Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fyi To New Posters


jenvan

Recommended Posts

jenvan Collaborator

Hey there! I wanted to drop a line to the new posters about searching through old posts... that was something I didn't figure out right away when I was new to the board. Sometimes its beneficial to do a search through old posts before making a new one. Often times the answer you are looking for is already on the boards, and you may find it pretty easily. ie. if you are trying to figure out what shampoos are gluten free, search for 'shampoos'. And it helps with board traffic as well. Lastly, it allows you to post to an old topic that's relevant if you want. Pretty easy... Anyway, just wanted to throw that tip out. Welcome to ya'll ! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



watkinson Apprentice

Hi Jenvan

Good tip! :) I have wanted to let people know the same thing. :)

Good information!

Wendy

Jonesy Apprentice

:D

Thanks Jenvan

I'm not a new poster, but it took a while before I got the drift of the search and how to do it.

I read your post out of curiosity and you answered a question I didn't know I had. Some of the posts are so old, and I wondered if it would be okay to reply to a post that old. Some of the ones I've enjoyed go clear back to good old 2004.

Next time, I'll go ahead and reply no matter how old it is. :rolleyes:

I enjoy all your posts - very helpful, and usually short and to the point. ;)

Good tip.

Maryellen

Carriefaith Enthusiast
Some of the posts are so old, and I wondered if it would be okay to reply to a post that old.
I actually like seeing the older posts. I've replied to old posts. For example, if I need gluten-free make-up, shampoo, suncreen, ect. I usually look through the old posts first and then I will post my question in the old post.

jenvan, I think that is a very good suggestion.

ianm Apprentice

It seems to me that when a newbie signs up they should be directed to an FAQ page with all of the common questions. This should happen before they are given access to the message board. The same questions get posted over and over again. Not to pick on the newbies but it really clutters things up. The search function on this message board is rather clunky and does not seem to work very efficiently.

Some things to consider when upgrading the website in the future.

pixiegirl Enthusiast

I like the idea of a newbie being directed to a page just for them... with links and maybe common quesstions.

I know when I first got here the whole message board concept was fairly new to me and like speaking greek, I didn't know how to do it, so I couldn't have searched even if I had known you could do that. It took me months to see the "My Assistant" thingy and another few weeks to figure it out.

So as much as I hate reading the same questions over and over sometimes people are so overwhelmed with the diagnoses of a life long disease and may not be as adept as some of you all on the computer... well they don't search and just ask.

Which is why a newbie page they are forced to go thru would be good, had I been sent there initially I would have checked out the food lists, the restaurants, the products and I would not have been so frightened. But lastly I wanted to connect with some people that also had Celiac.

But anyhow I'm sure you all know this but still when I read another can I have xxxx question instead of saying "on no, not again" I try and be patient.

Best, Susan

jenvan Collaborator

I agree with the input here-thanks all! Even a basic list you have to read through. Like--here are the basics of the site and some suggestions, and a sort-of outline about the process of celiac disease, options for getting diagnosed, food lists--how to elminate gluten from diet, cking products as well, associates illness, recover monitoring tips... I know we posted a discussion about this previously as well, but I guess no one ever moved on it ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.