Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Retail Therapy - Celiac Style

Poppi

By Poppi
in Coping with Celiac Disease

Recommended Posts

Poppi Enthusiast
Poppi
Posted

So I'm mildly peeved at my husband. His work is sending him away on a course and he's floating about the house all happy that he gets to spend a whole week in Ottawa in a nice hotel with $100 a day for food and entertainment. :angry: I'm insanely jealous. I want to get away from the kids and home too.

So in a fit of poutiness I just spent a bunch of money ordering cake mixes, cookies and donuts from Kinnikinnick. :huh: I probably shouldn't have done that. It's funny because a few months ago I would have spent that $100 on yarn or spinning fibre but now it's bread, donuts and cake mix. :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

I know the feeling. Whenever I come across a new food I cannot eat--either when I discovered I couldn't have soy and had to give away/throw out 1/3 of my food, or whenever I discover a new thing that upsets my stomach for some reason--I go grocery shopping and spend at LEAST $50 on food that I CAN have. Doesn't stop the frustration of wasting money on food it ends up I can't have anyway, but it makes me feel a little better, anyway.

adab8ca Enthusiast
adab8ca
Posted

sometimes you just have to treat yourself!!!

Poppi Enthusiast
Poppi
Posted
  • Author

But I want to go to Ottawa. A whole week without kids or laundry. :angry: No fair.

K8ling Enthusiast
K8ling
Posted

Oh man a whole week??? I'm only 3 months into a 9 month deployment and I keep wishing I had a DAY... man.. what would I do with a week by myself??

*swoon*

love2travel Mentor
love2travel
Posted

My husband gets to go to places such as London, Paris and San Francisco for meetings for about ten days at a home with his job so I truly understand! Sometimes they invite spouses, too, which is wonderful. They get SPOILED at these things. In Paris next year they have rented the entire Palace of Versailles for dinner! We've been aboard aircraft carriers, in the Justice rooms in London, etc. Absolutely amazing. Plus the spouses get to go to castles, on garden and home tours, take cooking classes, go to vineyards...thankfully all that happened before I was diagnosed! But next year in Paris will be interesting with celiac disease, going to the best restaurants. Knowing their management and travel teams I will be very well taken care of.

Anyway, somehow I justify my deserving things when I have accomplished something or when I have bad fibromyalgia/herniated disc pain days (which is pretty much 24 hours a day) or when I am alone. When that happens, my husband orders me several books from my Amazon wishlist. He does this each time he goes away. He is too sweet! I don't really splurge on gluten-free stuff but I DO splurge on great artisan cheeses, decadent truffle dishes, fabulous sea salts, exotic spices... On the other hand, it does not take much to please me! I love the small things, too. :)

So, enjoy your treats because you really do deserve it! :P You must have at least two treats per day so that is 14 treats (or batches of treats!).

bbuster Explorer
bbuster
Posted

So I'm mildly peeved at my husband. His work is sending him away on a course and he's floating about the house all happy that he gets to spend a whole week in Ottawa in a nice hotel with $100 a day for food and entertainment. :angry: I'm insanely jealous. I want to get away from the kids and home too.

So in a fit of poutiness I just spent a bunch of money ordering cake mixes, cookies and donuts from Kinnikinnick. :huh: I probably shouldn't have done that. It's funny because a few months ago I would have spent that $100 on yarn or spinning fibre but now it's bread, donuts and cake mix. :lol:

You go girl!!!

It's funny, my husband took the kids and they are all visiting his family for a week. So besides my regular work schedule (9-10 hrs M-F) what do you think I am doing? Mowing the lawn, pulling weeds, mulching trees, planting flowers, organizing and cleaning the pantry, drawers, closets; house painting projects, carpet cleaning, stocking up on groceries, laundry, various other cleaning projects, and doing all of the planning for our vacation. And of course reading up on forum topics! Well, I also called my mom, coordinated a family gift for an upcoming nephew's wedding, and collected and donated gluten-free items for tornado victims in Joplin (not too far away from here). So see, it's not ALL about me (LOL).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748
    tessycork47
    Newest Member
    tessycork47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.