Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gerd And Celiac Disease


Oukvekpwv

Recommended Posts

Oukvekpwv Newbie

Hi, I'm new to the site and trying to figure stuff out. I apologise if the topic was already posted I'm sure it already has but I'm just mostly introducing myself and making conversation.

Over the past year or so I have lost 109lbs, almost to goal weight, have a few more to go. Around 6 months or so ago I was diagnosed by my doctor with GERD, it took a little bit to find a medicine that worked but after I found one it worked for the most part and I was alright. A few months into taking the medicine everyonce in a while I still have had a bad night. Most recently, this past week or so, my stomach has been negativly active in more ways than one. Something made me rethink why these things were happening or maybe think of that maybe a few things were happening at once. Something told me to look up Celiac Disease to see if the symptoms could be something that matched what I was going through. I don't know if it is just late night pain ridden delirium that I was thinking I might have Celiac Disease or not but some of the symptoms seemed to match some of the recent things that have been happening to me. I haven't seen a GI yet partially because I was afraid that GERD was still considered a pre-existing condition under my health insurance and wasn't sure if everything would be covered, and my doctor said it could wait if the medicine was working. But still feeling these things are a bit beyond my tolerance, and I fear that prolonged non-treatment would be dangerous. I plan to call to make an appointment with my doctor today to discuss what is happening and when I could get to see a GI.

I've read that to properly diagnose Celiac Disease it would be best to go about a normal diet, so I didn't make any changes yet. I guess I will see how it goes. It's hard for me to tell because I can't seem to pinpoint what foods are affecting me, some foods I can tell, but other times by body still reacts.

Is or has anyone gone through anything like that? or know much about the relationship between GERD and Celiac Disease?

thanks, Nice to meet everyone,

PS. Is there a way to make my contact info private on my profile, or is it already but I just see my info? I never knew of a forum that required info like that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Only you can see the profile info. Log yourself out & come back and click on your picture in this post. You can see what everyone sees. Click other members pictures, like mine, & you can't see my address.

Oukvekpwv Newbie

Only you can see the profile info. Log yourself out & come back and click on your picture in this post. You can see what everyone sees. Click other members pictures, like mine, & you can't see my address.

oh cool alright, thanks :D

Jenniferxgfx Contributor

I've treated my GERD as a normal thing I get to live with for 15 years now, only recently finding it's gone away with a gluten free diet. I've spent a LOT of money on GERD drugs over the years!! It was so severe I worried about ulcers often, and it'd started making me gag and vomit. I have a bunch of other symptoms, so GERD was the "normal" "easy to treat" problem, so doctors never saw it as a symptom of a bigger issue. It's definitely lot normal, though.

Oukvekpwv Newbie

I've treated my GERD as a normal thing I get to live with for 15 years now, only recently finding it's gone away with a gluten free diet. I've spent a LOT of money on GERD drugs over the years!! It was so severe I worried about ulcers often, and it'd started making me gag and vomit. I have a bunch of other symptoms, so GERD was the "normal" "easy to treat" problem, so doctors never saw it as a symptom of a bigger issue. It's definitely lot normal, though.

Yea, Even the generic medicine can get a bit pricey.. at first I was worried about ulcers until I learned that long term non-treatment/reducing of symptoms can lead to cancer, and so could Celiac Disease I hear, so the cancer is a bigger deal to me. My grandmother and father had GERD I dont know if they had Celiac Disease. My grandmother died of cancer I'm assuming stemming from her GI issues but the cancer was found too late to worry about where it started.

I at times have that nausious gagging feeling. The worst is the horrible abdominal pain, its the worst most vivid pain I've ever experienced, is the pain the same for untreated Celiac Disease? I wonder.. Even if it turns out that I am negative I am still considering a diet change, gluten free possibly even vegan.. I've been eating healthier for a while now, its somewhat discouraging to think that its not healthy enough not to be in pain or intestinal discomfort.

mommida Enthusiast

You are right stay on a "normal" diet for testing.

There seems to be many links between Celiac and other disorders.

Some Celiacs who have started the gluten free diet have noticed that their GERD resolves.

You really didn't go into much detail about your symptoms but since you say Celiac fits them there are other disorders with these symptoms....

Hernia

H. Ployri

parasites

Eosinophilic Gastro. disorders (*gluten can be a "trigger" for these eosinophils*)

this is just a short list, but enough reason to go for further testing.

Good luck with testing and I hope you find answers for a speedy recovery!

beebs Enthusiast

I had extremely severe GERD for years...really bad and was medicated but still eating a packet of tums a day and still getting it all the time. It felt like a heart attack and caused Jaw pain. Anyhow - when I went Gluten free my GERD was gone within a day. No kidding. I have to have an endo to check for damage to the Esophagus, but it is amazing the difference.

You deffo need to get yourself into a GI though. If you have GERD there is a 20% chance of developing Barrett's Esophagus - which are precancerous cells - not something to muck about with..and if you can find whats causing it all the better. Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

I had very bad GERD. I went on prescription meds and after a while one would stop working and I'd go on another. It was real bad when I was eating gluten. It's the first symptom that settled down once I went gluten free.

I haven't been gluten free for long..just over two weeks. I'm hoping at some point I can go off medication?

redheadsmom Rookie

I also suffer from GERD and have been every RX PPI out there over the last 7-8 years. I'm currently on Prevacid. I'm 1 week into being gluten free and so far I haven't noticed any difference but I'm also being treated for SIBO right now too so I'm hoping within the next few weeks I will start seeing some improvement with my GERD.

Jessica

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.