Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Start A Support Group For Kids ?


maximoo

Recommended Posts

maximoo Enthusiast

Hello All: I was wondering how does one start a support group for kids? I've never been to a support group of any kind and am unsure how to set one up, what topics/themes to include, how long & how often meetings should be. Where should meetings be? Is a newsletter a good idea? I don't make a lot of money so I couldn't put much out. Should a fee be charged to cover materials? Would I need a grant? I do know I'd like to have activities for the kids--perhaps a simple cooking lessons, & different topics like how to handle the pressure @ birthday parties etc, easy biology lessons about celiac & its effects, word games (learning ingredient words that mean gluten), role playing. etc. Maybe I could get a guest speaker from time to time like a nurse or dr Should there be a fun field trip too?

I have no idea if this is even feasible. I do know that necessity is the mother of invention & since I haven't seen a support group for kids I'd like to know what it would take to make it possible & successful. Any & all ideas would be appreciated.

  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cara in Boston Enthusiast

We joined the group organized by Children's Hospital in Boston. We've only been gluten-free for about 3 months so we haven't really become active but here are some examples of what ours does (maybe someone with more experience can expand on them):

Each kid gets a "care package" in the mail welcoming them into the group. Ours was filled with all kinds of treats (donated from vendors I imagine?) and sample foods, along with lots of baking mixes and general information.

They have regular meetings (I think).

They have three annual special events (summer BBQ, Holiday party, etc.) where you can meet everyone and all the food is safe - we are REALLY looking forward to that!

There is a handy newsleter - maybe it comes every other month?

We paid a fee to join. Can't remember what it was, but not a lot. Worth every penny.

I think they also have an email list, but I'm not sure . . .

Good luck -

Cara

  • 3 months later...
Boatswife Newbie

I am also looking into starting a support group since there's none around (not even within a 4 hour drive!). I love the ideas mentioned above.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrish42 replied to chrish42's topic in Doctors
      2

      Doctors and Celiac.com

    2. - Scott Adams replied to shirlane's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Is AG1 safe for Celiacs??

    3. - Scott Adams replied to chrish42's topic in Doctors
      2

      Doctors and Celiac.com

    4. - nataliallano replied to MagsM's topic in Related Issues & Disorders
      28

      Inflammation and Menier’s disease link?

    5. - Wheatwacked replied to Betsy Crum's topic in Related Issues & Disorders
      5

      Chest pain from celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,258
    • Most Online (within 30 mins)
      7,748

    Karen Lambert
    Newest Member
    Karen Lambert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • chrish42
      All I can say is this site is great!
    • Scott Adams
      From their website I see "organic barley leaf powder" as an ingredient. Keep in mind that the gluten is in the kernel, and not in the leaves. https://drinkag1.com/about-ag1/ingredients/ctr
    • Scott Adams
      Before the rise of social media we were well known by a lot of doctors and were recommended by many, especially our Safe & Forbidden Lists, but as doctors get younger and younger this is probably not happening as much as before. 
    • nataliallano
      Thanks Scott I will definitely check my vitamins and minerals to see what I am missing so then I can supplement. I was very concern about my Meniers syntoms and i tryed to find some alive. Now im just realizing that my celiac is provably the root cause of my Meniers none of the 12 doctors I saw told me anything about this.  This web site is so helpful, thanks to people like you we can get answers. 
    • Wheatwacked
      Vitamin D deficiency can contribute to rib pain. Chest pain stemming from the ribs ccould be costochondritis, which involves inflammation of the cartilage connecting the ribs to the breastbone. This pain can range from mild to severe, potentially mimicking heart attack symptoms, and is often worsened by breathing or movement. Other potential causes include muscle strain, rib fractures, or even referred pain from other conditions.  It will also help to chose vegetables low in omega 6.
×
×
  • Create New...