Symptoms Like Tourettes In Newly Diagnosed 9Yr Old

[Mummyto3]

Since diagnosis last week, I feel like my daughters getting worse with her behaviour. For over a year she's been making strange noises and jerky movements. I was just wondering if this is part of taking in gluten. She'll suddenly burst out with a high pitched scream or make other odd (loud) noises, for no reason. She'll also through her arms up in the air or throw herself on the floor (not in a tantrum) then jump up again. She can also be very hyper. Noticed this especially yesterday after having tinned spaghetti on toast (both with gluten, told to stay on it for biopsy). Everytime this happens, I just think, why on earth does she do that???

She's also gotten some sort of rash on the back of her knee which she thinks was her school skirt irritating her when she was playing, which sounds a bit odd. Its very itchy and scabby now. DH?

[domesticactivist]

My daughter has had Tourette's since she was a toddler ( she's 12 now). We went gluten free in November but then put her back on for celiac testing (negative blood and genetics) then took her back off and our whole family did GAPS starting at the end of January.

Her tics got worse at first gluten free but then improved. With the early stages of GAPS her tics got much better. Now that we are on the full diet they are back. I think the increased sugar (from fruit and honey only) may be to blame.

[domesticactivist]

What does the rash look like?

[Mummyto3]

It looks like a graze. Like if you fall over and scrape your knee, except hers is on the back of her knee. When she was 2 or 3 she broke out in hives all over her body on two occasions. The dr was confused as to what it could be, looked it up in a book, and said it was an allergic reaction. It only happened twice and never again. I've also had a bad case of hives (looked different to hers)last year. Dr (different one), didn't know what they were, I had to look online. I'll be tested for coeliac on Friday.

[domesticactivist]

Hm. It doesn't sound like DH to me, but I'm far from an expert. As I understand it, DH has distinct blisters like chicken pox or other herpes viruses.

Could it be eczema? Eczema is common in areas like that and does itch horribly, and could have been irritated by her skirt like she said. It is also common in people with allergies. My son used to get it all the time. My partner has it badly on her hands. Her hands crack and bleed when it is bad. GAPS has helped it, but it's still not totally gone. I imagine in a spot that's always bending cracks could worsen and look like a scrape.

We have a friend whose eczema got infected with staff, so that was a double whammy. If it doesn't clear up with the dietary changes, I'd check it out with a dermatologist.

[Medusa]

I know when my eldest has been accidentally glutened because her behaviour gets so odd - she gets loud, agressive and hyper and this is wierd, makes loud sudden noises for no apparent reason. On the occaisions when she has been severely glutened she passes out and suffers convulsions - there's no doubt in my mind that gluten can have severe neurological side effects in sensitive individuals.

The itchy rash could well be eczema - a scratchy label in clothing can be enough to set it off. DH looks like "mini chickenpox" and is super itchy. Changing laundry powder for something milder (without enzymes) and skipping soap for a bit can help, as can a good moisture rich skin cream (hemp oil is great) and flaxseed oil food supplements. We found that our eczema pretty much cleared up once we went gluten free.