Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mystery Solved!


K8ling

Recommended Posts

K8ling Enthusiast

So, a few weeks ago I had a major reaction, and I posted hoping you guys could help me sort it out...

I figured it out.

I had been eating fruit snacks with my son, and I had read the box and everything seemed fine...

Until I went a bought a case of them at the case sale at the commissary!

Motts by Brachs fruit snacks: Processed on equipment that may have trace amounts of wheat .

You've got to be kidding me.

Now I have a case of 56... why would the little box not say that?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

check and see if the individual ones are marked "not for retail sale"

if not complain to the company.

Karl Otto Explorer

Sometimes, the companies do not put it down out of fear of not making a sale. I live near a health food and organic store. They have sells personnel come into their store telling them a certain food is gluten free verbally but, it is not written on the label. The company is just trying to make sells and not above using deceptive sales practises to do their job. Rule of thumb here, if it does not say gluten free on the label, I will not even look at it anymore. Then, I read the labels and find out what is in it. When, you have Celiac Disease it is with you for life. Be very careful what you put into your bodies. I am laying here in my hospital bed today because, I found out about my Celiac Disease and Hypoglycemia much too late in life. Yes, the hospital bed is in my personal home but, it is still a hospital bed all the same.

Derezzed Newbie

I don't know why companies do that either and I find it really annoying. I've read a label for Reese's peanut butter cups and it didn't have a warning but when I read a package for the mini reese's peanut butter cups there was a warning that it could contain wheat. So now I don't eat any Reese's.

Maybe they don't have enough space on smaller packages...

kareng Grand Master

I don't know why companies do that either and I find it really annoying. I've read a label for Reese's peanut butter cups and it didn't have a warning but when I read a package for the mini reese's peanut butter cups there was a warning that it could contain wheat. So now I don't eat any Reese's.

Maybe they don't have enough space on smaller packages...

I have seen info on here that different size Reeses are made on different machines, perhaps even different factories. So the warning might make sense for one size but not the other. Either way, it doesn't hurt you not to eat them. :)

Lima Bean Newbie

Sometimes, the companies do not put it down out of fear of not making a sale. I live near a health food and organic store. They have sells personnel come into their store telling them a certain food is gluten free verbally but, it is not written on the label. The company is just trying to make sells and not above using deceptive sales practises to do their job. Rule of thumb here, if it does not say gluten free on the label, I will not even look at it anymore. Then, I read the labels and find out what is in it. When, you have Celiac Disease it is with you for life. Be very careful what you put into your bodies. I am laying here in my hospital bed today because, I found out about my Celiac Disease and Hypoglycemia much too late in life. Yes, the hospital bed is in my personal home but, it is still a hospital bed all the same.

I don't understand the part about it having to say gluten free. I haven't found any rice, fresh fruit or veggies or meat, etc that say gluten free. The things that say gluten free are usually the packaged, processed stuff. If you are that sick you should think of eating some things that don't say gluten free like potatoes, rice, apples, etc. Whole natural type foods.

Derezzed Newbie

I have seen info on here that different size Reeses are made on different machines, perhaps even different factories. So the warning might make sense for one size but not the other. Either way, it doesn't hurt you not to eat them. :)

Huh, I never knew that but I'm horribly addicted to chocolate so any excuse not to eat it is good, lol. If I feel like eating one I'll e-mail the company to be sure though. I don't want to get glutened...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Karl Otto Explorer

[/font

I personally am very sick with celiac Disease and Hyperinsulinism Hypoglycemia. But, my sons are still very young compared to me when, I was diagnosed. They can still eat things like that. For instance, Annie's cheese and macaroni comes in a packaged box. There is a package of cheese sause in the box. The box says clearly stamped on it gluten free. So, the food can still be packaged and, it can still be healthy to eat. It is made of rice flour and other safe ingredients. Some sausages you can buy at the supermarket are clearly marked gluten free on the package as well. Some yellow cake mixes sold at the grocery stores are also marked gluten free. There is too many articles out there that are gluten free and say so on the label. Why shouldn't people eat them?

GlutenFreeManna Rising Star

[/font

I personally am very sick with celiac Disease and Hyperinsulinism Hypoglycemia. But, my sons are still very young compared to me when, I was diagnosed. They can still eat things like that. For instance, Annie's cheese and macaroni comes in a packaged box. There is a package of cheese sause in the box. The box says clearly stamped on it gluten free. So, the food can still be packaged and, it can still be healthy to eat. It is made of rice flour and other safe ingredients. Some sausages you can buy at the supermarket are clearly marked gluten free on the package as well. Some yellow cake mixes sold at the grocery stores are also marked gluten free. There is too many articles out there that are gluten free and say so on the label. Why shouldn't people eat them?

You should NOT eat only packaged items labeled gluten free because there is no current regulation of the term "gluten free". Those items may not have any gluten added but they can still contain small amounts of gluten. Even if a law were made that gluten-free labeled items have to be tested for gluten, the most sensisitve test detects 5 PPM. There is no way of knowing if it has 4 PPM of gluten. Some people react to less than 5 PPM gluten. Many "gluten free" labeled products make celiacs very sick. For some people when they eat a processed gluten-free food the first time they have no reaction, but eating it several times along with other packaged gluten-free items that could have very low levels of gluten has a culmulative effect. Eventually they will feel very sick and not be able to figure out where it is coming from. Plus those items that you mention have almost no nutritional value. Foods that are naturally gluten-free like fruits and veggies, plain rice, sweet potatoes, quinoa, beans etc. are much better for helping your body heal and can speed your recovery. Things like cake and gluten-free macaroni and cheese should be a once in a while treat, NOT a staple of your diet.

Fianlly, I don't know your age or your other health problems that keep you in a hospital bed currently, but you very likely could a recover enough to get out of that hospital bed someday. I was bedridden with pain from the gluten, slept most of the day, unable to read because my memory was so bad, unable to drive under dr's orders, had seizures and many, many other symptoms typical of severe malnutrition like my hair falling out. It took about 6 months for me to get my energy back to the point where I was able to do basic things again like cooking a meal or folding laundry. But my energy and my health has come back like a miracle on the gluten-free diet. I'm 1 year and 5 months gltuen free now and enjoying life. I still get very ill if i get any small amoutn of gluten and I'm battling other food allergies now and possible thyroid issuse, but I feel better than I ever have ibn my whole life. It may take longer for you but it will happen faster (in my opinion) if you eat mostly healthy foods that are gluten-free in their natural state.

Karl Otto Explorer

First off, I have a rebutal for you. According to my imediate relatives, I have had this condition all my life, ever since, I was baby. Since, we came from a dirt poor family and could go to the doctors. We had to deal with our illnesses and disease the best way we could. Back then, we did things by comon sense and trial and error method. That is what poor white and Native American People did to survive.

I was born with Hyperinsulinism Hypoglycemia and Celiac Disease as well. My mother was diagnosed before she died at the tender age of 82 years. To late for her, though.

I inherited the disease from her, plus she had a blood condition that doctors could not diagnose back then correctly. Now, days they call it Hyperinsulinism Hypoglycemia. Look it up on the web next time.

I must test my blood at least 6 times a day to check on my glucose levels and, still I get very low blood sugar counts that run down as low as 55 mg/dl at lease once a day or every other day. I have to weigh how much natural and refined sugars in eat piece of food I put into my mouth. I have to weigh how much vitamins and what kind of vitamins are in each foods I eat.

Celiac people have to watch out for gluten hidden in their foods at all times and, I understand this. Most people even with Celiac Disease have other health problems attached to their Celiac Disease. Very rarely does Celiac Disease and Hypoglycemia come along by themselves. Most of us have other health problem besides the Celiac Disease. Diabetes, Hypoglycemia, Food Allergies, Preservitives allergies, etc..... What your neighbor is able to tolerate with his Celiac Disease may not work for you at all. Keep that in mind. There is no one shoe fits-all here people.

Since, my three conditons have not been dealt with properly over these long years, I have other complications to deal with now that, you people do not know about or ever heard of. Please try and keep that in mind as well.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.