Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Tell Me What You Think


0010xoxotee

Recommended Posts

0010xoxotee Newbie

Hi , I am 20 years old and I have been gluten free for a year. I was tested for celiacs and the result was negative, but my doctor said it could be wrong. I have many symptoms of it and going gluten-free is the only thing that has helped. As a child I would get hospitalized often because of stomach aches and because I would stop eating. I was too young to say that I was constipated so the doctors didn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast

Hi , I am 20 years old and I have been gluten free for a year. I was tested for celiacs and the result was negative, but my doctor said it could be wrong. I have many symptoms of it and going gluten-free is the only thing that has helped. As a child I would get hospitalized often because of stomach aches and because I would stop eating. I was too young to say that I was constipated so the doctors didn

ravenwoodglass Mentor

Sorry you have been through so much and it is good to hear that the diet is helping you. I agree that you may have some other intolerances. You may want to drop dairy and soy for a bit and see if that helps. If it does then add them back in one at a time after a couple of months to see if you are reacting to one but not the other. Also make sure that you are checking any supplements or meds that you are taking. Those need to be checked with the maker to be sure as your doctor won't know if something is safe or not.

I hope you continue to improve.

0010xoxotee Newbie

Thank you for replying, I do believe a lot of damage was doctor caused and I go to a new doctor now. I have other intolerants dairy, soy, peanuts, and pork (it does not digest well for me) Would it be okay to cut out grains completely even if I am very active. I dance competitively training is 4-10 hours a week. Right now I do two grains a week brown rice, Quonioa, or gluten-free oatmeal. As for the being careful, I try to be very careful. It seems like the smallest amount of gluten makes me sick, even my face wash and shampoo has to be gluten-free or my face swells and my head and face will be itchy.

GlutenFreeManna Rising Star

Thank you for replying, I do believe a lot of damage was doctor caused and I go to a new doctor now. I have other intolerants dairy, soy, peanuts, and pork (it does not digest well for me) Would it be okay to cut out grains completely even if I am very active. I dance competitively training is 4-10 hours a week. Right now I do two grains a week brown rice, Quonioa, or gluten-free oatmeal. As for the being careful, I try to be very careful. It seems like the smallest amount of gluten makes me sick, even my face wash and shampoo has to be gluten-free or my face swells and my head and face will be itchy.

Some gluten intolerant people cannot tolerate oats at all, even gluten-free oats. I would drop those first before cutting out all grains. Also be aware that if you are oat-intolerant you may need to also avoid some brands which use gluten-free oats in their facilities. For example I cannot tolerate oats and because of that I also cannot eat anything made by Bob's Red Mill--all their gluten-free flours are made in the same facility/same equipment as their gluten-free oats and therefore cc by gluten-free oats.

0010xoxotee Newbie

Okay I will try that, what would you recommend for breakfast then? I eat eggs a few times a week and then oats. Also I can't have anything with a lot of sugar because I have low sodium and sugar makes my sodium and potassium levels lower

cyberprof Enthusiast

Yes, I agree with GFManna - cut out the oats. They are problematic in anyone not totally healed. Some people react to rice and quinoa, sad/weird as that may be.

I think going grain free is do-able for athletes. Sweet potatoes are good as are other squashes for carbs. You could go grain free and then add the rice back in and see if you're ok.

You could read "The Paleo Solution" by Robb Wolf (see his site robbwolf dot com) as he is a trainer and trains competitive athletes. He has a lot about healing and training on the grain-free diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Okay I will try that, what would you recommend for breakfast then? I eat eggs a few times a week and then oats. Also I can't have anything with a lot of sugar because I have low sodium and sugar makes my sodium and potassium levels lower

There are lots of things to eat for breakfast. There's no reason you need to eat "breakfasty" food in the morning. I often have leftovers from dinner. I try to have a balance of protein (meat, beans, peanut butter, eggs) and carbs (fruit, gluten-free bread, rice, potatoes) for breakfast. check out the "what's for breakfast" thread to see what other people eat:

0010xoxotee Newbie

This may sound dumb, but how do I know if I have a reaction to it? I don't notice any pain after I eat them, should I watch for bloating? I never knew you could have issues with gluten-free foods so this is all new to me

ravenwoodglass Mentor

Okay I will try that, what would you recommend for breakfast then? I eat eggs a few times a week and then oats. Also I can't have anything with a lot of sugar because I have low sodium and sugar makes my sodium and potassium levels lower

I don't tolerate oats but I also like a hot cereal for breakfast. You could try Buckwheat Kasha or Cream of Buckwheat. If Pocono brand is available where you are they are grown in dedicated fields and harvested and processed in a plant that only processes Buckwheat.

My go to breakfast is usally Udi bread and pnut butter with some fruit and sometimes I also go for eggs or something that is left over from the night befores dinner.

Poppi Enthusiast

My go to breakfast is usally Udi bread and pnut butter with some fruit

Me too. Udi's bread, toasted with butter and peanut butter and a cup of tea.

love2travel Mentor

For breakfasts I like bacon and eggs, omelettes, poached eggs with hollandaise, plain old cereal, frittata, homemade bread with creamy lavender honey, grilled cheese and smoothies. I LOVE bluberry/strawberry/banana with some apple juice and yogurt and flaxseed. Sometimes I just have leftovers for breakfast. Oh, and pancakes with homemade butter rum syrup and fruit salad with lime juice, honey and poppyseeds. I also sometimes make cornbread and scones. I make too many flavoured honeys and preserves that I need a vehicle for them! I like to add a handful of raw almonds to my diet in the morning.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,079
    • Most Online (within 30 mins)
      7,748

    Terra33
    Newest Member
    Terra33
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.