Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Solution For Chronic Hives/angiodema And Gluten Intolerant


bcberry

Recommended Posts

bcberry Newbie

Hi all, Im a brand new member to this forum, but I have been reading posts on and off for about 3 years now. I want to tell my story in hopes that I can help others in a similar situation.

In January 2007, on a beautiful sunny afternoon, I was sitting outside enjoying the day, when I started itching under my arm. Upon further inspection, there was a quarter sized raised mark just below arm pit. The next day, it had spread to my torso and on my thighs. Weeks into this (and many doctor visits!), I was only getting worse. The hives were covering every inch of my body, even the soles and palms of my feet/hands. And then, the angioedema started in my face. Daily. It was spiraling out of control. So, my allergist put me on every allergy medication under the sun or so it seemed. Prednisone being the only med that seemed to put a dent in it. Most of the time, anyway. Ok, so after a year passed, things started to level out. There would only be a few hives in the morning and they would disappear soon upon waking and a few facial swellings a month. And then another year went by, and I had gotten married and I got pregnant. I was so worried that I would be miserable pregnant and it would flare up. It didn't. In fact, I thought it was gone forever! Hurray!!!

And then I had my sweet, gorgeous, healthy baby girl. I breastfed for 5 months. Two months after I stopped breastfeding, my face started swelling again. And then, one day the hives started coming back. I was devastated! If you are reading this because you have this ailment too, then you know how hard it is. The itching consumes my entire life. I can't enjoy anything to the fullest. I describe it to others as having the 24 hour sensation of having slept in a huge fire ant bed. That usually horrifies them. It horrifies me. I thought I had this monster beat. But all is not lost!

Since "the monster", I like to call it, appeared several years ago, I have done so much research into why this happens that I decided to go back to school to persue another degree in Clinical Lab Science. These are the people that work in your hospital/clinic labs that run every test your doctor needs in order to diagnose you. (I promise Im going somewhere with this story!)Now I can understand the terminology that doctors use and Im WAY more proactive with my healthcare. I know my body better too. How come I went into remission? If I had Celiac, wouldn't I always have celiac disease? I kept coming up with Celiac, but I was never tested. I called and spoke to the nurse under my allergist, and she said she didn't know why I thought it was Celiac...she said that they were trying to figure out whether or not I had an autoimmune disease by the name of Hashimoto's Thyroiditis. (Oh, since I am at this time still in college, I have no medical insurance) So, I made an appointment with my GP. Once again, just as it was before, my blood work came back "within the normal range." So, still no answers. I stayed on the internet for weeks, reading website after website about chronic hives and it's associations. With all the information I compiled, I came up with a few answers. At least, I hope they are answers. I think I have my ailment narrowed down to about 3 triggers. I stopped eating all breads, pastas, etc and also try very hard not to eat a lot of sugars (this includes sugar substitutes). I had found what is called "The Candida Diet". Please look this up and give it a try if you are suffering! It's very hard, and Im not perfect, I fall prey to a piece of cake or chocolate every once in a while. Then, I found some very strong probiotics. I mean the bottle says they are super probiotics. I had to order them online. I wont' mention brand names in this post, but if you are desperate as I was, message me and i will gladly give you the name. AND THEN, I started drinking organic, gluten free, unfiltered apple cider vinegar 3 times a day (2 tbls in 8 oz water). It is nasty tasting but holy moly, Im almost completely hive free. I still have a few upon waking but they disappear quickly and they don't itch.

I just want those of you to know what has worked for me, because I want to help! Please message me if you want more in depth instructions. This could work for you and none of it came from a pharmacy. It's cheap too! I am not on any prednisone and this diet is causing my to lose weight so I am looking like my old self again. I know this is a very long post. I have a lot more info I can share on why this works. and I would love to explain.

Thanks for reading,

B

  • 11 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



das0nz Newbie

HELLO

i would appreciate any help with this .. i am experiencing a lot of what you have.. would like to know, now after a year since your post how you're doing.

unsure how to message you privately..

Sonz:)

sa1937 Community Regular

HELLO

i would appreciate any help with this .. i am experiencing a lot of what you have.. would like to know, now after a year since your post how you're doing.

unsure how to message you privately..

Sonz:)

Welcome to the forum!

The OP hasn't been on the forum since last Aug. 11 but you can send her a message by clicking on the little envelope below her avatar. Hope this helps.

das0nz Newbie

Welcome to the forum!

The OP hasn't been on the forum since last Aug. 11 but you can send her a message by clicking on the little envelope below her avatar. Hope this helps.

Thank you:)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,856
    • Most Online (within 30 mins)
      7,748

    Sonya Haskin
    Newest Member
    Sonya Haskin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.