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Eating Gluten After Being Gluten Free


Debbie-nibbles

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Debbie-nibbles Newbie

My Dr. thinks I might br gluten intolerant, so I started the diet. Yes I do feel better then I have in a while but I thought I would try gluten again, having a french dip and fries. Today I feel like I have the flu, my stomach is very queasy and I'm very tired. I also don't feel like doing anything at all, including thinking about fixing food at all. What has anyone else felt after getting gluten after being gluten free?


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mytummyhurts Contributor

A lot of people have said that they get really, really sick. I have been gluten free for a few months and about a month again I accidentally ate something that was totally full of gluten and nothing happened. :huh: Recently, I've been feeling kind of sick again and think I might be getting something in my system. I just feel nauseous a few times a day, especially when I first wake up.

KaitiUSA Enthusiast

I feel like crap usually for a good 2 weeks after being glutened. I usually get feeling tired, nausea, anxiety, etc. It is not a fun feeling.

Debbie-nibbles Newbie
My Dr. thinks I might br gluten intolerant, so I started the diet. Yes I do feel better then I have in a while but I thought I would try gluten again, having a french dip and fries. Today I feel like I have the flu, my stomach is very queasy and I'm very tired. I also don't feel like doing anything at all, including thinking about fixing food at all. What has anyone else felt after getting gluten after being gluten free?

<{POST_SNAPBACK}>

And does gluten symtoms involve pressure in the face, hoarseness, crouppy feeling?

Debbie-nibbles Newbie
My Dr. thinks I might br gluten intolerant, so I started the diet. Yes I do feel better then I have in a while but I thought I would try gluten again, having a french dip and fries. Today I feel like I have the flu, my stomach is very queasy and I'm very tired. I also don't feel like doing anything at all, including thinking about fixing food at all. What has anyone else felt after getting gluten after being gluten free?

<{POST_SNAPBACK}>

And does gluten symtoms involve pressure in the face, hoarseness, crouppy feeling?

cdford Contributor

Scratchy throat, splitting tongue, sinuses whacked, bellyache, headache, V and D, low grade fever, muscles ache...oh about two weeks worth each time now with a small accidental glutening like some cross contamination. The one last year that got me was a major incident that took eight months and multiple hospital trips to get over. I hope never to get hit that badly again.

jenvan Collaborator

major brain fog, head ache, fatigue, c or d, depends, all for about a week and a half or so...


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skbird Contributor

Migraine, heartburn, depression, unexplained sobbing, constipation, nausea, flashes of anger, fatigue, saddness, lasts from a week to two weeks. Also variable eating conditions - will feel like crap most of the time but sometimes my stomach will seem almost normal, and all symptoms will subside, until I eat something ungentle (coffee, chocolate, anything fried, anything greasy, cheese, sugar) and then it all comes back again. It's frustrating when I start feeling better and are sick of broth and rice and bananas and basic foods, eggs, salmon, and then I eat something more normal and get sick all over.

Pretty much now if I start crying for no reason I know it's gluten. If I haven't put the pieces together by then, that seals the diagnosis for me. And all this can happen from eating the equivalent of a bread crumb or two... it's a major bummer.

Even with all that though, I feel so much better the rest of the time, I know there's hope. I'm kind of down today because I got glutened again yesterday at lunch and it was a rough night.

Steph

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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