Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Story.: Step One Or Something Like That

RL2011

By RL2011
in Coping with Celiac Disease

Recommended Posts

sb2178 Enthusiast
sb2178
Posted

Green's is good, and worth the $$. It's very much like the Belgian ales (Chimay and the like) that were my favorites. First one I've tried, as I love a good dry cider.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RL2011 Rookie
RL2011
Posted
  • Author

More rambling about my gluten-free journey:

In the past 12 days I have not consumed any gluten. I noticed the past few nights that I have not slept much and while I have problems getting out of bed I have not felt totally exhausted during the day. Hope this doesn't last too long or I will have to run across the country like Forest Gump.

I have not been eating all that much (except for the evil cookies I made in the middle of the night the night before last) and continue to feel a little bloated. Not sure what to expect next regarding my energy level and my mood.

Last night I met a few friends out at a bar/ restaurant and while they ate I just had a glass of water and a Patron on the rocks. I imagine that eating out is going to be my biggest challenge. While I know that my gluten-free diet change with still drinking a little bit of tequila or wine is probably not wise for my gut I will not change that unless I see it causes further harm. I guess we all vary slightly in how we react to certain things physically or mentally beyond the certainty of the common immunological response to gluten.

I know that I will continue to kick this gluten diet stuff in the ass and that I will have a few setbacks along the way. All in all...I have continued to feel better day by day and as of this day my brain fog is pretty much gone.

My gluten-free life moves on...

notme Experienced
notme
Posted

More rambling about my gluten-free journey:

In the past 12 days I have not consumed any gluten. I noticed the past few nights that I have not slept much and while I have problems getting out of bed I have not felt totally exhausted during the day. Hope this doesn't last too long or I will have to run across the country like Forest Gump.

I have not been eating all that much (except for the evil cookies I made in the middle of the night the night before last) and continue to feel a little bloated. Not sure what to expect next regarding my energy level and my mood.

Last night I met a few friends out at a bar/ restaurant and while they ate I just had a glass of water and a Patron on the rocks. I imagine that eating out is going to be my biggest challenge. While I know that my gluten-free diet change with still drinking a little bit of tequila or wine is probably not wise for my gut I will not change that unless I see it causes further harm. I guess we all vary slightly in how we react to certain things physically or mentally beyond the certainty of the common immunological response to gluten.

I know that I will continue to kick this gluten diet stuff in the ass and that I will have a few setbacks along the way. All in all...I have continued to feel better day by day and as of this day my brain fog is pretty much gone.

My gluten-free life moves on...

your sleep will even out :) it goes with the 'withdrawal' - try eating 'plain' - when i first started i did the same thing (not eat much)(ok. nothing lol) then i was amazed at what *didn't* make me sick. i was blaming an awful lot of foods for what turned out to be gluten. then i was like a bottomless pit - hungry, starving! - like every two hours. i pack a snack bag every time i leave the house. i was 5'8" and weighed 97 lbs. in 8 months i have put on 20+ lbs and haven't gone up a clothing size - all muscle replenishment. and butt lol now my pants stay up hahahahaaa you have an awesome attitude, btw - i don't know how the 'meek' deal with this...

RL2011 Rookie
RL2011
Posted
  • Author

your sleep will even out :) it goes with the 'withdrawal' - try eating 'plain' - when i first started i did the same thing (not eat much)(ok. nothing lol) then i was amazed at what *didn't* make me sick. i was blaming an awful lot of foods for what turned out to be gluten. then i was like a bottomless pit - hungry, starving! - like every two hours. i pack a snack bag every time i leave the house. i was 5'8" and weighed 97 lbs. in 8 months i have put on 20+ lbs and haven't gone up a clothing size - all muscle replenishment. and butt lol now my pants stay up hahahahaaa you have an awesome attitude, btw - i don't know how the 'meek' deal with this...

Thanks for your kind words and since you are not single you are banned from describing how nice your butt is. LOL :)

color-me-confused Explorer
color-me-confused
Posted

Hey Jersey Girl! I have tried Redbridge and do not find it refreshing and crisp. The beer I have always liked are Heineken, Corona, Coors, and Guinness. If I cannot find a gluten-free beer similar to say Heineken Lite then I will look for a partner and buy or start a small craft brewery and do it myself.

Do you still live in NJ?

I know someone who is attempting to brew a gluten free IPA. He's an experienced brewer, I am looking forward to the results!

RL2011 Rookie
RL2011
Posted
  • Author

I know someone who is attempting to brew a gluten free IPA. He's an experienced brewer, I am looking forward to the results!

I would be interested in the end results of his efforts. We need some very good gluten-free beer!

RL2011 Rookie
RL2011
Posted
  • Author

I am not the best at following my own advice but why is it that I see/ hear many people faced with changes to their diet from celiac disease or gluten intolerance that they try to duplicate the poor diet they had before by eating gluten-free junk food/ deserts.

I had some gluten-free ice cream yesterday and made myself a promise that I will only allow one dessert per week for myself. I started and will continue to only eat basic whole foods and try to stay away from processed or junk foods except for my one a week dessert.

I am not trying to be mean to anyone here i just don't think all the talk about comfort foods is a good idea. I plan to eat minimal foods to sustain my life and not eat for social or other mental reasons.

I apologize in advance if my comments were too harsh for anyone.

I was going to post this in another thread but I did not want to offend...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,074
    • Most Online (within 30 mins)
      7,748
    Amy1620
    Newest Member
    Amy1620
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.