Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Wasting...

rbeccatexas

Recommended Posts

rbeccatexas Rookie
rbeccatexas
Posted

I've noticed lately that I've been losing the padding on my body. Has anyone else experienced this? I know our disease is a malabsorption disease so I thought this might be what's causing it. I was diagnosed in 2009. What do yall think?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marc49 Explorer
Marc49
Posted

I've noticed lately that I've been losing the padding on my body. Has anyone else experienced this? I know our disease is a malabsorption disease so I thought this might be what's causing it. I was diagnosed in 2009. What do yall think?

I assume you are female, or I would suggest low testosterone.

There are many causes of muscle wasting. Some have to do with malabsorption, and some are neurologically based.

Certain drugs can cause this as well, including statins.

Your protein levels in blood work should tell you if you are absorbing enough protein or not though.

rbeccatexas Rookie
rbeccatexas
Posted
  • Author

I assume you are female, or I would suggest low testosterone.

There are many causes of muscle wasting. Some have to do with malabsorption, and some are neurologically based.

Certain drugs can cause this as well, including statins.

Your protein levels in blood work should tell you if you are absorbing enough protein or not though.

Thanks Marc.

Yes, I'm a female. I was just wondering if anyone else is experiencing this due to the Celiac. If it is the norm.

Marc49 Explorer
Marc49
Posted

Thanks Marc.

Yes, I'm a female. I was just wondering if anyone else is experiencing this due to the Celiac. If it is the norm.

I have no doubt that celiac can cause muscle wasting due to malabsorption of protein and necessary nutrients. Just pointing out that a lot of other things can cause it as well.

As before though, if your protein levels in your general bloodwork are good then that should rule out malabsorption I would think. I lost about 10 pounds of muscle myself due to low testosterone that seems to have largely been caused by my gluten intolerance.

My levels have come up significantly since I have been gluten-free, and I am gaining muscle back slowly. I just had my regular blood work done last week and my protein levels were fine,.....about mid-range. I have also been taking 5,000 IU's of Vitamin D3 for a few months now. I was as low as 19, and now I am about 45. I want to be between 60 and 80 for a goal though.

eatmeat4good Enthusiast
eatmeat4good
Posted

I had severe muscle wasting before diagnosis. If it is happening after you have been gluten free for a couple of years I would have the Dr. look for possible causes. Make sure you take your vitamins and that you are consuming enough protein...and that you aren't getting gluten of course. I hope will post what you find out.

rbeccatexas Rookie
rbeccatexas
Posted
  • Author

I had severe muscle wasting before diagnosis. If it is happening after you have been gluten free for a couple of years I would have the Dr. look for possible causes. Make sure you take your vitamins and that you are consuming enough protein...and that you aren't getting gluten of course. I hope will post what you find out.

Thanks yall. I actually have not been to the Dr since my diagnosis as I have no health insurance right now. I've read on here before where someone was losing the padding on their feet, hands and face. That is happening to me as well. It seems like I have alot more fat on my stomach (bloating) and thighs (losing the padding on my butt and hips). But I can feel the bones right underneith my skin on my arms.

I'm going to try to get on a strength building routine when I start working in a couple of months to see if that helps. Do yall ever crave fat....like fat off of a piece of steak (not the grissel)? I've been doing this for a while now. I know we crave what our bodies need, but my family thinks I'm weird to want this. And I never craved it before. Sometimes I feel like I'm going crazy with this disease and I wish I could just jump out of my body.

cyberprof Enthusiast
cyberprof
Posted

Thanks yall. I actually have not been to the Dr since my diagnosis as I have no health insurance right now. I've read on here before where someone was losing the padding on their feet, hands and face. That is happening to me as well. It seems like I have alot more fat on my stomach (bloating) and thighs (losing the padding on my butt and hips). But I can feel the bones right underneith my skin on my arms.

I'm going to try to get on a strength building routine when I start working in a couple of months to see if that helps. Do yall ever crave fat....like fat off of a piece of steak (not the grissel)? I've been doing this for a while now. I know we crave what our bodies need, but my family thinks I'm weird to want this. And I never craved it before. Sometimes I feel like I'm going crazy with this disease and I wish I could just jump out of my body.

Even though you aren't craving it, I'd try eating avacados, extra olive oil and nuts, if you aren't intolerant of these. Have you tried flax oil or fish oil - capsules or liquid? These oils are very good and help with the healing. I'm not saying not to eat beef fat, just that these are really good for celiacs.

And are you menopausal? Or post-menopausal? It could be that too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rbeccatexas Rookie
rbeccatexas
Posted
  • Author

Even though you aren't craving it, I'd try eating avacados, extra olive oil and nuts, if you aren't intolerant of these. Have you tried flax oil or fish oil - capsules or liquid? These oils are very good and help with the healing. I'm not saying not to eat beef fat, just that these are really good for celiacs.

And are you menopausal? Or post-menopausal? It could be that too.

I've been craving avacado too. I must need good fat. I'm 40. My OBGYN says I'm not perimenopausal since I get my cycle on the dot each month. Idk, I chalked my moodiness up to diet. So I don't think that's it. Thanks for all of your input everyone.

CarolinaKip Community Regular
CarolinaKip
Posted

I've noticed lately that I've been losing the padding on my body. Has anyone else experienced this? I know our disease is a malabsorption disease so I thought this might be what's causing it. I was diagnosed in 2009. What do yall think?

I loss muscle due to celiac. I didnt know it at the time, but my body paid a high price. I lost a lot of muscle and weight due to my celiac. I won't go TMI, but it was bad! Now being a year gluten-free, I'm regaining some of it back! If you haven't, perhaps look at what you are eating,add exercise, and vitamins. Also check with your DR. Some blood work for what vitamins you are lacking.

  • 3 weeks later...
Neshema1 Newbie
Neshema1
Posted

Check out your creatinine levels to see if they are low. As would be the case with muscle wasting. You might want to be checked for mitochondrial myopathy as it can be associated with celiac & muscle wasting, but then agAin so can malnutrition & low protein. Good luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    2. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    3. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    4. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    5. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748
    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.