Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me Please With Interpretation Of Celiac Panel!

foxysoxy804

Recommended Posts

foxysoxy804 Newbie
foxysoxy804
Posted

I had my anti-gliadin IgG levels tested for Celiac.

The lab designated results as follows:

<11 = Negative

11-17 = Equivocal (or according to my doctor, "borderline")

>17 = Positive

My result: 15.

So I fall in the equivocal range. Doc told me to go ahead and try the gluten-free lifestyle and see how that goes. What I am confused about is this so-called "borderline" range...do I have celiac disease or don't I??

I also have issues with my thyroid as well (TSH level of .46, with "normal" being anywhere from .50 to 5.0, a ridiculously large range if you ask me). Will find out more in the next couple days, as a complete thyroid panel is being done.

Anyways back to what I came here for...can I safely say I have celiac disease? Thanks for any help!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KRJ Newbie
KRJ
Posted

Hi, Foxy --

I'm by no means a celiac pro (new to this myself), so I'll let others answer your question. Is that the only test they ran?

I wanted to comment on your thyroid, though, because I do have a lot of experience with that, unfortunately! 0.5 to 5.0 is a large range, you're right. A lot of the newer research shows that men aren't quite as sensitive with their TSH levels, so maybe the upper ends of that range is OK for some of them. Most women, though, feel better with a TSH around 1. I know when I get up in the 2 area, I feel it. Chances are that with a 0.46, you may be monitored for awhile to see if it changes. I was re-checked after 6 months, they found my TSH was undetectable, and I had the radioiodine treatment after that.

What I *really* wanted to share with you is that even if you feel OK, please be sure to take your thyroid issues seriously. I thought I felt fine when my thyroid was working overtime. It wasn't until after the RAI treatment, when my thyroid was slowly dying off, that I realized I felt so bad.

Anyhow, good luck with it all!

-- Kelley

mushroom Proficient
mushroom
Posted

Welcome to the board, foxysoxy.

Equivocal results are always frustrating :( However, you are only two points away from a positive, and I believe if you were to continue eating gluten you would soon attain a positive score, along with further damage to your body. Some who do not test positive on blood tests come up positive on biopsy, some score negative on both and yet still have early celiac disease that is not quite diagnosable at the time of testing. I believe this is why your doctor told you to try going gluten free. If you improve, you know that gluten is a problem regardless of any test scores.

There is also now recognized to be such a thing as non-celiac gluten intolerance, and these people never test positive but need the gluten free diet just as much as celiacs do.

As to your thyroid, the test range was adjusted eight years ago to .3 to 3.0, but many labs and doctors still use the old range. But whichever range you use your thyroid is grossly out of whack and I am glad they are doing further testing for you. Yes, thyroid problems often accompany celiac disease, probably more the rule than the exception in fact for women, and taking that into account with your symptoms and "almost" positive anti-gliadin IgG score, I would consider you to most probably have celiac disease. You could ask your doctor to run the DGP test to see if it came up positive - this is the newest celiac test and is very specific for celiac - if you really wanted a piece of paper with a positive diagnosis on it. DGP stands for Deamidated Gliadin Peptide.

foxysoxy804 Newbie
foxysoxy804
Posted
  • Author

Kelley--

Yes, that is the only test that was run about celiac. In regards to the thyroid, I actually just found out the results of the further tests that were run. Turns out all of my thyroid hormones are extremely low (TSH, T3, T4, the works). So going to an endocrinologist ASAP!! Thanks for your help.

Mushroom--

Thanks for the informative post! I am definitely going to go ahead and go gluten-free and see where that takes me. I think it will be a good change. Obviously I have more issues to get figured out now that I know about my thyroid. Ah hormones...anyways thanks again!!

KRJ Newbie
KRJ
Posted

Wow -- if they only tested your IgG, they didn't test enough!

beachbirdie Contributor
beachbirdie
Posted

Kelley--

Yes, that is the only test that was run about celiac. In regards to the thyroid, I actually just found out the results of the further tests that were run. Turns out all of my thyroid hormones are extremely low (TSH, T3, T4, the works). So going to an endocrinologist ASAP!! Thanks for your help.

Mushroom--

Thanks for the informative post! I am definitely going to go ahead and go gluten-free and see where that takes me. I think it will be a good change. Obviously I have more issues to get figured out now that I know about my thyroid. Ah hormones...anyways thanks again!!

Low TSH along with low thyroid hormones is an interesting problem! That leans more toward pituitary/hypothalamus. Hopefully you will get a decent endo, many are notoriously poor thyroid docs but you don't have a common thyroid situation going on.

foxysoxy804 Newbie
foxysoxy804
Posted
  • Author

I lucked out and am able to get in to see a good endocrinologist next week (the other doc I was gonna see scheduled me for August 31st!!).

And I have also had a hunch that my problems are being caused by the "higher centers" of the endocrine system as well; I may be wrong, but I have a hard time believing my thyroid is the only culprit.

And in regards to the antibody tests--I agree that it wasn't enough. I plan on seeking more conclusive testing for celiac. I don't think it's unreasonable to want a 100% accurate diagnosis!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    2. trents
      - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    3. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well. Thanks again (newbie here 😀)
    4. Hmart
      - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 1...
    5. knitty kitty
      - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

      @Trish G, I like dates, they have lots if fiber as well. But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,346
    • Most Online (within 30 mins)
      7,748
    rolland mcclay
    Newest Member
    rolland mcclay
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Fiber Supplement

      By trents · Posted

      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
    • Hmart
      Is this celiac?

      By Hmart · Posted

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      Fiber Supplement

      By knitty kitty · Posted

      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.