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Grateful I Think?

kledford

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kledford Rookie
kledford
Posted

Ok, so since May 1st I have been gluten-free...well yesterday I made the mistake of buying the wrong MI-DEL gingersnaps from the Healthfood store and after eating 2 1/2 cookies I happened to glance and ORGANIC NOT gluten-free! So I think ok, well brace yourself and put your day on hold.....reaction time! Well, nothing happened...and still hasn't. None of the awful things that I read about, although I was asymptomatic prior to DX I was thinking that being gluten-free for 8 weeks I would have a reaction. Now I am grateful but fearful at the same time, how will I know if this accidently happens in the future? I am OF COURSE going back and will resume by gluten-free life but I live in fear because my dr told me that for every wheat ingestion I have I set myself back appx 2 months in my recovery! So am I back at square one???? I am SO confused still! and apprehensive that I am not doing this right. I doubt everything that goes into my mouth. BTW I repeated my bloodwork on Monday and I am more anemic than when I started so you can see my fears are valid......Please some good sound advice from someone that has been there!

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Takala Enthusiast
Takala
Posted

This is why I really do not like my area's newest Whole Foods store, because they scatter- shotted the gluten free items in with the non gluten free items all over the store, deliberately to slow down the shopping speed. And I've seen the two types of gingersnaps right next to each other on the shelf.

No, you haven't set yourself back to "square one," people's reactions vary. Doctors have to scare many people to get them to comply with diet advice, they don't realize that most celiacs and gluten intolerants with bad reactions really don't like cheating because they feel so badly afterwards it is not worth it. It's like built - in aversion therapy.

We've all had accidental glutenings. It happens. Just continue to be as careful as you can.

Re: the anemia, if you are not taking a gluten free B vitamin complex, you should be, as well as a multivitamin, calcium, D, magnesium.... try also taking some blackstrap molasses and cooking in a clean, dedicated cast iron pan, to get more iron. All these nutrients interact.

kareng Grand Master
kareng
Posted

Thanks for the heads up on that. I didn't know they made gluteny ones too. The gluten-free ones make the best pumpkin pie crust!

I don't think you set yourself back 2 months, maybe 2 weeks, Once you are healed, even if you feel bad, the intestines should heal quickly. The doc may not know or may even be saying that to scare you so you don't cheat every Saturday.

Skylark Collaborator
Skylark
Posted

That happened to me once. I ate a wheat cracker when I got the wrong thing and had no reaction at all. I was shocked since I've reacted to shared fryer CC in the past. My doctor tells me that people's sensitivity to gluten can really change, and you can have more and less sensitive periods.

Don't be so frightened. There are plenty of studies on celiacs healing gluten-free yet EVERYONE on a gluten-free diet makes mistakes. There is no way all the people in the studies who healed did a perfect job on the diet becasue as you're learning it's almost impossible. The ones who don't heal are the ones who admit to cheating regularly.

Sure you might have set yourself back a little but just go back to doing your best and you'll be fine.

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      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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