Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Withdrawal


josh052980

Recommended Posts

josh052980 Enthusiast

I've been 100% gluten free for 3 weeks now, and last week out of nowhere I started feeling like I was having very mild glutening symptoms... For me when I get glutened I seem to get bloated, nauseous and have headaches and general body aches. It hasn't been really crazy bad, just enough to annoy me and not feel tip top like I have for weeks now. I'm also wondering if slight amounts of stress (nothing bad, just the normal work week stresses) and that heat wave last week could make things worse. Anyone else go through anything like this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Poppi Enthusiast

Probably not withdrawal since you should be past that.

My guess would be that you are becoming more sensitive as you heal and your system cleans itself out. You may now be reacting to the type of low grade contamination that comes from non-stick pots or older wooden utensils. Maybe crumbs or flour residue from a shared kitchen?

That happened to me. A month into being gluten free I started to get sick again. I got rid of my old non-stick pots, baking pans and wooden and plastic utensils and cutting boards. Replaced everything with stainless steel, glass or ceramic and I started to get better again.

Jeff In San Diego Rookie

I've been 100% gluten free for 3 weeks now, and last week out of nowhere I started feeling like I was having very mild glutening symptoms... For me when I get glutened I seem to get bloated, nauseous and have headaches and general body aches. It hasn't been really crazy bad, just enough to annoy me and not feel tip top like I have for weeks now. I'm also wondering if slight amounts of stress (nothing bad, just the normal work week stresses) and that heat wave last week could make things worse. Anyone else go through anything like this?

Josh, a couple things here...

1) how did you go gluten-free? Was it by removing gluten, or by substituting gluten free alternative products for the things you used to eat that had gluten in them? Could be a reaction to something new you have added to your diet to replace the gluten-laden previous menu items. Things like soy products, more dairy, etc. Look over the new things you have added to your diet over the past 3 weeks and see if any of them might be the cause.

2) at about 3 weeks, some of us experience some new GI symptoms which we have surmised are caused by the nerves in the intestines starting to heal and send lots of confusing data back to your brain that has been missing for several years while your intestines were damaged. Week 4 thru 8 were miserable for me in this way. It looks like you are a lot younger than me, so probably had less intestinal damage to start with, so hopefully it won't be that bad for you.

Just cut out all non-essential processed gluten-free stuff (gluten free pretzels and cookies pasta and also soy milk and dairy) -- and in general, just hang in there. It does get better with time.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...