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Jenniferxgfx

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Jenniferxgfx Contributor
Jenniferxgfx
Posted

I'm new here, but I've been reading for awhile and not really posted myself. Your experiences and insight have been really helpful to me.

I've come to realize that gluten (wheat in general) is bad for me, and it's taken some time to get in to see a GI doc to get a biopsy. I finally saw her on the 15th and she scheduled an endoscopy for July 18. Up till the 15th, I'd been eating "gluten lite" for a month or so and was really feeling an improvement in some of my debilitating symptoms (like fibromyalgia pain and asthma), and coming to see how my stomach hurt only after meals that cottoned wheat. I committed to going on a "gluten bender" for the next month, and tried really hard to get in several wheat servings a day. (another symptom is severe gerd with nausea and I've been eating very little for about 18months. I've lost 30% of my body weight in that time, between my appetite, D, and vomitting. It's been hard to eat enough gluten for testing.)

Anyhow! So I got word of a cancellation and I'm having my endoscopy Monday! I've never looked forward to a test before in my life. In fact, I have PTSD from my medical experiences, so this is a pretty big step. I'm so glad to possibly have answers. I've had years of being told I'm too fat, too lazy, too sensitive, and worry too much and if I'd just lose weight, exercise, and suck it up, my symptoms would go away. I have a permanent back injury, but there's a million other things that improve without gluten in my life. You've shown me I'm not the only one, and I'm not a hypochondriac. Regardless of Monday's results, gluten will be out of my life, and my quality of life will improve. Thank you so much for sharing your experiences and understanding!

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Jenniferxgfx Contributor
Jenniferxgfx
Posted
  • Author

Sorry for those typos. I don't have much energy and am online from my phone while resting. Autocorrect has a mind of it's own!

rosetapper23 Explorer
rosetapper23
Posted

You go, girl! Please let us know how your tests turn out...

Hawthorn Rookie
Hawthorn
Posted

I've had years of being told I'm too fat, too lazy, too sensitive, and worry too much and if I'd just lose weight, exercise, and suck it up, my symptoms would go away.

Aren't people just darlings? I've had this too, and thanks to this kind of thing can now add lack of confidence to the list.

The good news is for me at least, off the gluten these symptoms disappeared for me. The weight was starting to come off and I was getting to the point where I wanted to exercise because I felt able to.

Good luck and hope you feel normal again soon :)

mommida Enthusiast
mommida
Posted

I'm wishing you fast and steady healing! I'm glad you have your mind set on going gluten free after the test no matter what the doc may say. Gluten lite may have healed some of the damage that would have diagnosed you.

The most hurtful comments were from doctors pre-diagnoses. Accusations of anorexia, you're too high strung, perfectionist syndrome, depression, and whatever goof ball comment instead of HELPING me.

These doctors would have said stupid crap if you were the perfect weight, over weight, or under weight. The just weren't trained to find the cause of your symptoms, only to push pills.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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