Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Free!


jenngolightly

Recommended Posts

jenngolightly Contributor

Preface - haven't eaten out for 8 months. I can't eat gluten, corn, dairy, or nuts. I don't eat processed foods.

I've been dreading this day for a month. We had a going-away lunch for a colleague at a local sushi place and I've been getting more and more anxious as the date approached. I even thought of calling in sick, but I really like this woman and she'd be disappointed if I didn't go.

Like many of you, I've turned down a lot of engagements that involve food because I thought I couldn't eat anything or would have to take my own food. It's easy to bring food to work-based functions, but not usually restaurants - although I've done it. I've felt really lonely and like a shut-in because everyone else goes out to dinner and I am stuck at home.

But I did it! I pulled our server aside after drinks were brought - as I always do, while people are busy reading menus and talking - and told her about all of my "allergies" (much easier to explain than "intolerance"). I asked about the duck salad and would she please asked if it had any of those things.

Out came another woman who knelt near me and we talked about the food. She said she had a wheat allergy and would personally make all of my food. We tailor made my lunch: grilled salmon with salt only, a salad with specially-made salad dressing that she would mix up for me, and sticky-rice. She wrote everything down. The regular server took everyone's order (10 people) and when she got to me she said, "You've been taken care of" and moved on. And my lunch came out with everyone else's! No one knew!

I'm definitely going back there. I felt so at ease and worry-free.

I also figured that I can go to restaurants and order fish with salt only. I can't imagine that it can be pre-marinated because it would fall apart. So fish and a green salad with vinegar or fresh lemon juice as the dressing (I eat salad with vinegar only when I need a fast dressing - sounds weird but it's pretty good when you get used to it). And fish is grilled with skin side down, so less chance of cc.

I could do this again. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KuKuKaChoo52 Newbie

Success! That is awesome, congrats! Sounds like that restaurant had some good customer service... What was the name of the place? Good idea on the fish with just salt though, if I am ever out again that is what I will do for sure, same with the salad with vinegar. Dressing is something that probably always gets me, I just go for Italian because it seems like the safest, but i didn't even think about vinegar.

rdunbar Explorer

thats awesome!!

i know what its like to always eat at home by myself, so i can imagine how huge that experience must be for you!

Takala Enthusiast

Oh my, wow. That is really a tight list of food restrictions. Congratulations ! :)

wheeleezdryver Community Regular

that is awesome!!!

11475 Apprentice

What a great experience! I'm so pleased for you! I am really glad to hear how professionally (and discreetly!) the staff assisted you. Hooray!

Loey Rising Star

Preface - haven't eaten out for 8 months. I can't eat gluten, corn, dairy, or nuts. I don't eat processed foods.

I've been dreading this day for a month. We had a going-away lunch for a colleague at a local sushi place and I've been getting more and more anxious as the date approached. I even thought of calling in sick, but I really like this woman and she'd be disappointed if I didn't go.

Like many of you, I've turned down a lot of engagements that involve food because I thought I couldn't eat anything or would have to take my own food. It's easy to bring food to work-based functions, but not usually restaurants - although I've done it. I've felt really lonely and like a shut-in because everyone else goes out to dinner and I am stuck at home.

But I did it! I pulled our server aside after drinks were brought - as I always do, while people are busy reading menus and talking - and told her about all of my "allergies" (much easier to explain than "intolerance"). I asked about the duck salad and would she please asked if it had any of those things.

Out came another woman who knelt near me and we talked about the food. She said she had a wheat allergy and would personally make all of my food. We tailor made my lunch: grilled salmon with salt only, a salad with specially-made salad dressing that she would mix up for me, and sticky-rice. She wrote everything down. The regular server took everyone's order (10 people) and when she got to me she said, "You've been taken care of" and moved on. And my lunch came out with everyone else's! No one knew!

I'm definitely going back there. I felt so at ease and worry-free.

I also figured that I can go to restaurants and order fish with salt only. I can't imagine that it can be pre-marinated because it would fall apart. So fish and a green salad with vinegar or fresh lemon juice as the dressing (I eat salad with vinegar only when I need a fast dressing - sounds weird but it's pretty good when you get used to it). And fish is grilled with skin side down, so less chance of cc.

I could do this again. :D

You go girl!!!!!! It's so good to hear a story with a happy ending. See, we can be normal (if normal exists).

Hugs and congratulations,

Loey


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Blackbird Newbie

That is awesome! Congratulations!

I have a group of friends that likes to dine out together, and between the 3 of us we have many food allergies. One is allergic to eggs and also cannot tolerate any red meat or lard, I am gluten and lactose intolerant, and another has a serious allergy to all legumes. We have gotten our little group speech down to a science now and have had many lovely meals together -- oh, and we tip very well! :) It's so nice to find a restaurant that is willing to go the extra mile to make sure you are safe.

jenngolightly Contributor

Thanks for all of your replies!

The restaurant is a little place in Denver called Sushi Den. If you live around here, then I highly recommend! I don't eat sushi but they have lots of other foods. Check out their website if you want to go because it's quite extensive. I'll def go back.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,335
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.