Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Behavior Signs In Teen


My3B's

Recommended Posts

My3B's Rookie

I was diagnosed 2 years ago and began a gluten free diet. My 2 youngest, who had symtpoms, were also started gluten-free but my 13 year old was not showing any symptoms and his bloodwork came back normal but at the high end of normal. He is now almost 15 and we had a very bad year with school this year. I was wondering if anyone else experiences these symtpoms with their kids.

He is the world's worst procrastinator, has a big problem with organization, has had trouble with "daydreaming" and not paying attention in school. Lots of "I forgot" about that assignment. Losing his planner, project etc. Just can't seem to stay focused and get it together this year. Gone from A's and B's to C's and mostly D's. He is very bright but has been making comments that we think he is smarter than he is and are simply expecting too much but every teacher comments on how he is not working up to potential. We have tried all kinds of reward/punishment strategies, nothing is helping. Chronically has an excuse and tries to put blame onto other people or situations.

There is a sub type of ADD without the hyperactivity and he seems to fit the bill but with my youngest the reason we all got diagnosed was his very severe ADD/ADHD lack of impulse control behaviors, now far improved with gluten-free. I am wondering if this type of ADD may also improve with a gluten-free diet.

He is small for his age and has not started puberty yet. He has an appointment next week and he will have the celic panel run again to see if the numbers have increased. No gastro symptoms.

Anyone else experience this type of thing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

From the age of 7 my son exhibited these same symptoms. ADD without hyperactivity. It came on suddenly though and prior to that was a very normal happy healthy child. He was spacey and daydreamy and couldn't focus. He stopped wanting to be touched and hugged. He sort of functioned like a zombie when he was awake and he slept a lot. All the Dr.'s would say is he needs to exercise. I tried everything. He didn't have gastrointestinal problems with this, but gluten was defintiely the problem. Last October I realized I had Celiac disease and my symptoms quickly started going away. I wondered if his were related. I put him on gluten free diet a month after I started and there was an immediate and drastic change in his personality and functioning. He was acting normal by December...it only took 2 months. He lost his whole childhood to the neurological symptoms of Celiac all because he didn't have gastrointestinal problems. I feel sick about it. He is 16 years old. All we can do is start living our lives now. And that is what we are doing. He can run and exercise and think and he got A's in his second semester this year. I thought I had lost my child. And I did for a long long time. I wish more people knew about the neurological symptoms....gluten ataxia was also present, but no teacher or Dr. ever thought it was anything but uncoordination of adolesence. It makes me sick. I should have googled more. Thank God for this site...he would not be normal yet if not for Scott. Eliminnating gluten made all the difference and very rapidly too. I hope you will take your son gluten free even if his tests don't come up positive. The lask of organization is gone and so is the spaciness and lethargy. It is an amazing difference. I wish I had known. Best of luck to you and your son.

dilettantesteph Collaborator

I have two teenaged children with gluten sensitivity. Their school performance is definitely affected by gluten. At the beginning of this school year my son had problems with gluten cc for about 2 months before we figured it out. The teachers of his two advanced courses wanted to kick him out, he was doing so badly. Now, at the end of the year, with the gluten cc issue solved, he has straight A's.

The problems are all the things you mentioned. Not handing things in, not realizing that they have to do assignments, not paying attention in class etc.

I just hope that my daughter can manage to stay gluten free enough when she is on her own in college in another year. It is a big job since they are both super sensitive.

Medusa Newbie

We found out my eldest was having problems concentrating in school after she got physically sick from cc in the school meals. Only then did her teacher say that no work got done after lunch and that she seemed to be in a dream all afternoon... I started sending a lunchbox with her and her weekly test results improved dramatically, from barely scraping through to full marks. I wish her teacher had talked to me earlier, instead of just getting mad at my daughter for being "lazy and forgetful"!

I always wonder how many other kids are suffering the same fate...

Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,134
    • Most Online (within 30 mins)
      7,748

    Driver
    Newest Member
    Driver
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.