Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Am I Sick?


kathleenp

Recommended Posts

kathleenp Apprentice

This is day 27 of being gluten-free. I am not diagnosed Celiac, but decided to go gluten-free due to bipolar symptoms that do not really respond to meds. I am thrilled to say that bipolar symptoms are improving, although I still have a long way to go.

On day 5 I had what I thought was mild food poisening, but then I realized that my sister had eaten everything that I had and was not sick and it left after a few hours, so I decided it was something else. Then on day 19 I got a lot sicker and thought it was the flu that lasted for 5 days. I am not so sure it was the flu now since I have not been around anyone with the flu and have not passed it on to anyone either. My symptoms were fairly intense stomach pain and watery D, a little nausea, but no vomiting. Eating increased the pain, so I cut back on that. It went away for 2 days and last night the pain came back, although not really bad, but I did vomit rather violently. Still neausious this morning.

Yesterday was also a wierd, 'hungry' day for me. Everytime I ate, afterwards, I was absolutely starving. I had low blood sugar in the evening and I think I overate to compensate for that and I think that may have triggered the stomach pain. Overeating does seem to bring it on.

I have been very careful about what I am eating, but I did eat at El Pollo Loco last night-just chicken, pinto beans, corn and corn tortillas though. I thought that would be safe.

I had started taking enzymes around day 13 to help in case I got CC, so I don't know if they are affecting me or not.

Anyway, I don't know if I got glutened (isn't it too early to have such a bad reaction if it was glutening?), have the flu, am still withdrawing or am just in the healing process? Anyone care to share their thoughts on this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It is not too early to have a bad reaction to a glutening. Does the restaurant you ate at have a gluten free menu? If not then they may not be taking the proper precautions to prevent it at the restaurant.

In the beginning it is best to go with whole unprocessed foods that you prepare yourself in a kitchen that has been purged of gluten risks. You need a new dedicated toaster, to replace scratched non stick pans, strainers and wooden utensils. You also should get new condiments and don't share them with gluten eaters. That includes stuff like butter, nut butters, jellies etc.

GlutenFreeManna Rising Star

The last time that I checked El Pollo loco's chicken was NOT gluten free. It sounds like you got glutened from it. Sorry you're sick now. If you didn't ask any questions that was mistake number one. You can't go by what "looks safe". You'll learn in time how to eat out at some places safely. El Pollo Loco is not one I would risk, personally--even their rice has gluten in it. They also put gluten in the chipotle salsa which is on the "salsa bar" making the rest of the salsa's unsafe from the bar.

As to you other incidences of feeling sick--have you eliminated cc rtisks in your home? Did you get a new gluten-free-dedicated toaster? Get rid of old non-stick pans, wooden spoons, wooden or plastic cutting boards? Don't underestimate the power of small amounts of gluten to make you sick.

kathleenp Apprentice

We don't use wooden utensils, most of my pans are stainless and the only thing we cut up on the cutting board is vegetables and occasionally meat, so I think I'm good there. I'll have to check the couple of pans that have a non-stick coating and see what condition they are in. As for the toaster-we use a toaster oven and I did toast a piece of gluten-free bread last night, but I put a piece of foil down first. Is this enough to prevent CC?

As for El Pollo Loco, they don't have a strictly gluten-free menu, but I had looked it up on the internet first and saw a list of foods that were gluten-free. I also saw a post here where someone eats what I had last night on a regular basis and doesn't get sick, so I thought it was safe. I did see where their food may be prepared on the same surfaces as gluten containing foods, so that may have been what happened.

It's funny, I never had gastrointestinal issues before going gluten-free, but now I sure do.

GFinDC Veteran

It seems funny to not have symptoms. But there are many people with celiac who don't know they have it. If fact there are probably around 2.7 million people in the USA right now who have celiac and don't know it. There should be about 3 million of us on this board, but there ain't.

Not knowing is the norm, not the unusual thing.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.