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celia-with-celiac

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celia-with-celiac Apprentice

I am feeling so overwhelmed that I haven't started my gluten-free diet yet and I am still sick as can be. I need tips and things i should do broken down into steps to get started. Are there special containers, strainers or things like that, that maybe I should buy? Also I have the iphone and I downloaded the "Is that Gluten Free" app and the "Scanavert" app. Sometimes they work but finding stores that have gluten-free food is the most difficult thing because I live in Vegas. I guess just an helpfull advice or tips to get me started and less stressed and overwhelmed would be amazing. Thank you so much for your time in advance!!!

~Celia Hilts


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jenngolightly Contributor

I don't have much time, and you'll get lots of answers, but my first "tip" is to not trust your smartphone app 100%. ALWAYS read the ingredients before you buy or eat anything. Manufacturers change their recipes often and those apps don't always catch the changes right away. So use the app as a reference, but learn the "gluten" word-list so you know what to watch for on the ingredient lists. I carried that list with me for the first year because the words that are gluten and aren't gluten are sometimes confusing and obscure.

sb2178 Enthusiast

Okay. Take a deep breath. There's also a thread about the top two tips for the newly diagnosed. Find and read it. Your first concern should be eating gluten free. After you've settled in a little bit, consider nutrition and possibly taking out dairy. I wouldn't worry about it too much during the first couple weeks just because it can be really emotional and difficult to change the gluten aspect that sometimes that takes all your energy. (Dairy is difficult for many recently diagnosed folks to handle.)

Then, go through your standard recipes. You probably have some that are already gluten-free, like:

1) tacos with corn shells instead of flour tortillas, or just nachos

2) rice and beans

3) lentil soup

4) baked potatoes, broiled chicken, steamed veg

5) scrambled eggs with frozen veg and baked potato/sweet potato (omelettes, fritattas, etc)

6) chili

7) baked beans or three bean salad

8) salad with homemade dressing

9) risotto

10) pork chops with two veg and apples (or apple sauce)

11) spring rolls with peanut sauce

The key at first is to cook. Just make plain food that you bought ingredients for like rice, or plain beans, or eggs during the first couple of weeks. Then, add in the spices and condiments. It's fairly easy to buy gluten-free condiments (except for soy sauce) but like the poster above said, READ the label.

In terms of equipment, you need a dedicated toaster, colander, and anything porous like wood or scratched up non-stick. Stainless steel and glass (pyrex) are good investments because you can generally scrub them down if someone goes and makes a flour-laden cake in it.

There's also a thread where people post what they have for dinner/breakfast, so check them out. Some are pretty snazzy (love2travel!) but there's plenty of broiled chicken and steamed broccoli sorts of meals too. Baking is more complicated, but simple cooking isn't too bad as long as you have a few basic cooking skills. There are also LOTS of gluten-free bloggers out there, so look around and see if you can find someone who has similar tastes.

Harpgirl Explorer

I'm new to this whole thing too, and I found that partially converting my daily food was the simple way to go. I like dairy snacks, and found that Yoplait yogurt and Breakstones cottage cheese are safe. My hubby is eating up the last of the Activia because I can no longer touch it. I get annoyed with all the label reading so the biggest thing that I've done is to switch to fresh fruits and veggies. I use to eat mostly canned, frozen and lots of prepackaged meals. It's healthier anyway; less salt and preservatives. With that plus lean meats (I buy them in bulk at Sam's Club then seperate them out and toss them in the freezer), I'm finding that my hunger stays more satisfied. My bloodsugar doesn't seem to be crashing as often. But I do keep a few Soyjoy or Larabars in my bag. I've got 2 little boys and don't want to find myself hungry away from home! ;)

How do you normally eat? It may be easier on you emotionally to try to find substitutes in the beginning.

Marilyn R Community Regular

Using the search engine on the forum has helped me a number of times, and I think you might find it useful too. This forum has literally been a lifesaver for me. No

P.S. My favorite lunch is choppd lettuce (preferably romaine, which has a good shelf life.) Top that with safe tuna (tuna and olive oil is what it should read on the label) or leftover meat or fish from home with chopped veggies on hand, a squeeze of fresh lemon or lime juice, a drizzle of olive oil. Top that with toasted sunflower seeds or safe nuts. You can add dried or fresh fruit too (like romaine with sliced chicken, sliced strawberries, balsalmic vinegar, Olive oil, nuts. All of that is equally good on a bed of gluten-free pastas or wilted spinach with garlic.

Wish you the best! :)

Lisa Mentor

Here is a place to start.

Lisa Mentor

I am feeling so overwhelmed that I haven't started my gluten-free diet yet and I am still sick as can be. I need tips and things i should do broken down into steps to get started. Are there special containers, strainers or things like that, that maybe I should buy? Also I have the iphone and I downloaded the "Is that Gluten Free" app and the "Scanavert" app. Sometimes they work but finding stores that have gluten-free food is the most difficult thing because I live in Vegas. I guess just an helpfull advice or tips to get me started and less stressed and overwhelmed would be amazing. Thank you so much for your time in advance!!!

~Celia Hilts

Until you get familiar with the diet and reading labels, I would recommend www.triumphdining.com - grocery guide or www.CeceliasMarketplace.com. These will get you over the hump, but it's not something to rely upon after a year or so. Things change quickly and ingredient listings may not be current.


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    • trents
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    • catnapt
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    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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