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How Many Have Done The Gluten Challenged And


ferb

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ferb Newbie

I realize that these results may be skewed since this is a celiac forum and most of the people have here have stuck around because they have some kind of gluten sensitivity. I


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chrissyinnj Apprentice

Could be tied to a different food. Perhaps you could start a food diary and see if there is a certain type of food you eat before your symptoms appear. or do an elimination diet.

love2travel Mentor

I realize that these results may be skewed since this is a celiac forum and most of the people have here have stuck around because they have some kind of gluten sensitivity. I

Darn210 Enthusiast

I've had mild joint pain for a while. Summers seem to be worse . . . is it the weather or is it because I'm more active (yard work?) My daugher has Celiac. I was tested and it came out negative. I did a 6 month gluten free trial diet and noticed no difference. I went back on gluten and noticed no difference.

I know nightshades can be behind joint pain but I have not tried eliminating those . . . yet. (I find that more difficult than gluten free :ph34r: )

October3 Explorer

I have been on and off gluten 2 or 3 different times and not noticed any difference. I have some mild IBS-type symptoms and also episodic joint pain and I think for me milk and possibly soy is a bigger trigger than gluten.

My son, who has moderately elevated tTG with negative scope, had no obvious change when we eliminated gluten for 2 months and then put it back in, and no change at all on his iron levels which was where we were hoping to see a difference. But he is only 6 and I'm not sure he knows what to report to us. He's made some comments about having tummy aches in the mornings and feeling like he's going to throw up and he thinks everyone feels that way every morning. So he doesn't think to tell me. So I can't be sure there was really no change for him. I think we may need to try again when he's a bit older if we can't figure it out through lab tests.

My other son has no antibodies to gluten but seemed to improve with his stools (less gassiness, fewer floaties) off gluten. Now that he's been back on for almost 3 weeks things remain good. So my theory is that it might have been more of a yeast issue fed by gluten than gluten itself.

ferb Newbie

OK, thanks for the feedback. It is good to know that there are some people who don't seem to be affected either way by gluten. I will give this gluten-free diet a shot, then start eating it again and see if I notice any change. If not, I guess I will move on and try eliminating something else from my diet... dairy, nightshades, or soy maybe.

How long should I stick with the gluten-free diet before doing the "challenge?" 4 weeks? 6 weeks?

curlyfries Contributor

My adult daughter went gluten free for a while, but eventually started cheating. When she didn't notice a difference, she went back on gluten. A couple of years later symptoms returned and she is now gluten free again and feeling good.


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Marz Enthusiast

Yup, symptoms can take a while to reappear - when you're doing the gluten challenge, eat at least three meals with gluten in it, for a week or longer. And make sure you've been properly off gluten for at least a month before you do so - your body can take a while to heal, and if you don't give yourself long enough, you may not notice a difference in the challenge.

When I did my challenge, I didn't get the stomach pain/massive d symptoms I expected, I was just getting this very weird anxiety/freaked out feeling. The D and pain only started a few days in.

Best of luck :)

cahill Collaborator

OK, thanks for the feedback. It is good to know that there are some people who don't seem to be affected either way by gluten. I will give this gluten-free diet a shot, then start eating it again and see if I notice any change. If not, I guess I will move on and try eliminating something else from my diet... dairy, nightshades, or soy maybe.

How long should I stick with the gluten-free diet before doing the "challenge?" 4 weeks? 6 weeks?

I would suggest at least 8 weeks gluten free before doing a challenge. If you have withdraw symptoms it can take 6 to 8 weeks for the withdraw to end.

For me soy is as much of an issue ,,if not more,, as gluten. I have digestive issues with gluten but major neurological issues with soy.

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    • Zuma888
      Hello, I was diagnosed with Hashimoto's thyroiditis about 3 years ago. At that time I quit gluten and it really helped my symptoms. I hadn't known that I should've tested for celiac before doing so.  Up till recently, gluten would cause my symptoms to flare up, although I never noticed anything with cross contamination, so I wasn't strict about that. But recently, I noticed I could get away with more gluten, and so I decided to do a gluten challenge to see if I had celiac and if I had to be strict. Note that my thyroid antibodies had been decreasing steadily up to this point. My anti-TPO had reached 50 IU/ml from 250 IU/ml (reference range 0-5.6) when I had first been diagnosed. After just a week of the gluten challenge, I measured my thyroid antibodies and they were at 799 IU/ml! I felt fine, but a few days after I started to feel the symptoms. Extreme brain fog, insomnia, diarheaa, fatigue, sleepiness yet cannot sleep, stomachache after eating gluten, nausea, swollen throat (probably due to my thyroid), burping, and gas. I cannot function properly. I'm also worried that I'm killing my thyroid. Should I just quit the challenge? It's been almost two weeks, but the first week I wasn't tracking well, so that's why I didn't want to count it. I can't eat gluten anyway because of my thyroid, but I wanted the diagnosis to know if I should be strict about cross contamination or not.  
    • Zuma888
      You really saved me as I was on day 4 of 3 g per day for 6 weeks. Thank you very much!
    • trents
      Two weeks is the minimum according to the guideline. I would go for four weeks if you can endure it, just to make sure.
    • Zuma888
      Thank you so much! So I can do 10 g worth of gluten in the form of gluten powder per day for two weeks and that should be enough?
    • trents
      It applies to both blood tests and biopsies. Guidelines for the gluten challenge have been revised for the very issue your question raises. It was felt by medical professionals that the longer term but less intense consumption of gluten approach was not proving to be reliable for testing purposes and was resulting in too many false negatives. But do keep in mind that the gluten consumption doesn't have to be in the form of bread slices. It can come in any form: pasta, cake, wraps, etc. Another approach would be to buy gluten powder at a health food store and mix it in a shake. The idea is to get at least 10g of gluten daily, whatever form it comes in.
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