Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biotin?

bartfull

By bartfull
in Coping with Celiac Disease

Recommended Posts

bartfull Rising Star
bartfull
Posted

My primary symptom of celiac is palmoplantar pustular psoriasis. While doing some more research on this, I found that some doctors reccommend taking a biotin supplement. They say a person with Celiac is getting NO biotin at all from their food, and that biotin deficiency can cause skin problems and hair loss, yeast overgrowth, plus a lot of other nasty things.

They ALSO say that we need to take a pro-biotic called clostridium butyricum. According to what I read, the probiotics found in most yogurts actually thrive on biotin, so we need this other "bug" to set our systems back to normal. Well, I can't find this pro-biotic anywhere. I'm thinking it might be dangerous and not even sold in the US.

So, I got some biotin today anyway. They reccommend 10 milligrams a day and say you can't overdose on this stuff because it is water soluable, and there are no side effects.

Has anyone else here had any experience with this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I take Biotin daily to help with my hair and skin. When I get severely glutened I lose a lot of hair and it does take some time to grow back.

I don't take probiotics but do eat live culture yogurt, Yoplait only, or eat saurkraut for its probiotic value.

mommida Enthusiast
mommida
Posted

I swear by taking Biotin! The main food source would be consuming animal liver. Not gonna happen for me that way. I have found no research saying that it can be harmful either.

My hair falls out after I have been glutened too.

I currently am not taking probiotics. Just food sources.

  • 2 months later...
livebetter Newbie
livebetter
Posted

Hi, I am in the process of having celiac disease testing done....no results yet. I have not excluded gluten from my diet yet, but I got palmoplantar pustular psoriasis about a year ago. Regarding your statement "My primary symptom of celiac is palmoplantar pustular psoriasis."-->> is palmoplantar pustular psoriasis (PPP) officially recognized as a symptom of celiac disease that can be used to diagnose celiac disease? I had heard about dermatitis herpetiformis specifically being a celiac symptom, but had not heard about PPP.... Or, is your PPP more a symptom that is a side effect of excluding gluten products from the diet? Do you know if there is a reliable test to determine whether someone has a biotin deficiency - I see mixed info about this on the internet.

Anyway - How are you doing with the biotin supplementation? Has this helped your palmoplantar pustular psoriasis? Have you seen any side effects? I am going to discuss with my doctor trying biotin for my palmoplantar pustular psoriasis. Funny thing with me is that I started eating yogurt daily about a year and half ago.... I started getting the palmoplantar pustular psoriasis about a year ago.... wonder if there is a relationship?

Thanks!

bartfull Rising Star
bartfull
Posted
  • Author

Hi Lovebetter, and welcome to the forum!

There have been studies linking PPP (and all psoriasis) to food intolerances. My PPP was getting really bad, and I decided to try gluten free to see if it helped. It did at first, but then it came back when I ate gluten free cornbread. It turns out that I am HIGHLY intolerant of corn, as well as gluten. Now it seems that tree nuts bother me too.

I have had times when the PPP is totally GONE, and then I get into corn (it is in EVERYTHING :angry: ), and it comes back. Gluten and nuts are easier to avoid. If you go with nothing but meats cooked plain, brown rice, and broccoli, cauliflower, squash or asparagus for a few weeks, I'd be willing to bet you will see mahor healing.

Then, you can start slowly adding other foods. To check out the corn thing, just get yourself some gluten-free cornbread like I did. Within a day or three of eating it, you will know. Then, after you've healed again, try adding nuts. Then nightshade veggies (tomatoes, potatoes, peppers, and eggplant). Once again, if they cause a flairup, you'll know you can't tolerate them. Once you've healed again, try yet a different food.

I'm thinking it's going to take me a year or so, but I WILL find out exactly what else bothers me.

As for biotin, I don't think it helps with the PPP, (it's the diet that does that) but it DOES make my hair stop falling out, and I feel better when I take it.

One other thing I have read about is candida. There are some who think that ALL of our food intolerances come from having rampant yeast overgrowth throughout our systems. To get rid of that, we need to stop all sugars, and keep the carbs as low as possible. (That's why I eat a lot of brown rice - it's WAY lower in carbs than white rice. Besides, many brands of white rice are dusted with corn starch to keep it from being so sticky.) Then you need to find some GOOD probiotics. Some have only acidopholis - we need as many different strains as possible. AND we need to find it without wheat or corn!

If there is anything I can do to help you, just let me know. And don't forget, there are a BUNCH of very knowledgable people on this board who can help us both. :)

livebetter Newbie
livebetter
Posted

Hi - Thanks Bartfull - nice to meet you and everyone on this site,

I have had psoriasis for the last 35 years. I am hoping to find out whether any foods trigger my psoriasis...

I just started working with an allergy doctor who is running a bunch of tests on me - starting with gluten, dairy, eggs, wheat, nightshades (the typical foods that are suspect for psoriatics)...

Bartfull - did you actually get tested for any of the other foods that you found you can't eat? Like corn, tree nuts? Or you just knew from trial and error - eating/eliminating the food from your diet?

Thanks

bartfull Rising Star
bartfull
Posted
  • Author

LIveBetter, (Sorry about the misspelling on my last post - the I and O keys are completely worn on my computer, and I am a hunt and peck typist.)

Anyway, I am going by trial and error. No insurance. But I have heard that allergy tests are often inaccurate anyway.

One of the things, besides the online info, that made me want to try the diet is, my Mom had P for about thirty years. She was under a dermatologist's care for years and years with little improvement. When she was diagnosed with Celiac in 1985, she went on the diet and it wasn't long before her P went COMPLETELY and PERMANENTLY away.

Back then, doctors didn't know as much about either, so everyone thought it was just a coincidence. Of course, both are hereditary, both are autoimmune, so it made sense to me that I had both, just like Mom did. I was right.

The problem is, because I've never had much in the way of digestive symptoms, I don't know if I'm gluten intolorant, or Celiac. If it's Celiac, I am damaging my intestine every time I get "glutened" and I don't even know it. And it turns out that corn can cause the same type of damage. I mean, it's worth staying away from both just for the P and the insomnia, but I'd like to know. Maybe someday I'll have insurance and then I can take the gluten challenge and get tested.

In the meantime though, I'll just stick to the diet, pray that I can stay away from corn, and hope for the best.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,680
    • Most Online (within 30 mins)
      7,748
    MagsM
    Newest Member
    MagsM
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Help needed

      By nanny marley · Posted

      Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which if not on the diet I would have to avoid anyways has I don't tolerate many fruit juices so I'm sure I've done the right thing I did try to contact the department on my letter but weirdly enough it was ringing but then after a while saying wrong number 🤷 but again I'm positive I've done the right thing I'm going to take today very lightly too with low portions and more liquids so yes thankyou for that advise I am very nervous but I have had time to think and read other peoples experiences and not all are bad there is some good advise and reassuring information from people who do these all the time so I'm trying my best to be positive so I can at least settle my mind knowing im doing this to help my own health has this year has been a rollercoaster for me cutting out gluten and lactose was a good idea but I still get flare ups and other symptoms so it definitely is worth a check like you said it was the calprotein that prompted the doctor to refer me again thankyou for your reply it's means a lot for someone to take the time to listen and respond and give uplifting advise  especially to me just now has I'm a bundle of nerves inside getting closer to tomorrow prep so thankyou for that 🙏
    • Mari
      Cruise and GliadinX

      By Mari · Posted

      Hi StevieP I think it is best to take GliadinX Just before, during or just after you eat a food that may have a small amount of gluten.  Taking 2 capsules of GliadinX in the morning will not protect you all day because it will be long gone when you need it. The upper digestive system is where the digestive enzymes break down gluten. The problem with Celiacs is that normal digestion will only break down gluten to the point where the small fragments will still cause a reaction. GliadinX will break down the fragments so that they are too small to start the autoimmune reaction.  The label on my bottle reads'it works in the stomach' and that is ver concentrated so 1 capsule is the recomm Hope this helps/Have a lovely cruise.ended dose for each meal. 
    • StevieP.
      Cruise and GliadinX

      By StevieP. · Posted

      Thanks so much for that information!! That helps me out alot!!
    • Scott Adams
      Help needed

      By Scott Adams · Posted

      It’s completely understandable to feel confused and anxious—colonoscopy prep can feel overwhelming, especially when you’re already dealing with symptoms like loose stools and elevated inflammation markers (that high calprotectin and CRP definitely warrant further investigation!). Regarding the senna tablets: The warning about avoiding senna with IBD (like Crohn’s or colitis) is typically because it can irritate an already inflamed colon. Since you don’t yet have a confirmed diagnosis—but your brother has colitis—it might be worth calling your gastroenterologist’s office today to clarify if you should skip the senna given your symptoms and family history. Some clinics have an on-call nurse who can advise quickly. For the prep itself: Plenvu is strong, so if your bowels are already loose, the senna might be overkill. Stick to clear liquids tomorrow (broth, apple juice, etc.) and stay near a bathroom! For anxiety, remember the procedure itself is painless (you’ll likely be sedated), and the prep is the hardest part. Bring a phone charger or book to the clinic, and treat yourself afterward to something gentle on your stomach (like mashed potatoes or yogurt). Hang in there—this is a big step toward answers. You’re doing great advocating for yourself!
    • Scott Adams
      Wheat Straw Dishes

      By Scott Adams · Posted

      Great question! Wheat straw dishes are typically made from the stalks of wheat plants (which are naturally gluten-free) combined with a binding resin. While the straw itself shouldn’t contain gluten, the safety depends on how the product is processed. Some manufacturers may use wheat-based binders or process the straw in facilities that handle gluten, creating cross-contact risks. To be safe, I’d recommend reaching out to the company directly to ask: 1) If their wheat straw material is tested to confirm it’s free of gluten proteins, and 2) Whether the production line avoids cross-contamination with gluten-containing ingredients. Many brands now cater to gluten-free consumers and will provide detailed answers. If you’re uncomfortable with the uncertainty, alternatives like bamboo, ceramic, or glass dishes are inherently gluten-free and worry-free. Always better to double-check—your diligence is totally justified!
×
×
  • Create New...