Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Daughter And I Are Looking For Help!


bonjovigirl

Recommended Posts

bonjovigirl Newbie

Hi,

My daughter has been diagnosed with a wheat allergy. Her allergist has recommended we cut her to ONE serving of wheat a day. She is NINE years old and a VERY picky eater.

I have looked at all the labels of everything she eats, and of course, found WHEAT. Can anyone give me suggestions on what I can feed her??? It seems everything she wants is all the stuff she can't have. I have NO idea what foods to buy for her. She eats very few veggies and fruit, and like myself is a big bread and pasta eater.

I know I have to cut her down on this stuff, but what do I give her as an alternative?? Please, if there is anyone who can help, I would be eternally grateful. Just a list of foods that are ok to give her, and subsitutes would be so helpful. I have looked on the internet, but have not found the right site yet that gives me any help.

She is taking Singulair, Lartadine, and Armour Thyroid now, plus drops under her tounge three times a day.

Thank you so much everyone for your help. My daughter Ashlyn and I appreciate your help.

DeAnne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

Open Original Shared Link

Open Original Shared Link

These are two companies that make bread products. Kinnikinnick has great white breads, great donuts, great pizza crusts, great chocolate chip muffins, decent bagels. Shipping is reasonable at $10 per order.

Chebe is a bread mix. We use it in a variety of ways.. I prefer the garlic onion flavor. We sometimes chop up pepperoni, put in Mozz. cheese, garlic salt, pesto, and bake them in the shape of sticks for pizza sticks. We have a side of sauce for dipping. You can also make great "hot pockets". Stuff with anything you like. My kids liked diced ham and cheese, melted inside the hot pockets. You can also wrap it around a hot dog for corn dogs.

robbiesmom Rookie

Hi There!

Sorry to hear about you daughter-is she just wheat sensitive or actually celiac? I would actually try to leave her bread in tact and reduce her intake to one slice a day if she is just sensitive-does she eat Cheerios or and other whole grain cereal? My son reacted the worst to his breakfast cereal-he is a cheerios freak! When he cut those out he improved a little right away. Also when we stopped giving him Club Cracker Sticks it helped-we did find out he is a Celiac however and are experimenting with the Kinnickinic breads and Chebe products. Also he eats Vans gluten-free Waffles and loves them! Just some ideas! Sara B)

lovegrov Collaborator

Open Original Shared Link

The link above has some lists you can check. gluten-free pasta generally isn't all that bad but I personally think gluten-free bread stinks so I just don't eat it. However, you might find something your daughter likes.

richard

tarnalberry Community Regular

If she is allergic to wheat, and not gluten intolerant, you can use oat flour to replace wheat flour in a lot of baking items, which can be a big help. Commercial breads are unlikely to provide what you need, and as richard pointed out, gluten-free breads aren't all that great so some of us just don't eat them.

It will take some time learning to read the labels, but the easiest/cheapest option is to stick to naturally wheat (or gluten) free foods that are prepared from scratch. It's more work, but that just makes "fast" recipes all the more valuable. :-)

lbsteenwyk Explorer

Hello and Welcome, DeAnne:

Have you been to a local health food or natural foods store yet? Most places carry a variety of both wheat free and gluten free items. You should be able to find cookies, pasta and breakfast bars and cereals that meet your needs. Newman's Own makes wheat free cookies that are sometimes available in mainstream grocery stores. You may also be able to find rice pasta, cereal and gluten free waffles in a mainstream grocery store. I suggest contacting customer service of your local grocery store chain and inquiring what products they have available. Most grocery chains have a dietitian who can help you.

Here are some websites where you can find more gluten free items:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link free.com/index.htm

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    3. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    4. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.