Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Gerd And Celiac Disease


Oukvekpwv

Recommended Posts

Oukvekpwv Newbie

Hi, I'm new to the site and trying to figure stuff out. I apologise if the topic was already posted I'm sure it already has but I'm just mostly introducing myself and making conversation.

Over the past year or so I have lost 109lbs, almost to goal weight, have a few more to go. Around 6 months or so ago I was diagnosed by my doctor with GERD, it took a little bit to find a medicine that worked but after I found one it worked for the most part and I was alright. A few months into taking the medicine everyonce in a while I still have had a bad night. Most recently, this past week or so, my stomach has been negativly active in more ways than one. Something made me rethink why these things were happening or maybe think of that maybe a few things were happening at once. Something told me to look up Celiac Disease to see if the symptoms could be something that matched what I was going through. I don't know if it is just late night pain ridden delirium that I was thinking I might have Celiac Disease or not but some of the symptoms seemed to match some of the recent things that have been happening to me. I haven't seen a GI yet partially because I was afraid that GERD was still considered a pre-existing condition under my health insurance and wasn't sure if everything would be covered, and my doctor said it could wait if the medicine was working. But still feeling these things are a bit beyond my tolerance, and I fear that prolonged non-treatment would be dangerous. I plan to call to make an appointment with my doctor today to discuss what is happening and when I could get to see a GI.

I've read that to properly diagnose Celiac Disease it would be best to go about a normal diet, so I didn't make any changes yet. I guess I will see how it goes. It's hard for me to tell because I can't seem to pinpoint what foods are affecting me, some foods I can tell, but other times by body still reacts.

Is or has anyone gone through anything like that? or know much about the relationship between GERD and Celiac Disease?

thanks, Nice to meet everyone,

PS. Is there a way to make my contact info private on my profile, or is it already but I just see my info? I never knew of a forum that required info like that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Only you can see the profile info. Log yourself out & come back and click on your picture in this post. You can see what everyone sees. Click other members pictures, like mine, & you can't see my address.

Oukvekpwv Newbie

Only you can see the profile info. Log yourself out & come back and click on your picture in this post. You can see what everyone sees. Click other members pictures, like mine, & you can't see my address.

oh cool alright, thanks :D

Jenniferxgfx Contributor

I've treated my GERD as a normal thing I get to live with for 15 years now, only recently finding it's gone away with a gluten free diet. I've spent a LOT of money on GERD drugs over the years!! It was so severe I worried about ulcers often, and it'd started making me gag and vomit. I have a bunch of other symptoms, so GERD was the "normal" "easy to treat" problem, so doctors never saw it as a symptom of a bigger issue. It's definitely lot normal, though.

Oukvekpwv Newbie

I've treated my GERD as a normal thing I get to live with for 15 years now, only recently finding it's gone away with a gluten free diet. I've spent a LOT of money on GERD drugs over the years!! It was so severe I worried about ulcers often, and it'd started making me gag and vomit. I have a bunch of other symptoms, so GERD was the "normal" "easy to treat" problem, so doctors never saw it as a symptom of a bigger issue. It's definitely lot normal, though.

Yea, Even the generic medicine can get a bit pricey.. at first I was worried about ulcers until I learned that long term non-treatment/reducing of symptoms can lead to cancer, and so could Celiac Disease I hear, so the cancer is a bigger deal to me. My grandmother and father had GERD I dont know if they had Celiac Disease. My grandmother died of cancer I'm assuming stemming from her GI issues but the cancer was found too late to worry about where it started.

I at times have that nausious gagging feeling. The worst is the horrible abdominal pain, its the worst most vivid pain I've ever experienced, is the pain the same for untreated Celiac Disease? I wonder.. Even if it turns out that I am negative I am still considering a diet change, gluten free possibly even vegan.. I've been eating healthier for a while now, its somewhat discouraging to think that its not healthy enough not to be in pain or intestinal discomfort.

mommida Enthusiast

You are right stay on a "normal" diet for testing.

There seems to be many links between Celiac and other disorders.

Some Celiacs who have started the gluten free diet have noticed that their GERD resolves.

You really didn't go into much detail about your symptoms but since you say Celiac fits them there are other disorders with these symptoms....

Hernia

H. Ployri

parasites

Eosinophilic Gastro. disorders (*gluten can be a "trigger" for these eosinophils*)

this is just a short list, but enough reason to go for further testing.

Good luck with testing and I hope you find answers for a speedy recovery!

beebs Enthusiast

I had extremely severe GERD for years...really bad and was medicated but still eating a packet of tums a day and still getting it all the time. It felt like a heart attack and caused Jaw pain. Anyhow - when I went Gluten free my GERD was gone within a day. No kidding. I have to have an endo to check for damage to the Esophagus, but it is amazing the difference.

You deffo need to get yourself into a GI though. If you have GERD there is a 20% chance of developing Barrett's Esophagus - which are precancerous cells - not something to muck about with..and if you can find whats causing it all the better. Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

I had very bad GERD. I went on prescription meds and after a while one would stop working and I'd go on another. It was real bad when I was eating gluten. It's the first symptom that settled down once I went gluten free.

I haven't been gluten free for long..just over two weeks. I'm hoping at some point I can go off medication?

redheadsmom Rookie

I also suffer from GERD and have been every RX PPI out there over the last 7-8 years. I'm currently on Prevacid. I'm 1 week into being gluten free and so far I haven't noticed any difference but I'm also being treated for SIBO right now too so I'm hoping within the next few weeks I will start seeing some improvement with my GERD.

Jessica

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Iron loss and potential celiac.

    2. - Joseph01 replied to bethmon's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      We Keep Getting Glutened With Vegetable Oil

    3. - ThomasA55 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Iron loss and potential celiac.

    4. - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Edy's and Dreyer's ice cream

    5. - knitty kitty replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Edy's and Dreyer's ice cream

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
    • Joseph01
      This is way past due for your post.  I have Celiac and have been recovering for more than a year.  Doing well.  Used Essential oil to day to fry some chicken.  Read the label all good.  Then ate some chicken.  Here comes the gluten reaction.  I haven't had a gluten reaction since year.  I am angry.   I have been so careful with this crap and don't wan't any set backs!!!!! Good luck to you with your post.   Celiac is HELL!
    • ThomasA55
      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary intake of iron was pretty steady (mostly in the form of red meat). I did carnivore (therby eliminating gluten) for a bit after the second test and felt improvements in my joints and digestion. I still consume gluten occasionally socially, for religious reasons, and through cross contamination/food sharing. For these reasons, I would need to know if I had it, because although my lifestyle is low gluten its not at the strict level it should be if it turned out I was celiac. I will get a gene test first and hope I don't have DQ2.5,DQ2.2, or DQ8, but if I had any combination of those do you guys think I need proper screening through a gluten challenge / blood test? Other context. From 2024-2025, my b12 stayed about the same in the mid 600s folate went up slightly, but I heard it takes longer for celiac to affect the absorption of these. ANA negative, CRP low, ESR low.  I don't know how much noise exists around the saturation and ferritin, but it caught my eye and Celiac seemed like a possibility. I'm under no illusion that it is probable that I have celiac, only that it may be worth screening given my overall profile.   
    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
×
×
  • Create New...