Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bedwetting After Being Glutened?


Guest BERNESES

Recommended Posts

Guest BERNESES

Thank God I can write about this somewhere- at least it's comparable to all the poop problems we have :P Last night, after being severely glutened this weekend (probably the sickest I have been in a LONG time) I wet the bed (I'm pretty sure!). I was really asleep (I sleep very hard while recovering from a glutening) and dreamt I was going to the bathroom and I woke up and i was. It was really strange. It's the first time it's ever happened.

I did a little Google search about adult bedwetting and it doesn't seem like too much of a concern (I experience a tiny bit of day incontinence too- laughing, sneezing, coughing etc.) unless it happens again. My assumption is that my body has been under so much stress from the glutening that I just didn't wake up. Has anyone else had this happen? Thanks, B


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

I have had that happen before...... I think it has something to do with how our bodies get so exhausted (extreme fatigue) from gluten that our inner mechanism that wakes us through the night if we need to "go", just doesn't work.....

I wouldn't worry about it too much unless it became a regular occurence.....

Karen

Guest BERNESES

Thanks Karen- that was sort of what I thought. That makes me feel better. B

cdford Contributor

My incontinence problems are stable as long as I am gluten-free. If glutened even a little, bring on the Poise pads. I also wake up a lot at night to go after an incident. My teenage daughter wets the bed if she is glutened, but is fine if gluten-free. It is an odd side effect, huh?

Guest BERNESES

Yeah- it kind of freaked me out. But then I thought about how exhausted I was after this last glutening and it kind of made sense. Thanks everyone. You've made me feel better! B

  • 7 years later...
wheatweary Newbie

Oh my god, it's the gluten! I'm glad people are posting about this, it's nice to have confirmation from someone else. I've had rare instances of adult enuresis over the past several years or so with no explanation. Then several months ago started a pretty much (not perfect) gluten free dairy free diet, which made me feel better in many ways. Now, I've decided I want blood tests, just to see if it's celiac vs intolerance, so I've been wheating it up for a couple of weeks, feeling awful of course, and had another instance of bedwetting. I doubt it's a coincidence.

The idea that we are sleeping differently and not waking up is interesting. I was dreaming that I was going to the bathroom this time. One time this happened, I was also having a lot of trouble with idiopathic hypersomnolence (that was the diagnosis, though it's really just a symptom--I had sleep studies and everything). I wonder if that's part of it. Or some irritation/inflammation/damage to the nerves that control that function. Or fatigue/strain on the pelvic floor muscles resulting from the gastrointestinal effects of the gluten. I've also had symptoms consistent with interstitial cystitis in the past.

Anyway, I'm posting, too, though it's a little embarrassing, because it helps me when I find someone with the same experience.

NGG Newbie

I'm glad to hear this is related to celiac disease, because my 10-year-old daughter has had this problem occasionally (like a few times a year -not often), and you can imagine her worry that it would happen during sleepovers or slumber parties. I'll have to tell her that it hopefully won't be a problem again. She'll be really relieved to hear that.

It's funny how we got tested and diagnosed and it turned out so many problems we were having that we never would have connected with celiac disease were caused by it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

I'm going to go out on a limb and guess that aside from the teens mentioned, the adults who've had this problem have also given birth at least once? It's TOTALLY normal for women to deal with cough/laugh/sneeze incontinence after giving birth. I would imagine it would have something to do with exacerbating the gluten incontinence. Just remind yourself, it's MUCH better than crapping the bed.... not that I'm speaking from personal experience.... :ph34r:

Persei V. Enthusiast

Now that this was mentioned... I had incontinence problems until very recently. I seriously couldn't laugh without peeing myself. I was extremely self counscious and rarely laughed in public because of this.

It's gone now and I didn't even notice it. :blink:

So yeah, I'm with you guys.

Even though I didn't give birth.

Gemme Rookie

Now that this was mentioned... I had incontinence problems until very recently. I seriously couldn't laugh without peeing myself. I was extremely self counscious and rarely laughed in public because of this.

It's gone now and I didn't even notice it. :blink:

So yeah, I'm with you guys.

Even though I didn't give birth.

Yes ! it happened few times with me, in my case it was low B12 level, once that improved , i never had that feeling.tongue.gif

Thank you

Mattie-Jack Newbie

My kids were bed wetters - daily. I have one that is 9. Every day. Within a week of cutting out gluten it stopped. After researching, it turns out that many people that are diagnosed with overactive bladder are actually having side effects from gluten. Once the gluten is removed from the diet, the overactive bladder stops. It's just one of those things.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748

    jenny44
    Newest Member
    jenny44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.