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Crappy Gi Visit


CruiseWriter

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CruiseWriter Apprentice

Went to GI for follow-up after colonoscopy/upper endoscopy in March. Follow-up lasted all of 5 minutes,if that. He said colonoscopy was normal,endoscopy showed mild erosion,but that's common,so he wasn't too concerned. Said biopsies were all normal,no Celiac or gluten sensitivity. I'd told him I'd gone gluten-free and felt better and he said if I wanted to stay on diet I could,but I don't need to. I'll need acid reflux meds forever,he said. Follow-up in a year's time. The end.


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ravenwoodglass Mentor

Don't be surprised if the 'acid reflux' clears up gluten free. I was told that also and was given a handful of meds to try and told to call and let him know what worked best and he would give me a script. I put the samples in a drawer and although I did need to use Pepto Bismal a few times within a short time gluten free the stomach issues were a thing of the past.

If the diet is working for you stick with it.

Takala Enthusiast

More like The Beginning.

Roda Rising Star

I had horrible acid reflux before being diagnosed. I REFUSED medicine and my pcp at the time thought I was stupid. I didn't want a bandaid, I wanted to know why I suddenly had reflux. I did rely on tums for the next 2 years after when needed. When I went gluten free that was my first symptom that cleard up!! Go with your gut instinct. :P

L Ceezy Newbie

Went to GI for follow-up after colonoscopy/upper endoscopy in March. Follow-up lasted all of 5 minutes,if that. He said colonoscopy was normal,endoscopy showed mild erosion,but that's common,so he wasn't too concerned. Said biopsies were all normal,no Celiac or gluten sensitivity. I'd told him I'd gone gluten-free and felt better and he said if I wanted to stay on diet I could,but I don't need to. I'll need acid reflux meds forever,he said. Follow-up in a year's time. The end.

Grrr!! Perhaps we went to the same doc! Completely pisses me off. I'm having an attack right now so I can't type too much, but same thing happened to me and worse. Luckily I have a great GP who told me that ya that guy is a jerk, and he only took a few biopsies and it doesn't mean anything (my GI pushed a colonoscopy on me instead of the endoscopy I came in asking for, so he could make more money). I don't understand how they look at one or two things and then tell us we're not sick when we know we are sick! I was already gluten free for many months when I even went to my doctor to tell him this is what was going on, and there was no way I was going to start eating it again just to get tested.

Acid-reflux meds don't do anything. And mild erosion is common?? It's not meaningless, he's crazy. Like, it's common in people complaining of stomach issues I bet... cause they have a problem! Def don't listen to this guy, his ego is out of control. He thinks he knows everything and you can't possibly know anything about your own body because you did't go to school for it. Do what you know is right, regardless of what any tests say because those are updated and discovered all the time!

Marilyn R Community Regular

Went to GI for follow-up after colonoscopy/upper endoscopy in March. Follow-up lasted all of 5 minutes,if that. He said colonoscopy was normal,endoscopy showed mild erosion,but that's common,so he wasn't too concerned. Said biopsies were all normal,no Celiac or gluten sensitivity. I'd told him I'd gone gluten-free and felt better and he said if I wanted to stay on diet I could,but I don't need to. I'll need acid reflux meds forever,he said. Follow-up in a year's time. The end.

This is going to sound like a fairy tale but I swear it is true. I chose a gastro in my smallish town after I went gluten-free. He spent a complete hour with me on my initial visit, and I was seen within five minutes of my appointment time.

It took me a few visits before I would agree to an endoscopy, and he scheduled it himself, and gave me the instructions for prep himself. (I was a hard sale, because I knew it would turn out negative because I'd been gluten-free too long.)

After the procedure, I received a call from his office that I needed to schedule an office visit. That kind of ticked me off, because I thought that the results should be reported with a phone call, and my crappy insurance has a $50 co-pay for specialists.

I showed up for my appointment with an attitude. Dr. Ngo reviewed each and every symptom I described on my initial office visit. (15 plus or minus, including GERD). I told him that every symptom was better. Each symptom was questioned one by one.

Then he said "Your biopsy was negative, even under the microscope. I cannot diagnose you with celiac disease, but I highly recommend that you continue what you are doing."

Then he told me there would be no charge for my visit because it could have been handled with a phone call. He wanted to make sure I understood, so he had me come in. I offered to at least give them my co-pay, and they refused.

I currently have no current gastro problems. I'll still see him once a year because he's so nice, and I'll always be indebted to him when I look at the faces of doctors who ask me if I've been diagnosed and then dismiss that I have a gluten intolerance or inconclusive results from testing. Dr. Ngo gets it. And he understands that those of us with inconclusive test results need to understand.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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