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Felt Great, Got Scared

swcom120

By swcom120
in Coping with Celiac Disease

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swcom120 Rookie
swcom120
Posted

Been gluten free now for three weeks. I've been really sick for a few months with all the common symptoms you read about on this site. All of a sudden tonight I feel great, no pain, no headaches, this wierd light feeling overcame me. Parts of my body feel different but not in a bad way. Great right? Wrong. I started having an anxiety attack. I feel like there is something wrong with me because I don't feel bad. Does that make any sense to any of you? I have not been diagnosed officially but I have learned enough to know that I needed to go gluten free in order to get better. I dont know how long I've been sick, just know that it hit it's peak a few months ago.

Did any of you out there feel so different that it scared you? Im worried that im going to feel ways that I haven't felt and not realize it's me getting better. This migh not make any sense to some of you but this is all new to me. Unfortunately after a few hours of laying here in bed worrying, I'm starting to get a headache again. Oh well, hopefully these are the signs of recovery.

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bonnie blue Explorer
bonnie blue
Posted

It makes perfect sense to me. When first diagnosed we tried to be a household with gluten products still in the home. But I still had my own toaster, butter, pans, etc....Everytime someone would eat bread, crackers, etc....I kind of freaked out. My doctor did prescribe some anti-anxiety meds, which did help but left me feeling out of it. So after the doctor said go completely gluten free in the house, it made a world of difference. I think because what can hurt us is so readily available everywhere it makes it really scary for us. Something that really helped me was meditation and yoga. I am so glad you are feeling better, I know that sometimes it can be scary after feeling so bad for so long, just stay positive, keep thinking about how great you feel and that you will not let this define you.

Take care and stay positive B)

SarahJimMarcy Apprentice
SarahJimMarcy
Posted

I had a similar feeling - not related to celiac - but after a tremendously difficult year (almost lost my husband, daughter and Mom; promoted at work with three employee slots to fill, etc), I decided to declare the next year The Year of Fun. As part of that, we went to Disney World. I was sitting outside Italy at Epcot watching a parade. I felt this strange light feeling. Almost bubbly. I started to panic. What is this? Am I getting sick? Oh my gosh! ... Oh...wait... I'm feeling happy. This is happiness. It had been a while and was hard to recognize. But I sure was glad it was back!

I hope you continue to heal and more happiness comes to you.

shadowicewolf Proficient
shadowicewolf
Posted

Yep, yep, and yep. I get panic attacks :< Not fun at all when it goes off like that.

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      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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