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Eating Gluten After Being Gluten Free


Debbie-nibbles

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Debbie-nibbles Newbie

My Dr. thinks I might br gluten intolerant, so I started the diet. Yes I do feel better then I have in a while but I thought I would try gluten again, having a french dip and fries. Today I feel like I have the flu, my stomach is very queasy and I'm very tired. I also don't feel like doing anything at all, including thinking about fixing food at all. What has anyone else felt after getting gluten after being gluten free?


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mytummyhurts Contributor

A lot of people have said that they get really, really sick. I have been gluten free for a few months and about a month again I accidentally ate something that was totally full of gluten and nothing happened. :huh: Recently, I've been feeling kind of sick again and think I might be getting something in my system. I just feel nauseous a few times a day, especially when I first wake up.

KaitiUSA Enthusiast

I feel like crap usually for a good 2 weeks after being glutened. I usually get feeling tired, nausea, anxiety, etc. It is not a fun feeling.

Debbie-nibbles Newbie
My Dr. thinks I might br gluten intolerant, so I started the diet. Yes I do feel better then I have in a while but I thought I would try gluten again, having a french dip and fries. Today I feel like I have the flu, my stomach is very queasy and I'm very tired. I also don't feel like doing anything at all, including thinking about fixing food at all. What has anyone else felt after getting gluten after being gluten free?

<{POST_SNAPBACK}>

And does gluten symtoms involve pressure in the face, hoarseness, crouppy feeling?

Debbie-nibbles Newbie
My Dr. thinks I might br gluten intolerant, so I started the diet. Yes I do feel better then I have in a while but I thought I would try gluten again, having a french dip and fries. Today I feel like I have the flu, my stomach is very queasy and I'm very tired. I also don't feel like doing anything at all, including thinking about fixing food at all. What has anyone else felt after getting gluten after being gluten free?

<{POST_SNAPBACK}>

And does gluten symtoms involve pressure in the face, hoarseness, crouppy feeling?

cdford Contributor

Scratchy throat, splitting tongue, sinuses whacked, bellyache, headache, V and D, low grade fever, muscles ache...oh about two weeks worth each time now with a small accidental glutening like some cross contamination. The one last year that got me was a major incident that took eight months and multiple hospital trips to get over. I hope never to get hit that badly again.

jenvan Collaborator

major brain fog, head ache, fatigue, c or d, depends, all for about a week and a half or so...


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skbird Contributor

Migraine, heartburn, depression, unexplained sobbing, constipation, nausea, flashes of anger, fatigue, saddness, lasts from a week to two weeks. Also variable eating conditions - will feel like crap most of the time but sometimes my stomach will seem almost normal, and all symptoms will subside, until I eat something ungentle (coffee, chocolate, anything fried, anything greasy, cheese, sugar) and then it all comes back again. It's frustrating when I start feeling better and are sick of broth and rice and bananas and basic foods, eggs, salmon, and then I eat something more normal and get sick all over.

Pretty much now if I start crying for no reason I know it's gluten. If I haven't put the pieces together by then, that seals the diagnosis for me. And all this can happen from eating the equivalent of a bread crumb or two... it's a major bummer.

Even with all that though, I feel so much better the rest of the time, I know there's hope. I'm kind of down today because I got glutened again yesterday at lunch and it was a rough night.

Steph

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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