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Recent Activity
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- stephaniekl replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease10
Follow up endoscopy and biopsy 14 years post celiac diagnosis
She used to take supplements, but her abdominal pain is so debilitating that she hasn't been able to continue. Her primary care team has been suggesting liquid supplements rather than pill form to help. They just drew a lot of blood Friday and we are slowly getting all that work back. I will definitely check into thiamine! Thanks! -
- stephaniekl replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease10
Follow up endoscopy and biopsy 14 years post celiac diagnosis
They have not done that yet. We are looking at some other treatments to help. And you are correct. The tickborne illness has been a wild ride. Our whole family has been battling different tickborne illnesses. Its expensive and exhausting. -
- cristiana replied to Colleen H's topic in Coping with Celiac Disease3
Ibuprofen
I cannot tolerate it at all - triggers burning and nausea, ditto aspirin. Here in the UK I take Paracetamol. -
- knitty kitty replied to Colleen H's topic in Coping with Celiac Disease3
Ibuprofen
For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect. These three B vitamins together work way better than those over the counter pain relievers. Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed. Thiamine will also help... -
- knitty kitty replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease10
Follow up endoscopy and biopsy 14 years post celiac diagnosis
@stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements? Weight loss and failure to thrive are two symptoms of thiamine insufficiency. Thiamine deficiency symptoms are not recognized as such by doctors. I experienced similar symptoms when I became malnourished. Thiamine deficiency symptoms can become worse...
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