Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Do When New Allergies Develop.


Bee Vreeland

Recommended Posts

Bee Vreeland Newbie

I am new to this forum as a member, but I've been reading since a little after I went gluten free-- about a year and a half ago. I've found so much great advice before, but currently my problems have changed and I'm searching for advice.

I'm seventeen, and I've never been diagnosed officially with Celiac's; but I started having the classic diarrhea, cramps, and wheezing symptoms after a bad case of the flu in 10th grade. After a few months of these symptoms, I went off gluten, and I felt better than I ever had. So much more energy, and the other symptoms disappeared.

Now, a year and half later, my symptoms suddenly returned-- but worse. I think I've developed an allergy to something else-- probably due to overuse (I probably rely on corn, dairy, and nuts too much.). Also, I ate gluten for about a week several weeks ago, but it's been long enough that it would be out of my system.

My symptoms currently are:

-Fatigue. (Normally I put in 18 hour days with no problem. Lately I feel ready for bed around 6:00.)

-Chronic diarrhea. (For weeks now, and before I went back to gluten for that week.)

-Thinning hair. (It's not horribly dramatic, but noticeable to those who know me. Is this even a possible symptom of food intolerance?)

-Cramps.

-Mood swings. (Although this does make sense considering I feel terrible and am very worried about the symptoms.)

-Muscle cramps. (I was running 4 miles a day since last summer with no exhaustion or pain. In the past six weeks, it's almost completely declined due to sore legs. I love to run-- I do it for fun. Now it's suddenly difficult.)

-Weight gain. (I have trouble keeping my weight up. I dropped to 97 pounds around March and had to deliberately gain weight. I have a naturally high metabolism. Yet in the past six weeks, my weight rocketed to 135. This is not overweight for my height of 5'6", but the rapidity disturbs me.)

-Sudden increase in appetite. (Normally, it is rather small. In the past six or so weeks, I've become hungry constantly and never feel full. I'm taking in excess calories and gaining weight, but it's like my body is not getting the message that we've eaten enough. I don't understand why this is happening.)

I've been reading about the elimination diets, and intend to start on bananas, rice, apples, and other low-allergenic foods tomorrow. However, will that make me allergic to those through overuse? Am I likely to overcome whatever intolerance is bothering me now, or will I have to be highly restricted for a long time? Also, I'm at a decent weight now, but I'm scared of it dropping too much over time. Most of all, has anyone else had similar problems?

I know this is long, but I am at my wit's end. Any advice or support would be highly appreciated.

-Bee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Have you had your thyroid checked recently? Insist on that if you haven't. Weight gain, thinning hair & fatigue are symptoms of thyroid issues. Other things, too. So go to the doctor.

Bee Vreeland Newbie

Thanks, and we have thought of a thyroid problem. However, I'm really hoping (and leaning towards) new allergies because it all started six weeks ago when I suddenly started eating HUGE amounts of food in an attempt to gain my last five-ten pounds. I was about 110 at that point. Before that, I had a rather bland, predictable diet. I'm afraid I kind of shocked my system with loads of peanut butter, nuts, ice cream, chocolate, and other foods I don't normally eat.

Today I started banana-rice-applesauce-apples. Hopefully that will get rid of at least some of my symptoms, although I'm not sure how long I should expect to do that or what to add back from there. I've been reading other posts and am encouraged (although sorry to hear others have to deal with this!) that others have had new allergies develop (and eventually overcome them, in some cases).

viviendoparajesus Apprentice

For me, I do not worry about an official diagnosis since the test has false negatives and requires exposing oneself to gluten which is harmful if one has celiacs. That just seems totally illogical to me. I think if you feel better off gluten that is what is important regardless of what the official name or cause is.

I am in a similar situation where I went gluten free last year and this year I started feeling worse. I have been diagnosed with "bipolar" which often has a seasonal pattern and I am super curious if people with celiac's have noticed regression during certain times of the year.

I also was put on a new diet and supplements (anti-inflammatory / gut repair) that have been great for many people but did not work for me. I also realized I had stopped a supplement (Orthomolecular's Betaine and Pepsin - helps with low stomach acid) that seemed to be worthless but now I am suspicious that it was helping. It is worthwhile to see if you have made any changes that could have triggered you to feel worse.

I was not tested for allergies until I learned about my intolerances, so I do not have the proof but it appears I developed allergies for all the foods I used to it. I was told by a doctor that properly digested food is rendered nonallergenic. So if we are having allergies there are obviously problems with our digestion.

I can totally relate to your symptoms since they are like mine - fatigue, problems with bowels, thin hair/hair loss, moody, mood swings, cramps, pain, weight changes, bloated, always "starving" even when feel physically full. I have had thyroid testing before and the symptoms have historically gone with my thyroid, cortisol, and blood sugar being abnormal.

In regards to low allergenic foods, I am allergic to rice and apple. Bananas can be problems if you have seasonal/ pollen allergies.

I think the bigger problem would be intolerances since allergies could resolve if you can fix your digestive system. However, if you keep having allergic reactions it makes it harder to heal.

It seems possible that you shocked your system by changing your diet but it seems like some variety is better and that limited diets can sometimes cause more harm than good. I have done radical changes in my diet but I have not noticed an issue with it especially when it seems to be the change my body wanted any way.

I was told that corn causes problems for those with thyroid problems or gluten intolerance. Some people can have it but others cannot so it could be an issue for you. Dairy is another big issue for celiacs and people in general there are so many parts that can be a problem - casein intolerance, lactose intolerant, milk allergy, etc.

You did not say what your finances and insurance situation are like. I would find out about intolerances especially dairy and cross reactive foods (foods where your body reacts as if they are gluten - corn is one of them they test for as is dairy and rice is too). I would find out about allergies to minimize your exposure to them while you heal and if you do have them rotate them or have minimal amounts (not what my one doctor recommended but it helped my ability to deal with my diet it is just too hard to have a list of a "billion" things I cannot have). It might be nice to get thyroid testing - try and get the full panel since TSH alone is not enough information - it would likely be good to get your thyroid antibodies tested. I love the books Why Do I Still Have Thyroid Symptoms by Datis Kharrazian and Allergies by Carolee Bateson-Koch - I recommend them highly they have helped me a lot.

Hope this helps. Feel free to reply or PM me if you have any questions.

Bee Vreeland Newbie

Thanks for the detailed response.

I had bananas, rice, and apples/plain applesauce only yesterday, and I feel so much better already. Obviously, I can't grow my hair back overnight; but the diarrhea is improved, and I dropped from 137 on Tuesday night to 128 pounds this morning. I'm thinking water retention had to be part of that.

So if I don't improve completely, I still have the thyroid possibility in my mind. However, I'm pretty optimistic it's something I was eating. Now I'm just anxious to figure out what. I'm sticking with bananas/rice/apples today, maybe adding pears. Tomorrow I think we're doing chicken. I'm nervous about the dairy, nuts, and corn, though. Should I wait a week? A few weeks? More than that?

alex11602 Collaborator

I would wait til you felt better to add something else back in and since it could take a few days to react to something you would probably be better not adding things back in close together that way you are able to tell if you have a problem with a specific food. And for things that you are suspicious of I would reintroduce that at a much later date, with my youngest daughter we only introduced a new food every week and if she had a reaction we would wait another 2 weeks to try something else and for things that we were suspicious off we waited about 2 months to try it.

smmeri99 Rookie

I started this gluten-free diet in april of this year so still new to it but i was feeling great till about july. then all symptoms were coming back. i eliminated dairy and within a week i was great again. i tested it after abt 2 weeks had some lasagna that i made that had ricotta and mozzarella in it suffered for 5 days. so i will stay off dairy for quite awhile now. hope i can reintroduce it at a later date i LOVE milk.

melissa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bee Vreeland Newbie

I'm on the mend but still being fairly cautious, logging what I eat and taking the probiotics. I'm avoiding corn, dairy, nuts, chocolate, gluten-free oats; maple syrup is also suspect. The tiredness and sudden weight gain is still an issue, though, so I'm off to the doctor tomorrow. But I'm thankful for the improvement in the diarrhea.

That sounds awful (the symptoms and the giving up dairy!). :/ I hope you can eat it again too.

Thanks for all the responses. I feel encouraged and like I'm on the ight track so far. We'll see how tomorrow goes.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748

    yfuvhg
    Newest Member
    yfuvhg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.