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Hello From Alberta!

Sunny101

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Sunny101 Newbie
Sunny101
Posted

Hi Everyone,

Just thought I'd give a quick introduction of myself. I didn't see a part of the forum that was designated for that, so I hope its okay that I am doing it here.

Anyways, I'm Sunny, from Alberta Canada. I have not actually been diagnosed with Celiac, but have been off gluten (and dairy) for just over a year now. I have discussed celiac with my doctor, and he seems to think that we don't need to confirm it. I find this frustrating, as I am not sure I am getting proper nutrients. Since being off gluten and dairy I have been feeling a lot better, but do have some concerns regarding my health.

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vanik Newbie
vanik
Posted

Hello! I'm from Alberta too! Where abouts are you?

I was diagnosed a few years ago but finally realizing the importance of a gluten free diet as my hubby and i are trying to concieve our first!

  • 2 weeks later...
JackieandNick Manning Newbie
JackieandNick Manning
Posted

Hello!

We are also in Alberta. My Husband is Gluten-free due to severe skin reaction (eczema).

I am not gluten free but did cut any bleached or enriched flour due to migraines.

I recently found out there is an issue with lotions as well and that they can have gluten in them. Due to his skin we are always looking for something new to try for the longest time all we have used is Aveeno with oatmeal. Guess that wasnt a great choice.

We also use A535 for muscle pain as he is a delivery driver.

Any suggestions on what to switch Aveeno for?

and if we need to switch A535?

Always looking for new recipes and am looking forward to having some help with this new diet and lifestyle!

Thanx

Jackie & Nick Manning

love2travel Mentor
love2travel
Posted

Greetings from a fellow Albertan! I have celiac disease and as a MAJOR foodie sometimes find it tough but it can be done. For recipe ideas look in that forum - we post what we have for dinner and there are also some awesome recipes! If you want more ideas PM me - my culinary library is massive and I do tons of scratch cooking and baking. :D

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      My journey is it gluten or fiber?

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    • mamaof7
      Help understand results

      By mamaof7 · Posted

      Ok.. these test was ordered by her primary. There was one other test showing that she is IGA deficient. I am hoping that the GI is able to give us more info in April. That just seems like an extremely long time from now.   We don't typically eat much gluten because it makes me feel awful (bloating, fatigue, abdominal pain, extreme joint pain, mouth sores, migraines...) but I've never been diagnosed with anything because i refuse to eat gluten in order to be tested. I dont need a dr to tell me it makes me feel poorly.. But, anyway,  2 weeks prior to this test, shortly before she started having symptoms, we dramatically increased the amount of gluten consumption in the household due to holidays and visitors and easy meals due to family sickness.. so I'm wondering if she just hadn't eaten enough to test positive??? Symptoms just kept getting worse and now that she's been off gluten again all the symptoms have disappeared.    Husband and I are going to keep her off gluten for a while and try again to see if symptoms reoccur after reintroduction to gluten. Gi Dr isn't going to see her until the end of April anyways.
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @hjayne19, welcome to the forum.   Sorry to hear you're having a bumpy start in your journey.  Let's see if we can smooth the way a bit for you. To correct anemia, more than just iron and B12 supplements are needed.  Other B vitamins including Folate B 9, Riboflavin B2, Pyridoxine B 6 and Thiamine B 1 are needed.   Wheat flour (and other products containing gluten) are mandated to have vitamins and minerals added to them to replace the vitamins lost in processing.  Gluten free processed foods are not required to have vitamins and minerals added to them.  Now that you are gluten free, you must get your vitamins and minerals from a nutritionally dense diet.  I'm glad to hear a dietician is helping with that.  However, newly diagnosed celiac patients tend to have subclinical deficiencies and absorption problems, so adding a B Complex supplement is beneficial.  The B vitamins are water soluble and easily excreted by the kidneys if not needed.   I had terrible night sweats, but correcting a severe Vitamin D deficiency cleared that up quickly.  Optimal Vitamin D levels are between 75 and 100 ng/mL.  Vitamin D levels should be corrected quickly with high doses.  Vitamin D helps regulate the immune system.  Your Vitamin D level was affected and falsely elevated because you were taking a Vitamin D supplement.  The bloodstream is a transportation system and not a reflection of the amount inside cells where the vitamins are used.  Same thing with your B12 and iron levels.  One should be off supplements for eight to twelve weeks before blood tests to look for deficiencies.   Blood tests for B vitamins are not accurate. Doctors don't agree on optimal levels or even minimum levels required to prevent illness.  Blood levels don't reflect how much is inside cells where the vitamins are utilized.  One can have "normal" blood levels, but still have deficiency symptoms within organs and tissues before blood levels change.  This is especially true if Thiamine B 1.   Athletes require more Thiamine than people less active.  We need more Thiamine when we are physically ill, emotionally stressed and physically active.  We need more Thiamine when we eat a diet high in carbohydrates.  The more carbs we eat, the more Thiamine we need.   Anxiety is an early symptom of insufficiency of many of the B vitamins.  The eight B vitamins work together in concert, so the insufficiency symptoms tend to overlap.  My anxiety resolved after taking a B Complex and additional Thiamine in the forms Benfotiamine (shown to promote intestinal healing as well as enhanced athletic performance and recovery time). My insomnia and the racing thoughts keeping me awake also resolved with additional Thiamine in the form Thiamine TTFD (tetrahydrofurfuryl disulfide).  This TTFD form of thiamine, along with Neuromag, a form of magnesium, really has helped with brain function, anxiety and insomnia.  Don't take Thiamine close to bedtime as it may keep you too alert or energetic to sleep.  Take in the morning, and at lunch, but not after supper.   I also have taken Tryptophan and Lysine as well as Theanine, all essential amino acids, that our bodies use to relax, heal and sleep.  Passion flower tea or supplements also aid in getting sleepy without feeling groggy the next morning.  Chamomile tea or Oolong also help with insomnia. Interesting Reading: Effect of physical activity on thiamine, riboflavin, and vitamin B-6 requirements https://pubmed.ncbi.nlm.nih.gov/10919966/ The effects of endurance training and thiamine supplementation on anti-fatigue during exercise https://pmc.ncbi.nlm.nih.gov/articles/PMC4241913/ Effects of thiamine supplementation on exercise-induced fatigue https://pubmed.ncbi.nlm.nih.gov/8815395/ Exploring the Relationship between Micronutrients and Athletic Performance: A Comprehensive Scientific Systematic Review of the Literature in Sports Medicine https://www.mdpi.com/2075-4663/11/6/109 Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Impact of a Gluten-Free Diet in Adults With Celiac Disease: Nutritional Deficiencies and Challenges https://pmc.ncbi.nlm.nih.gov/articles/PMC11692684/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Which supplement says take 3 four times a day? Take the B Complex, one Benfotiamine, one Thiamax and one Neuromag at breakfast.   You can take more Thiamax and Benfotiamine at lunch with another Neuromag.  
    • Russ H
      Gluten intolerance and coughing fitsfits

      By Russ H · Posted

      Hello Surinder, and welcome to the forum. Thank you for sharing your experience. Have you been diagnosed with coeliac disease? Although less common, there are reports of coeliac disease being associated with pulmonary conditions causing symptoms such as a chronic cough.     Case Report: A case of cough, lymphocytic bronchoalveolitis and coeliac disease with improvement following a gluten free diet
    • Surinder
      Gluten intolerance and coughing fitsfits

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      I read with interest someone's article regarding gluten and coughing and how drs could not diagnose the cause. I am a prediabetic and in the process of cutting down on carbs I slowly eliminated bread and added more complex carbs and found that my cough had gone and I was feeling generally calmer and happier. This was an accidental finding and I relate to your story. I have shared my story for you. Kind regards, Surinder
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