Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Do I Begin Being Gluten-free?


Suezboss

Recommended Posts

Suezboss Apprentice

The Dr. Just called with the results of the bi-opsy, it IS Celiac.

Now, he said Celiac Spruce... is that the same thing as Celiac Disease?

and I have to call them back on monday to make an appointment, to go over everthing.. and he is going to refer me to a dietican.. but now i'm going to be a werck all weeknd before I can meet with him...

so WHERE SHOUD I start?? :o


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SueC Explorer

Hi,

It may be a bit overwheming at first but it will get easier. I was dignosed in April and am still learning. I started with plain meat,fruits and veggies, rice and potatoes. Nothing processed. If you have a healthfood store nearby they will usually have some gluten free products. Energ-E makes a great granola bar and there is also gluten-free breads and mixes you can try. There is LOTS of great info in this message board and I'm sure you will get alot of great ideas here.

hang in there :)

Sue

swittenauer Enthusiast

My husband was just diagnosed this week & I have already learned so much from this website. I think seeing what people have to say that are actually experiencing the same thing is much better than all the contradictory websites. This really helps!

Pegster Apprentice

When I was first diagnosed I started with plain rice and hard-boiled eggs. I am SO over that. I eat lots of grilled meats and vegetables. I go out to eat several times a week. I am a cereal eater, so I eat Cocoa Pebbles or gluten-free cereals from Trader Joes or Whole Foods. I eat protein burgers at In and Out and the fries, too. When I crave cookies, I buy Pamela's chocolate chunk cookies at the health food store. I order bagels, English muffin, donuts, and bread from Kinnickinnick.com, or buy Food for Life gluten free bread at Trader Joes. All fruits and vegetables are safe in their natural form. My best treat is ice cream, but dairy bothers some people. This is a way better disease to have than most! It just takes some getting used to.

Jnkmnky Collaborator

A good place to start is imo, the parents of kids with celiac message board. So many parents show up needing help immediately to feed their child and people post away about what to feed the kids. You can find a lot there. Also the gluten free products board, of course. Just get cozy tonight in front of your computer and start browsing through the boards. I would suggest you spend most of your energy looking here as this really is a comprehensive site. If you have any specific questions, post them. Giving you a standard list of gluten free products isn't as easy as it sounds because from one coast of the U.S. to the other, foods are named differently. Some brands use different names, though they're the same product. Plus, there are many other countries represented here. Plus, the most fun thing of all is that companies change ingredients at will. You must always check that a product is STILL gluten free.

mytummyhurts Contributor
Now, he said Celiac Spruce... is that the same thing as Celiac Disease?

<{POST_SNAPBACK}>

Yes, they are the same. :)

KaitiUSA Enthusiast
The Dr. Just called with the results of the bi-opsy, it IS Celiac.

Now, he said Celiac Spruce... is that the same thing as Celiac Disease?

and I have to call them back on monday to make an appointment, to go over everthing.. and he is going to refer me to a dietican.. but now i'm going to be a werck all weeknd before I can meet with him...

so WHERE SHOUD I start??  :o

<{POST_SNAPBACK}>

They are the same thing.

Dietitians know absolutely nothing! They know probably less then doctors. I was told by one that Spelt(a form of wheat) is gluten free...HELLO !??!

Anyways, this site is filled with info that will help.

celiac3270 posted a few months back the Delphi Forums 79 page list of gluten free products and foods...you may want to take a look at that.

Also, the safe and forbidden list https://www.celiac.com/st_main.html?p_catid=12

That will help you out alot.

There are also a # of brands that are listed on the site in numerous places that will not hide anything. I can send you those if you would like, if you can't find them. Certain brands will say wheat,rye,barley,oats right on the label and they will not hide anything under otherwise questionable ingredients. Those will help you too.

Health food stores usually have a gluten free section too.. Beware some brands are bad. You can figure out lots of great brands on here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Merika Contributor

Start with whole foods that you have in your pantry. Potatoes (not in a box or bag, just the potato) and rice (again, not from a flavored box/bag/freezer) for starch. Fruits and plain vegetables (steamed or sauteed with PURE olive oil or butter, not margarine or vegetable oils). Plain meats cooked in a pan or on a very very clean grill and eggs and beans.

That will get you started, even this weekend. At first, it's easiest to avoid all dressings, marinades, sauces, spice mixes, and packaged items. It's not forever - just until you have a chance to read and research the ones you normally eat and the new ones you find at the store :)

Next week, after you've had a chance to read online, bring your cell phone to the grocery store during business hours. Expect it to take longer than normal :) Leave the kids at home (if you have them....)

hth, and ask ask ask lots of questions, here and on the phone....

Merika

Suezboss Apprentice
from a flavored box/bag/freezer) for starch. Fruits and plain vegetables (steamed or sauteed with PURE olive oil or butter, not margarine or vegetable oils).

<{POST_SNAPBACK}>

Thanks everyone!!!

Merika- Why not Margarine?? is it not gluten-free? :o

Of course, this makes it ALL the much more harder to make a transition, b/c i'm getging married in 14 days, and then leaving for a HM to Europe for 2 weeks!!! so NOT being familiar with the gluten-free lifestyle will make it SO hard being in a foriegn country... I will try my BEST and hope that the stomach pains hold off :( Also, I'm going to contact my caterer tomorrow, and see if they have gluten-free items, that they can at least make ME, so that I can enjoy someintg to eat on my Wedding night :)

I'm sure you guys will be hearing a lot from me over the next 2 weeks, as I try to cram in ALL my questions before I go!!!

QUESTION 1:

I am confused about someting... Are we allowed to eat coaco? I thought I saw somewhere that we can't have Hot Chocolate ... is that b/c the Coaco?

Question 2:

Are we allowed to eat Caramel Color? Some gluten-free products list Caramel Color in the ingerediants?

again, THANK YOU ALL FOR YOUR HELP!!

You are really getting me through this!!! :D

Merika Contributor

Hi Suez,

i don't know about margarine. Probably some is and some isn't. I just advise staying away from all factory-produced frankenstein foods. If the box has ingredients that you don't have in your own pantry, stay away from it until you find out what it is. :)

Cocoa is fine. What it's mixed with is another matter. There is lots of gluten-free chocolate out there, you just need to read the label. mmmmmmmmm :P

Caramel color is one of those unknown items - it could be gluten-free, it might not be gluten-free, and so unless you have called the manufacturer and they can give you an answer, it's best to stay away from.

Congrats on your wedding! The caterer SHOULD be able to make you something. Just be very very clear talking with them.

Where are you going in Europe? Some places seem pretty familar with celiac, more so than in the US. There are also dining cards you can get in other languages that you can show your waiter to help you order appropriate gluten-free stuff.

Merika

Suezboss Apprentice
Where are you going in Europe? Some places seem pretty familar with celiac, more so than in the US. There are also dining cards you can get in other languages that you can show your waiter to help you order appropriate gluten-free stuff.

Merika

<{POST_SNAPBACK}>

THANKS so much!

I am going to London ( :( I know), Paris, and Rome.

Do you konw where I can get the cards in French and Italian? I have the Englis ones, that i'm making Fiancee copy lots of for me!

Thaks for your help!

-sue

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.