like ocd type reactions. i've been through a s$#&load tho from mother n bf deaths to this celiac s$#& to being arrested for FINg pot..and it all hit right around the same time. ive always been embarrassed to go see a shrink but the way im feeling these days maybe i should.. i think if i can just get rid of this intestinal/abdominal pain i could focus on other things and things can start coming together for me.

[mushroom]

It does sound to me like you are trying to deal with too many things at once and are overwhelmed by it all, and maybe the pot is just complicating the issue??? Is there any way you can wean yourself from the pot, and then focus on one issue at a time? Also, I think the idea of someone you can talk this whole thing through with would be good.

I have only ever smelled one person who consistently smelled "bad" - as in BO kind of bad - and he was an attorney who seemed to be totally oblivious to his condition. I have to admit that it was a bit claustrophobic to go into his office and I did everything I could to avoid it, but I think this is something different we are talking about. This man wore suits which he could not have dry-cleaned every day and his clothing all stunk and I read back then (have not since re-educated myself) that there are some people whose body odor is uncontrollable no matter how much deodorant or antiperspirant they use and they are oblivious themselves.

I would opt, personally, for eliminating the source of the pain (probably gluten) than continuing gluten and trying to mask the pain. While I do not object to the use of opiates, I do think that if you can eliminate the need for them you are better off And they would stop messing with your head and allow you to think more clearly about the other things

[Racer-J]

no worries i need the info, the problem is i dont really smell it.

as far as the other times i think i notice ppl smell me i do kinda have anxiety nowadays and tend to sweat when im in public, i dont know y i never used to feel nervous.....

It's odd that you don't smell it yourself as people tend to notice their own odor before anyone else. Stress can absolutely trigger the creation of odor and, it could be that only certain people are able to detect the scent that is given off. Again, this is an incredibly difficult issue to figure out.

I have only ever smelled one person who consistently smelled "bad" - as in BO kind of bad - and he was an attorney who seemed to be totally oblivious to his condition. I have to admit that it was a bit claustrophobic to go into his office and I did everything I could to avoid it, but I think this is something different we are talking about. This man wore suits which he could not have dry-cleaned every day and his clothing all stunk and I read back then (have not since re-educated myself) that there are some people whose body odor is uncontrollable no matter how much deodorant or antiperspirant they use and they are oblivious themselves.

That sounds like TMAU (Trimethylaminuria) which is a result of the body not being able to break down the trimethylamine in the foods those individuals eat. A diet low in choline can improve that. However, to my knowledge, anyone with TMAU is extremely aware of the odor as is everyone they come into contact with so I don't think that's what the lawyer had.

I would think that someone oblivious to the fact they have an odor is probably used to it and it is probably a result of their diet. I've read numerous times that when a person first smells something (fruit, soil, flowers, etc.), the odor is incredibly strong. The next time they smell it though, the scent is reduced by up to 35% or more. It's apparently a "defense mechanism" of sorts. The body can also send out odor as a "defense mechanism" similar to when wild animals mark their territory, are in heat, and so on. From what I understand, stress, fear, being territorial, and other such strong emotions can trigger a chemical reaction that will result in an odor being given off by the body which may or may not be detectable. It's just an incredibly murky subject.

[tguy]

It's odd that you don't smell it yourself as people tend to notice their own odor before anyone else. Stress can absolutely trigger the creation of odor and, it could be that only certain people are able to detect the scent that is given off. Again, this is an incredibly difficult issue to figure out.

That sounds like TMAU (Trimethylaminuria) which is a result of the body not being able to break down the trimethylamine in the foods those individuals eat. A diet low in choline can improve that. However, to my knowledge, anyone with TMAU is extremely aware of the odor as is everyone they come into contact with so I don't think that's what the lawyer had.

I would think that someone oblivious to the fact they have an odor is probably used to it and it is probably a result of their diet. I've read numerous times that when a person first smells something (fruit, soil, flowers, etc.), the odor is incredibly strong. The next time they smell it though, the scent is reduced by up to 35% or more. It's apparently a "defense mechanism" of sorts. The body can also send out odor as a "defense mechanism" similar to when wild animals mark their territory, are in heat, and so on. From what I understand, stress, fear, being territorial, and other such strong emotions can trigger a chemical reaction that will result in an odor being given off by the body which may or may not be detectable. It's just an incredibly murky subject.

yes it is a mirky subject, i was at the doc yesterday tho and he told me i didnt stink, the part talking about how only some ppl can detect it sounds pretty accurate as its usually never the whole group or room... its very strange hopefully it will stop as the gluten is eliminated? i dont knwo, if not then i guess im just gona have to deal w/ it lol i dont know how i'd do that but lif goes on right?

[Racer-J]

yes it is a mirky subject, i was at the doc yesterday tho and he told me i didnt stink, the part talking about how only some ppl can detect it sounds pretty accurate as its usually never the whole group or room... its very strange hopefully it will stop as the gluten is eliminated? i dont knwo, if not then i guess im just gona have to deal w/ it lol i dont know how i'd do that but lif goes on right?

Sadly, that is something you will commonly see if do a web search on the issue of body odor that is unrelated to hygiene especially for people with TMAU. The people with TMAU sort of have it worse though because they know what the problem is and there is simply no way to currently fix it except hoping a diet low in choline will help. You however may be stuck in a situation where you will just have to "grin and bear it" if you can not figure out the root cause. It could be worse though. You could notice the odor yourself which would absolutely have to make the situation harder than it already is.

I truly hope your situation is related to either some recent trigger event, your diet, "detox", etc. and that it clears up. They body has a strange way of dealing with things at times. For all we know about it, we know a lot less. What I can tell you for sure though is the "cleaner" (cutting out added sugar, fillers, binders, chemicals, preservatives, processed foods, etc.) you eat, the more you will notice how certain foods affect your body physically, emotionally, and even scent wise. For instance, and this may be TMI lol, if I eat something that's been "fortified" with synthetic vitamins/minerals like cereal, my urine will smell identical to it. That's not surprising though since a majority of synthetic vitamins/minerals will go directly from your stomach to your urinary system. I have noticed that things like onions, garlic, similar foods, etc. now effect more than just my breath which also isn't to surprising considering those types of foods are considered "cleansing" combined with the fact your skin is your largest organ and, the first place your body tries to get rid of toxins via perspiration (sweat). There is a reason the saying "you are what you eat" exists.

[WhenDee]

Regarding the smell issue...

It is possible that you are getting rid of toxins... BUT...

If even your doctor said he didn't smell anything, I'm going to guess that you are oversensitive, picking up on behaviors that have nothing to do with you.

I struggle with anxiety, and I can't handle it on my own. I recently tried again, hoping that being gluten-free would have helped (it didn't, really). I noticed that when I was most anxious, I saw everyone else's actions as somehow relating to me. Now that I'm back on a small anxiety med, I can see where other people's actions are related to THEM, not me. Things I took as being directed at me, had nothing to do with me at all.

It sounds like you have some social anxiety. I hope that in your case, because you have no insurance and medication may be too expensive, going gluten-free will help with it. For many people it does. In the meantime, as someone else suggested, try to find a counseling center with sliding-scale fees. Most universities offer one, if you have a college in your area. Call up the psychology department & they can tell you.

[tguy]

Regarding the smell issue...

It is possible that you are getting rid of toxins... BUT...

If even your doctor said he didn't smell anything, I'm going to guess that you are oversensitive, picking up on behaviors that have nothing to do with you.

I struggle with anxiety, and I can't handle it on my own. I recently tried again, hoping that being gluten-free would have helped (it didn't, really). I noticed that when I was most anxious, I saw everyone else's actions as somehow relating to me. Now that I'm back on a small anxiety med, I can see where other people's actions are related to THEM, not me. Things I took as being directed at me, had nothing to do with me at all.

It sounds like you have some social anxiety. I hope that in your case, because you have no insurance and medication may be too expensive, going gluten-free will help with it. For many people it does. In the meantime, as someone else suggested, try to find a counseling center with sliding-scale fees. Most universities offer one, if you have a college in your area. Call up the psychology department & they can tell you.

i definately do, i guess i always have but ive been "out of the picture" i geuss u could say for the last few yrs, and it sounds crazy to say but i just dont know how to act in public lol.. ppl always ask me whats wrong when really at that momen somethin mite not even b bothering me. vise versa i dont get it, as to the university question i actually have thought about that i live right across the street from one but i also know a lot of ppl that go there and are actually majoring in that so i dont really wana do it there but i will look for somewhere that offers slide fees

[Marilyn R]

:DI don't know if this will help your concern body odor, but when I used to work out in the gym (bravos to you for working out), I stunk when I worked up a sweat. I don't think anybody's sweat smells good.

I have a friend I love to bits, but when he comes to give me a hug after riding his bike for 3-4 miles, I want to pinch my nose and step back. We're not close enough for me to tell him, "Hey, take a shower first", but I'd tell my BF, family or close friends that they need to shower. If you don't have reason to suspect that your friends and family are lying to you, I don't think they will. Your doctor wouldn't.

That person coming in the door of the gym could have been pregnant or hung over, or ... could have nausea from celiac disease but doesn't know it.

It's really tough at first, but soon your worst days now will be better than your best days then, in everyway. I promise.

[tguy]

tested monday...still no results, and im beginning to think maybe i dont even have celiac i havent had ne gluten, still feel like sh**..actually feel worse than i did in the beginning of the week. Its hard to tell what it is im feelin messed up from my naval cavity to mid thigh area, i have like no core!

[mushroom]

It could well be that your body is going through withdrawal - about 50% of people do when they quit eating gluten. It will last for a week or two, so hang in there. There's no way you can tell yet whether gluten free will work for you. You are just going to have to be a bit more patient

[Loey]

hello im 24 been dealing w/ major problems since 20. now that its been explained to me i've been dealing w/ it for my whole life. i always had bowel problems, mainly constipated when i was a little kid. and i always until a week ago ate bread i love it. neway i havent gotten tested but i've been on fruits and veggies and water diet also w// wholewheat bread n peanut butter until a week ago. cut the bread and pb out of the diet and i have started to feel a lil better. plan on testing but its expensive so i'll have to wait to b sure, but if gluten free is pain free it'll b worth it. i really have two main questions.....1. how does marijuana effect this disease? i ask because it has been the only thing in the past that has ever alleviated ne of my pain or symptoms. not to mention it helps w/ my stress disorders. however if it is secretly slowing my healing process down i want to try n stay off it... i have quit for a week to expirement how if feels, i have more pain. please share opinions......2. I have noticed ppl's reactions to me as if i smell really bad. i myself dont smell it and i shower 2-3 times, and brush teeth 2-3 times daily... like i said i've quit marijuana for the last week and the detoxing of that i believe has made it even worse.. i've asked family and friends, and they tell me that im imagining it, but i think they're just being polite.. has ne1 else had a smell problem w/ this? the 1 thing that i can think of is that i've kinda been on bed rest for over 3yrs i mean i could've walked a lil and stuff but the symptoms combined w/ another physical problem of mine wouldnt allow me to get ne decent excercise in. Im thinking since i've been able to do slow jogs and i ride the stationery bike a lil bit lately and cut the gluten and mj out of my body that its just gettin rid of all the nasty discusting toxins that i've taken in and clogged myself w/ the lats 3 to 4 yrs??? ne help and i mean ANY would b much appreciated. My social life has been slowly dwindling away ever since age 20, i cant hold a job, and life is just getting pathetic.

Hang in there tguy. We've all had substantial challenges and multiple illnesses related to this disease. I've found that the smell from marijuana is gone after you shower and brush. I have several other illnesses (CLL, Scoliosis, arthritis, and celiac). I'm hoping to also be able to get a medical marijuana card. Just remember you're not alone and this support group is made up of the most intelligent and compassionate people I've ever had the good fortune to know. Also please feel free to PM if you need to vent.

Loey

[gf-soph]

I also think that the people close to you wouldn't lie about your smell. If you really did smell then surely they would welcome the chance to tell you when you asked. If you want to be really sure why not ask a friend to come to the gym with you and do a sniff test when you have finished working out, as that sounds like the time you thought you smelt the worst.

One of the interesting things about anxiety and depression is that they can involve biases in the way you see the world. If you have suspicions that you have an offensive smell and feel embarrassed or ashamed at the idea you can start only paying attention to things that confirm your beliefs, rather than looking at all the evidence. You can also interpret situations very differently to someone who doesn't have the same concerns.

If you are able to see a psychologist or psychiatrist they might be really helpful in talking you through how to evaluate these sort of situations and make things a bit easier to cope with. I'm not saying for sure this is the case for you, but it's worth seeing whether it might be relevant.

I hope you start feeling better soon.