Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Free!


jenngolightly

Recommended Posts

jenngolightly Contributor

Preface - haven't eaten out for 8 months. I can't eat gluten, corn, dairy, or nuts. I don't eat processed foods.

I've been dreading this day for a month. We had a going-away lunch for a colleague at a local sushi place and I've been getting more and more anxious as the date approached. I even thought of calling in sick, but I really like this woman and she'd be disappointed if I didn't go.

Like many of you, I've turned down a lot of engagements that involve food because I thought I couldn't eat anything or would have to take my own food. It's easy to bring food to work-based functions, but not usually restaurants - although I've done it. I've felt really lonely and like a shut-in because everyone else goes out to dinner and I am stuck at home.

But I did it! I pulled our server aside after drinks were brought - as I always do, while people are busy reading menus and talking - and told her about all of my "allergies" (much easier to explain than "intolerance"). I asked about the duck salad and would she please asked if it had any of those things.

Out came another woman who knelt near me and we talked about the food. She said she had a wheat allergy and would personally make all of my food. We tailor made my lunch: grilled salmon with salt only, a salad with specially-made salad dressing that she would mix up for me, and sticky-rice. She wrote everything down. The regular server took everyone's order (10 people) and when she got to me she said, "You've been taken care of" and moved on. And my lunch came out with everyone else's! No one knew!

I'm definitely going back there. I felt so at ease and worry-free.

I also figured that I can go to restaurants and order fish with salt only. I can't imagine that it can be pre-marinated because it would fall apart. So fish and a green salad with vinegar or fresh lemon juice as the dressing (I eat salad with vinegar only when I need a fast dressing - sounds weird but it's pretty good when you get used to it). And fish is grilled with skin side down, so less chance of cc.

I could do this again. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KuKuKaChoo52 Newbie

Success! That is awesome, congrats! Sounds like that restaurant had some good customer service... What was the name of the place? Good idea on the fish with just salt though, if I am ever out again that is what I will do for sure, same with the salad with vinegar. Dressing is something that probably always gets me, I just go for Italian because it seems like the safest, but i didn't even think about vinegar.

rdunbar Explorer

thats awesome!!

i know what its like to always eat at home by myself, so i can imagine how huge that experience must be for you!

Takala Enthusiast

Oh my, wow. That is really a tight list of food restrictions. Congratulations ! :)

wheeleezdryver Community Regular

that is awesome!!!

11475 Apprentice

What a great experience! I'm so pleased for you! I am really glad to hear how professionally (and discreetly!) the staff assisted you. Hooray!

Loey Rising Star

Preface - haven't eaten out for 8 months. I can't eat gluten, corn, dairy, or nuts. I don't eat processed foods.

I've been dreading this day for a month. We had a going-away lunch for a colleague at a local sushi place and I've been getting more and more anxious as the date approached. I even thought of calling in sick, but I really like this woman and she'd be disappointed if I didn't go.

Like many of you, I've turned down a lot of engagements that involve food because I thought I couldn't eat anything or would have to take my own food. It's easy to bring food to work-based functions, but not usually restaurants - although I've done it. I've felt really lonely and like a shut-in because everyone else goes out to dinner and I am stuck at home.

But I did it! I pulled our server aside after drinks were brought - as I always do, while people are busy reading menus and talking - and told her about all of my "allergies" (much easier to explain than "intolerance"). I asked about the duck salad and would she please asked if it had any of those things.

Out came another woman who knelt near me and we talked about the food. She said she had a wheat allergy and would personally make all of my food. We tailor made my lunch: grilled salmon with salt only, a salad with specially-made salad dressing that she would mix up for me, and sticky-rice. She wrote everything down. The regular server took everyone's order (10 people) and when she got to me she said, "You've been taken care of" and moved on. And my lunch came out with everyone else's! No one knew!

I'm definitely going back there. I felt so at ease and worry-free.

I also figured that I can go to restaurants and order fish with salt only. I can't imagine that it can be pre-marinated because it would fall apart. So fish and a green salad with vinegar or fresh lemon juice as the dressing (I eat salad with vinegar only when I need a fast dressing - sounds weird but it's pretty good when you get used to it). And fish is grilled with skin side down, so less chance of cc.

I could do this again. :D

You go girl!!!!!! It's so good to hear a story with a happy ending. See, we can be normal (if normal exists).

Hugs and congratulations,

Loey


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Blackbird Newbie

That is awesome! Congratulations!

I have a group of friends that likes to dine out together, and between the 3 of us we have many food allergies. One is allergic to eggs and also cannot tolerate any red meat or lard, I am gluten and lactose intolerant, and another has a serious allergy to all legumes. We have gotten our little group speech down to a science now and have had many lovely meals together -- oh, and we tip very well! :) It's so nice to find a restaurant that is willing to go the extra mile to make sure you are safe.

jenngolightly Contributor

Thanks for all of your replies!

The restaurant is a little place in Denver called Sushi Den. If you live around here, then I highly recommend! I don't eat sushi but they have lots of other foods. Check out their website if you want to go because it's quite extensive. I'll def go back.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

    2. - cristiana replied to hjayne19's topic in Traveling with Celiac Disease
      1

      Mallorca Guide

    3. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

    4. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

    5. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,938
    • Most Online (within 30 mins)
      7,748

    K2coffee
    Newest Member
    K2coffee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • hjayne19
      Hi @cristiana   Thank you so much for your reply. This is so helpful. I definitely suffer from anxiety mostly related to health. Brain fog definelty doesn’t help this when it comes. I find my 4 am wake ups are potentially more food related if that’s a possibility (eating enough carbs with protein and fats) and if I eat a small snack before bed to hold throughout the night. I just haven’t been able to help the sudden increase in more days where I can’t fall asleep for hours - it’s those racing thoughts like you describe. I feel like a machine that’s running and can’t shut down.    I will try the epsom salt bath that’s a great suggestion. I think I’m probably working through some other food triggers that may be contributing as well with brain fog.    Anyways sorry to go off. It feels so reassuring finding this community and being able to chat with others. I was definitely feeling a bit crazy until I realized there are many others going through the same thing. 
    • cristiana
      Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about.   I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type.  There seems to be a thought in the UK that if you label something gluten free it will affect flavour etc and will put people off buying it!  However, in the case of Spain, it is almost as if the the Spanish see it as an endorsement of quality and flavour!  There is a supermarket called Mercadona and they label their produce very clearly. Paella should be gluten free so long as the chef use the right stock such as Knorr or a gluten-free homemade stock - you can check.  Most Mallorquins in catering speak English but if not, ask, "Contiene gluten?"  Tumbet is a wonderful dish if you like peppers, tomato, aubergines, garlic and olive oil!  A sort of variation on ratatouille.   Slow roast lamb shank should be safe, and there are endless fish dishes to choose from and salads.  Flan is made with eggs, sugar and caramel, and should be gluten-free.  Lots of gluten-free ice cream and sorbets, they should be clearly labelled. If you want specific restaurant recommendations, feel free to PM me. Cristiana    
    • trents
      One thing to keep in mind is that it's pretty safe to take a B-complex since B vitamins are water soluble. You just pee out any excess. 
    • cristiana
      Hi @hjayne19 It sounds as if your insomnia is closely linked to your anxiety.  I had awful anxiety at diagnosis, and that feeling of doom that you describe.   My other symptoms were racing thoughts, and a tangible sensation of a weight bearing down on my shoulders, even if I was feeling perfectly well and happy - it would just hit me.  I then got a phobia to make things worse, linked to the fact that I had was suffering hypnopompic hallucinations (brief hallucinations on waking).  That was weird but I later learned they aren't all that uncommon, especially with people who suffer from aura migraines.   In fact I felt so unwell that I didn't even recognise it as 'anxiety'.  I remember googling my various symptoms and it was only that that  made me realise I was suffering from anxiety, which was nothing like 'feeling a bit nervous before taking an exam' or , say, making a speech.  This was a whole new ball game. As I came off gluten and healed, the anxiety started to get less and less.  It is not uncommon for coeliacs to have anxiety on diagnosis, so I hope that is reassuring to you.   And deficiencies can make it worse, or cause it, so are definitely worth investigating in further depth if you can.   There is certainly a big difference between 'normal' levels and 'optimum', as @trents says, and this excerpt from a British website and explains how with B12,, for example,  a normal level in one person can represent a deficiency in another: In the UK, normal B12 levels vary slightly by lab but generally, above 200 ng/L is considered sufficient, 100-145 ng/L indicates possible deficiency, and below 100 ng/L suggests likely deficiency, though levels between 146-200 ng/L may still warrant treatment if symptoms are present, as per North Bristol NHS Trust and NICE guidelines In fact, I understand levels are set much higher in other countries, such as Japan.  When I started to supplement B12 with high dose sublinguals I began to feel better, even though at diagnosis my levels were considered 'low normal'.    I too had a lot of muscle twitching which was likely due to deficiencies, but of course if someone has a lot of adrenaline in their system it will only make twitching worse.  I remember reading on this forum one should take magnesium tablets, and it did really help.  As a sportsperson you might like to try throwing a good handful of Epsom salts into a lukewarm bath, and have a soak for 20 mins, as it can be absorbed through the skin.  But be careful as you leave the bath, it can make you woozy! Lastly, to address the anxiety,  I found Dr Steve Llardi's book, albeit on Depression, incredibly helpful.  The Depression Cure: The Six Step Programme to Beat Depression Without Drugs.    Dr Llardi outlines a step-by-step plan for recovery from depression, which focuses on six key lifestyle elements that have largely disappeared in healthy doses from modern life:  physical exercise,  omega-3 fatty acids,  natural sunlight exposure,  restorative sleep,  social connectedness, and meaningful, engaging activity.    The other book (and there is a website) which helped me understand anxiety and recover is Paul David's, At Last a Life, written by a one-time sufferer.  I live in the UK and if I could award a knighthood to anyone in this country, it would be to Paul.  I am so grateful that these books crossed my path.   Anyway, sorry for the length of this post.  I hope something might be of help. Cristiana  
    • hjayne19
      Hi @trents thanks so much for the insights this helps alot.    These were my metrics at celiac diagnosis. In which my diet has since changed over the past 3 months Magnesium: 0.80 mmol/L Vitamin B12: 1021 Vitamin D (25-OH): 102.8 I would say I do get tired after eating more carbs and the only thing that really helps me fall asleep with insomnia is if I eat a banana or a snack. I have a follow up appointment soon so will look into those other B vitamin levels. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.