Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lump On Neck

Hennessey

Recommended Posts

Hennessey Rookie
Hennessey
Posted

Has anyone had a celiac symptom that consists of a small dime size lump on side of neck??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

where is the lump at in your neck?

lovegrov Collaborator
lovegrov
Posted

Doesn't sound like a celiac symtpom to me.

richard

Canadian Karen Community Regular
Canadian Karen
Posted

Possibly thyroid related, do you have thyroid disease?

Still, definitely worth going to your doctor about.....

Karen

  • 3 months later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

YES, I had a lump on my neck. It was a hot nodule on my thyroid.

If you would like I will take you back to what lead up to it for me.

About 5 years ago I didn't know what it was. A family member a nurse (not blood related) told me about C D. I believe it was Celiac attacks, they were unbearable I would passout and etc. The thyroid doc said I had borderling HYPER-thyroid. I went on a Dairy Free & GLUTEN FREE diet and got better for 4 years. Or I thought. I still ate night shade veggies and legums and lots of soy and fish. MAJOR STRESS HIT. 2 major hurricanes (barametic pressure dropping wasn't good for my stressed out system) MORE MAJOR STRESS and bam everytime I got upset the thing in my neck grew. No kidding! It felt like I had a lump in my throat and people would say why is that happening -- calm down.

I had a UptakeIn Scan. Ratioactive Iodine to see for sure and confirm it [was a hot nodule]. The doc said they could burn off the nodule (with radioactive iodine treatment) and leave the thyriod gland in tack. But they burned up my entire thyroid, and now instead of being HYPER - I'm now HYPO. I am on thyroid med's I'm sure for life. But the night shade and legems and many other food have since become toxic to me. And the thyroid med has corn in it and I can't tollerate corn. I had a compounding RX make it up for me pure, but with so many power outages the med had to be refrigerated. I take LEVOXYL now.

Go see a thyroid doc (hope you find one that understand C D.)

DON'T mess around and not go, it can kill ya. Thyroid is very important...

RiceGuy Collaborator
RiceGuy
Posted

I agree that it sounds like a thyroid problem. As I understand it, one of the more noticable problems from the damage to the small intestine is not absorbing magnesium. That is very important for a whole lot of things, including the thyroid. Iodine is also important of course.

While I'd recommend getting it checked, I wouldn't let them talk me into radiation/surgury/drugs/etc. I'd suggest making sure you are totally gluten-free of course, get plenty of magnesium (which is in green veggies like spinach), and get proper amounts of iodine. Kelp is a good source of iodine. Just be careful not to overdo it. There's nothing better you can do for your body than proper nutrition.

I'm not an expert on the thyroid, but that's where I'd start if it were me. I would Google for valid info on this too, but be very careful not to get taken by all the misinformation and drug studies.

To me, there is enough evidence linking Celiac disease and thyroid problems, that I think solving the damage from gluten can reverse/prevent many other problems and diseases, including those of the thyroid.

kevsmom Contributor
kevsmom
Posted

When I first read the subject, I thought about the Humpback of Notre Dame :D . It's early, I guess I'm not totally awake yet...(or glutened).

I didn't mean to make fun of you...I hope you have a good sense of humor. The comment was meant to be funny.

It could be related to your thyroid. I would get it checked out if I were you.

Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

I have to concur that this sounds like thyroid to me. I have had thyroid nodules, get an ultra sound because many times the thyroid blood test will show normal when things aren't that normal.

darkangel Rookie
darkangel
Posted

Could also be swollen lymph glands. Whenever I'm sick or having a flareup of other symptoms, I can feel sore, swollen glands on both sides of the back of my neck. Occasionally, the ones under the edge of my jaw in front will get swollen and sore, too. Have you ever had mono? Or Epstein-Barr?

jenvan Collaborator
jenvan
Posted

dark angel has a good idea...i agree it could just be swollen lymph nodes. my understanding is that a thyroid nodule is straight on--in the front of your neck, not on the side.

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Hi again it's me.

I've learned a lot about thyroid and food...

If your thyroid is HYPER you need to eat [less of food with iodine] (fish), and etc...

If your throid is HYPO you need to eat food that will stimulate it.

The material on the net is VERY CONFUSING! It was for me. Don't mess around with this. I went to several doctors. I went to one alternative doc that told me to have the lump cut off my thyroid. OUCH! I am a major DIVA, a girly-girl hair make up, highheels, you know the type. It makes me feel better when I wear something to lift my spirits. I couldn't bear having a scar across my throat like my neck was cut side to side. On my blogg there is a pic of Aunti & I, I have a scarf around my neck only because it went with the outfit. Not to cover up anything, although my thyroid was bothering me at the time.

But if you look at where the thyroid is and where your lump is. It is not under your chin, or where your limp nodes are. Perhpas it could be swollen a doc would know better. It is at the base of your neck and the gland is a butterfly shape. It can expand from side to side if everything is swollen. I'm not a doctor, and I dislike them following the experiece with my Auntie on a feeding tube. But I will say the radio active iodine treatment kicked my skinny-butt. Open Original Shared Link

Here are a few links to show you where it is. I haven't read the information listed on these sites.

Open Original Shared Link

This one has lots of pix Open Original Shared Link here it what it looks like http://www.yourdictionary.com/images/ahd/jpg/A4thyroi.webp

  • 3 months later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Hennessey -- It's been a while... did you find out what the lump was?

Rusla -- knows a good deal about thyroid problems too I remember reading she had a problem also.

Guest cassidy
Guest cassidy
Posted

My mom had a lump on her neck. Then she got one on the other side and they got very itchy. She finally told me about 6 months later when we was sure she was on her death bed. We did some research and figured out she couldn't have gluten. She has been gluten free for 8 months now and the lumps went away shortly after starting the diet. Now, if she mistakenly eats gluten, her first symtpoms are her voice going hoarse, and her throat feeling like it is closing. She also gets hives and intestinal symptoms.

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Watch out for SOY!!!

It's also poison for us with thyroid problems.

LEGUMES are in the SOY family too.

Open Original Shared Link on the right side I list some links about soy... I'll add them here. Open Original Shared Link and one more Open Original Shared Link or this one is great it's not on my blogg yet. Open Original Shared Link

Take care and be well.

  • 2 months later...
DBRIDGEVEGAS Rookie
DBRIDGEVEGAS
Posted

I also have a lot of celiac symptoms. One thing I noticed is that when I eat any gluten I have a lymph node on the back of my neck that gets really swollen...which pushes on a nerve that gives me headaches. Does anyone ever experience any burning sensations in their stomachs after being glutened? How about bloating so bad at night that their stomach seems to go numb in some places. I have not officially been dx'd as a celiac...but I am sure that I am. Every doctor I have seen doesn't even know what it is. They just tell me I am a hypochondriac and write me a prescription for whatever they think will help. I have pretty much given up on doctors and will fight this thing on my own.

jessyjames13 Newbie
jessyjames13
Posted

I just found this website tonight while browsing webmd. I have not been diagnosed with celiac disease but have researched enough about it to wonder if some of my past health problems may be due to celiac disease

I have a hot nodule on my thyroid. It was found almost 10 years ago during a routine physical, since then i have had numerous biopsies, rai uptake and scans, ultra-sounds, and blood test after blood test after blood test. I have been told I am borderline hyper-thyroid, but my TSH levels are not low enough for my doctor to diagnose me with anything. I have had problems with my intestines or as the doctors say "the stomach flu" for my entire life, as well as weight gain for the past 10 years. I often have debilitaing symptoms such as severe cramping,gas, diarrhea, vomiting, dizziness, etc sometimes up to five - six times a year, and generally over the rest of the year I just don't feel "right" As with a post from above...my nodule changes in size for no apparent reason. it is frustrating when you are not able to figure out what is going on. i am not willing to have the doctors burn off the nodule using radioactive iodine. but i am willing to try just about anything to figure out what the heck is going on. I would just like you all to know, it is nice to hear similar symptoms in people and feed back as I have never heard soy can affect people with thyroid problems as well as the statement from riceguy "To me, there is enough evidence linking Celiac disease and thyroid problems, that I think solving the damage from gluten can reverse/prevent many other problems and diseases, including those of the thyroid." I will be contacting my doctor to further inquire about this information. if anyone has any suggestions of where to start and what questions can be asked I would welcome the feed back. thanks

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.