Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie With Lab Results And Questions

brbangl3

Recommended Posts

brbangl3 Newbie
brbangl3
Posted

Hello! My apologies in advance if I am posting this under the wrong category... I just joined this message board today after receiving some concerning lab results from my doctor's office regarding my self-requested Celiac panel. (Sadly, I received these lab results without an appointment with my doctor to discuss them.) I am seeking some insight and feedback on the results, as I am currently in a panic state thinking the worst possible outcome until I can discuss it with my doctor during my follow-up appointment next week.

A brief background: I am 30 y/o and have been treated for Hashimoto's hypothyroidism since my early 20's. Just a few weeks ago, after years of never feeling quite "optimized" with my thyroid, I decided to investigate beyond thyroid dysfunction for the source of some longstanding ailments

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


brbangl3 Newbie
brbangl3
Posted
  • Author

Does anyone have any advice on these results and/or how to proceed? I'm finding limited info online and going slightly crazy as a result.

Thanks!

ravenwoodglass Mentor
ravenwoodglass
Posted

The Deamidated Gliadin Abs is the newest and best test for celiac. With your results being as high as they are it is pretty likely, from what I understand, that you are in the right place. This is not as bad a news as you might think as the diet will likely relieve a lot of the issues you are having. The diet can be a bit daunting at first but it is very doable. If you are going to choose to have an endoscopsy with biopsies do not go gluten free quite yet, wait until the day of the endo. Do realize there are pretty high rates of false negatives both with the biopsies and the blood tests so when all testing you choose to do is done then do the diet strictly. Chances are you will be feeling much better before long.

beachbirdie Contributor
beachbirdie
Posted

I posted these results on another message board, and also had a phone conversation with a doctor-friend of mine

sue1234 Rookie
sue1234
Posted

I'm in the same exact boat as you. I have normal or negative everything, EXCEPT my deam. anti-gliadin at 45.4(0-10). Mine is really high also, but was told I didn't have celiac. I'm not too sure. What other reason would make that so high?

Bubba's Mom Enthusiast
Bubba's Mom
Posted

The blood tests don't always tell the true story. Mine came back in the normal range, but the Dr scheduled an endoscope/with biopsy anyway. The scope is the "gold standard" of testing, if you have been eating gluten. Mine came back very definitely positive with severe damage evident.

Don't just rely on the blood work..push for more answers.

sue1234 Rookie
sue1234
Posted

In my case, I had the biopsies and they were negative. So, I am left to wonder what the high anti-gliadin means.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nora-n Rookie
nora-n
Posted

now it looks like the deaminated gliadin test can pick up early celiac, or patchy celiac.

The old ttg test is not so good at picking up patchy celiac.

The newest endoscopy method is the pill cam, and it finds patchy celiac, while the old-fashioned biopsy method easily can miss the patches.

(the most common form of celiac is patchy celiac)

  • 1 year later...
brbangl3 Newbie
brbangl3
Posted
  • Author

Thanks to all for your invaluable and supportive replies! I have been eating gluten-free per doctor's order since July, when I started this thread with the results of my Celiac panel. I haven't noticed much of a difference in my overall health, much to my disappointment; and, when I do slip and eat gluten, I don't report any adverse reactions besides maybe some fatigue.

I received my follow-up Celiac panel lab results today, which show similar readings to the ones from May:

Deamidated Gliadin Peptide Antibody, IgA: 35.0 (Reference Range: < 6.1)

Deamidated Gliadin Peptide Antibody, IgG: 0.6 (< 4.9)

Anti-human Tissue Transglutaminase IgA: 0.3 (< 10.3)

Anti-Endomysial IgA IFA: Negative

Total Serum IgA: 208 mg/dL (Range: 44-441)

I'm still curious to know what all this means, and how to proceed. The doctor who performed this follow-up Celiac panel is not the same one who performed the initial one back in May. And, whereas my first doctor (in May) did not diagnose Celiac Disease following my results, my new doctor who performed and interpreted these new results immediately diagnosed me with Celiac Disease. Who to believe?

Thank you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,635
    • Most Online (within 30 mins)
      7,748
    Tiana
    Newest Member
    Tiana
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Buckwheat

      By trents · Posted

      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Buckwheat

      By Inkie · Posted

      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Frequent nausea after gluten-free diet

      By Wheatwacked · Posted

      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
    • Inkie
      Thee

      By Inkie · Posted

      I  notice a reaction to tea bags, possibly due to gluten or other substances. Is this recognizable?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.