Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease With Hypoglycemia


Karl Otto

Recommended Posts

Karl Otto Explorer

This morning, I was attempting to make a gluten-free cake from all gluten free ingredients. The cake mix stated gluten free all over it. It was from Betty Crocker. After, the cake was done, I started cutting it up into pieces. There were a piece or two of cake stuck to the knife blade. So, I decided to eat it and maybe just ver small piece, half teaspoon size. I went on on about the business of finishing the cake. Within 10 minutes, I started having a smothering choking spell, and, it reminded me of am asthma attack. I rinsed my month with water and, took my regular food and hoped it would not go any futher. Thank God, it was a very, very small piece of yellow cake. There was no eggs, or milk in the cake. So, what the heck happened to me? My regular diet plan never causes a reaction that way. Why woulf a simple piece of gluten free cake do that to me?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

I do not know what caused your reaction, however I thought I could often my observations: The gluten-free BC cake maxes I have made do have eggs you are supposed to add to them. If you didn't add eggs or used some type of egg-replacer, the recipe would be very dry. The mix is dry even with the eggs added. The only thing I can think of IF this was not an allergic reaction is perhaps the cake mix was old? Some of my stores were closing out the gluten-free BC mixes because they didn't sell. I looked at the expiration date and it was past date.

The reason I clicked on this topic however is that I have hypoglycemia and multiple food allergies too. I find my hypoglycemia is least noticable when I eat a diet low in carbs and low in sugar. I still eat every few hours but I try to eat more protein than I do carbs. If I eat too many carbs, or don't eat about every 3 hours I will end up dizzy, light-headed, nauseus, with blurred vission. Eating lots of protein from meats, nuts, eggs, etc. with lots of cooked vegetables that are easy to digest. Eating very few carbohydrates means I can usually go longer without getting light-headed. Eating some cake (or cake batter) is sure to guarentee my blood sugar is going to spike and then drop off suddenly. So I only have gluten-free cake on my birthday, but plan to not be able to do much after that.

Karl Otto Explorer

Let me tell you all something about the good old US Government and the Veterans Administation did for me in life or caused ?

First off, for years they VA & US Army gave me all sorts and kinds of Anti-Anxiety Meds. Which, were totally wrong for me according to the civlian doctors I have seen in the past. I had to take these meds for 15 - 20 yrs. In there opinion it gave this condition to me.

Second, the VA & US Army doctors gave me Epilepsy meds of all kinds, never did stop any seizure activities in fact made them worse. Again, the civilian doctor blame the taking of the meds for 15 - 20 yrs in cause seizures to be worse. VA & US Army claimed the did not know my present condition.

Third, I now, have no teeth in my head accept my front teeth only top and bottom 12 teeth in all and, they are now in danger of coming out, too. The oral surgen, whom done work on my gums and teeth were shocked at what they saw in my mouth. My gums and jaw bone decentigrated into nothing and, I have no gum ridges to place false teeth on. So, I get no false teeth ever. I have to grind up all my current food in order to eat anything. This could have all been avoid according to the oral surgen if I had have been told and treated for my present condtions. Celiac Disease & Chronic Hypoglcemia.

My teeth as well as my sons teeth died from the inside out that, means the pulps in all teeth died first leaving the outside of the teeth nice and shinny and white, giving the impression of well kept teeth. Then, the teath all crumbled and broke appart in my mouth one at a time. Again, this could have all been avoided if, I would have been receiving proper treatment of Celiac and Hypoglycemia. Thank so much Uncle Sam.

Fourth, I have to keep a log book ever darn day of my life, to write down blood sugar levels, how often eat, and my activities during the day. I do not get any regular sleep due to have to eat 6 times a day, every 4 hours all during the night and day. Never getting but, 3.5 - 4 hours at a time of sleep. I wake up spend 15 - 20 minutes prparing the meals then, repeating this process every 4 hours, 6 times a day. All of this in order to live.

My yougest son and oldest one now have to do this as I do according to their doctors. This is only the tip of the iceberg, of things I go through daily.

Dizzy spells, blurred vision, lightheaded, foggy mind patterns sometimes, neuropathy in fingers and toes, seizures, tired allot, weak spells, loss of weight, under weight, no muscle tone or muscles on body, have to lay on mattress overlay due to bed sores trying to form, cannot sit in regular chairs due to no meat or muscles on my behind. Found out, 7 yrs ago, the US Government knew all about my condition when, I accidently was given copy of my medical records from the VA Hospital. A disgruntled worker at the VA, send me my official copy before she was fired. Papers dated back to 1985.

Jestgar Rising Star

Let me tell you all something about the good old US Government and the Veterans Administation did for me in life or caused ?

None of this is different from what many people here have experienced in the civilian medical system.

kareng Grand Master

Let me tell you all something about the good old US Government and the Veterans Administation did for me in life or caused ?

You posted with a title of "celiac disease with Hypoglyvemia". Yet when someone does try to discuss thier own Hypoglyvemia & solutions, you start ranting about the goverment. This is not the forum for a rant against the US goverment or any goverment.

GlutenFreeManna Rising Star

You posted with a title of "celiac disease with Hypoglyvemia". Yet when someone does try to discuss thier own Hypoglyvemia & solutions, you start ranting about the goverment. This is not the forum for a rant against the US goverment or any goverment.

I agree. Karl, you seem very bitter against the military and government. The government did NOT cause your health problems (at least not celiac and hypoglycemia). What you went through with military doctors is NO DIFFERENT than what many of us here went through with civilian drs. Many others have told you this in other threads and you ignore them and only want to talk about how bad they screwed you over. It seems to me you only want attention coming here and saying the same things again and again. If you wanted help or to hear from people with similar problems and how they deal then you would have responded differently. I have tried to be helpful, and tried to give you the benefit of the doubt that the illness was affecting your ability to communicate, but I will no longer respond to your posts after reading this one. As the daughter of a veteran I find your constant diatribe against the military very offensive.

ravenwoodglass Mentor

Let me tell you all something about the good old US Government and the Veterans Administation did for me in life or caused ?

I have to agree that this constant subject matter is most offensive. Thank you for your service but the military did not cause all your problems. Perhaps some counseling to get over your anger would be in order. You ignore any suggestions people give you in relation to your health issues, which many of us have dealt with successfully but continue to blame all your problems on the military and VA. You do need help but not the kind we can give you here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 5 months later...
Curly8 Newbie

This morning, I was attempting to make a gluten-free cake from all gluten free ingredients. The cake mix stated gluten free all over it. It was from Betty Crocker. After, the cake was done, I started cutting it up into pieces. There were a piece or two of cake stuck to the knife blade. So, I decided to eat it and maybe just ver small piece, half teaspoon size. I went on on about the business of finishing the cake. Within 10 minutes, I started having a smothering choking spell, and, it reminded me of am asthma attack. I rinsed my month with water and, took my regular food and hoped it would not go any futher. Thank God, it was a very, very small piece of yellow cake. There was no eggs, or milk in the cake. So, what the heck happened to me? My regular diet plan never causes a reaction that way. Why woulf a simple piece of gluten free cake do that to me?

Thanks for posting this. I used the Betty Crocker yellow cake mix and combined it with a can of plain Libby's pumpkin and one egg (which I am fine with), I noticed I quickly developed a headache and scratchy throat. I had the same reaction in the past when I have used Bob's Red Mill gluten free flours with various recipes and also with Betty Crocker's brownie mix. I am baffled as to what it could be that is causing this? I just threw the rest of my pumpkin bread away. I seem to be fine with Udi's breads though. Wondering if anyone else is having these reactions. I am a self diagnosed gluten intolerant person, so not sure if I have Celiac or not, gluten/dairy free for almost 3 years. Any suggestions on alternative flours would be great as I would love to make some cookies for the holidays.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    2. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      GI DX celiac despite neg serology and no biopsy

    3. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

    5. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748

    kygirlsusan
    Newest Member
    kygirlsusan
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.